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Hello,
Welcome to the November 2020 issue of the Hot SHEET. November in Chicago can mean snow, rain, and 60-degree weather. Sometimes we get them all in one week! We fully understand “the only constant is change.”
Change in the diagnosis and treatment of prostate cancer is also constant. The area of most rapid, positive, change is in genetics and genomics. Accordingly, Us TOO and AnCan hosted the webinar Genetics, Genomics, and Prostate Cancer, sponsored by AstraZeneca and Janssen. The full video is available at https://youtu.be/WjkAF1xixOA. The program featured two clinical experts, Dr. Heather Cheng, medical oncologist and Katie Stoll, genetic counselor. They achieved their goal of “providing objective expertise and latest developments."
These were complemented by two cancer patients’ perspectives on the impact of genetic testing:
Janet Shimbukuro was diagnosed with breast cancer at 46, with no family history of breast cancer. She discovered through genetic counseling and genetic testing that she was positive for the BRCA2 gene. This gene often expresses as breast cancer in women and as prostate cancer in men. Her late father and uncle died of the disease. By sharing her BRCA2 positive result with members of her immediate family, she armed them with knowledge allowing them the option to make life saving decisions. Janet’s sister, Eileen Hugdahl, says: “She saved my life.” Now you can hear directly from this amazing survivor and advocate.
James Barrett DeLong is a 19-year prostate cancer survivor and active Us TOO Support Group member. Through genetic testing, he found vital information that has changed his life and his daughter’s life. Like Janet, he has become a “public patient,” educating men about prostate cancer by sharing his own story beyond his support group. James reports that when he reveals his prostate cancer, many other men say “Me too.” This allows them to explore the impact of the disease on their mental health, sense of masculinity, and more. Hope you will enjoy, learn from, and share James’ story.
If these topics interest you, please check out Prostate Cancer Connections "The Talk" Webinar on how and if men with prostate cancer should talk to their kids about how it could impact their lives. The full video of this webinar is available at https://youtu.be/9AQxublTsdA.
Eating Jicama
This issue of the Hot SHEET includes Dr. Mark Moyad’s column “Vote for Jicama Because I love Jicama.” He loves this unsung root vegetable because it is “nutrient-packed, but light in calories and has a simple but wonderful taste, especially as a snack with anything.” Dr. Moyad wanted to note that you should never eat the skin, stem, leaves, or seeds of this root vegetable, only the fleshy white inside. Ideally, you should purchase jicama sticks, but if you get the full root, here is a helpful video on how to cut it… https://www.youtube.com/watch?v=s6r9k0uZX-w.
Webinar Series
Us TOO and AnCan are co-sponsoring a 4-part webinar series entitled Active Surveillance and Beyond. You can view a recording of the July and September programs and register for the November 30th webinar with Dr. Antonio Westphalen and the December 30th webinar with Dr. Jonathan Epstein though www.ancan.org.
COVID-19, Prostate Cancer, and Us TOO
Us TOO has created a webpage dedicated to addressing the impact of the pandemic on all of us affected by prostate cancer. It includes our exclusive articles by Dr. Mark Moyad and many other resources. It is updated frequently, so please bookmark it and visit often. https://www.ustoo.org/covid.
Shalom. Salaam. Peace.
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Beau and the Us TOO Team
Beau Stubblefield-Tave, Executive Director
James Hutson, Development Director
Tracy Cameron, Administrative Assistant
Terri Likowski, Program Director - Support Group Services
Tim Mix, Communications Director
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