Highlight the Caregivers' Role
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Martine Elias, Executive Director
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"Being a caregiver myself enables me to understanding the impact the myeloma caregiver community plays. Every year Caregiver Week takes place in early November, honouring the important work caregivers do and the incredible place they hold in our lives.
Being a caregiver in one capacity or another is becoming increasingly more common, yet the realities of caregiving are not necessarily well understood or recognized. It is exactly for these reasons that we’ve worked very hard to bring you the newest addition to our InfoGuide series: The Multiple Myeloma Caregiver Handbook
."
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For myeloma patients, early diagnosis is very important. It could not only improve their quality of life but their prognosis as well. Healthcare professionals must learn how to recognize the first signs and symptoms of myeloma in order to refer patients to specialists, such as hematologists, for further assessment.
That's why a group of patients from the Vancouver area, together with Gabriele Colasurdo, Manager of Education and Patient Services for Myeloma Canada, met with healthcare professionals from October 31
st
to November 2
nd
at
the Family Medicine Forum in Vancouver. The Forum is hosted by the College of Family Physicians of Canada in order to raise awareness on the importance of early diagnosis.
The Myeloma Canada delegation met with attendees, discussed and shared useful information on the early diagnosis of myeloma.
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Kerry McKeen, Gabriele Colasurdo, Manager of Education and Patient Services for Myeloma Canada, and Judy Herlick.
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We would like to thank the volunteers who helped make myeloma matter at this event.
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What's New at Myeloma Canada
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What do You Want to Know About Myeloma?
Complete the PSP Survey by Dec 10
th
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If you haven't done so already, please take a few minutes to complete the
Myeloma Priority Setting Partnership (PSP) survey
It's an important initiative that involves and empowers those affected by myeloma to play an active role in helping to influence the direction of future myeloma research and will help us determine where to invest our research dollars.
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Our objective is to give the Canadian myeloma community a louder voice, because no one understands myeloma better than those whose lives have been impacted by it.
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Help us help you. Complete the anonymous survey by Dec 10, 2019.
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Questions? Please contact:
Lauren Cook, Myeloma PSP Coordinator
Clinical Research Assistant, Maritime SPOR SUPPORT Unit
(506) 638-2410
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Volunteers Needed for the Multiple Myeloma March 2020!
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Believe it or not, our team is already working on the 2020 Multiple Myeloma Marches!
We're actively looking for volunteers for the 28 marches that will be held across the country in the fall of 2020. We're also looking for leaders to organize new marches!
The success of the 2019 marches was far beyond our expectations.
Together, we raised a record total of $662,000!
None of this would have been possible without the incredible efforts of our leaders, volunteers, participants and our many partners.
Join us and help make the 2020 marches a huge success! Be part of the team!
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To become a volunteer, or to organize a March in your area, contact Michelle Oana,
Director of Development and Community Relations, by email at
moana@myeloma.ca
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You can still donate to this year's march!
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New Video Online
Click on the thumbnail below to view this month’s InfoVideo.
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InfoVideo Series #11
What is the advantage of receiving a second stem cell transplant?
Answered by Canadian myeloma expert, Dr Rayan Kaedbey, Oncologist/Hematologist, Faculty Lecturer, Royal Victoria Hospital, Jewish General Hospital - Montreal, Quebec
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Follow us on
Facebook
and
Twitter
to be amongst the first to see our videos!
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Celebrate the Holidays by Giving the Gift of Hope
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There’s no better way to honour the special people in your life this season than with a gift that’s meaningful, always the right size and has the power to change lives. A gift that says I care and that holds hope for the future.
This year, with every minimum donation of $25 to Myeloma Canada, we’ll send your loved one a beautiful greeting card on your behalf.
Give the gift that truly touches their heart.
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Spotlight on Bob McCaw:
Each Day Is a Gift
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"
I am enjoying my life and consider each day a gift. I stay busy with things that I love, like watching hockey, and I have a part-time job delivering and picking up cars throughout Ontario.
Patients and caregivers, I would encourage you to learn all you can about myeloma. Get involved with a patient support group and with advocacy...research and advocacy are so important to us! Three of the medications that I am on now were not even available when my journey started."
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Friday Night Fish Fry to Benefit the
Windsor-Essex Multiple Myeloma March
When:
Friday, December 6, 2019, from 5 to 7 PM
Where:
Columbian Hall - McGregor, ON
See the menu and the price list
here.
No reservation needed.
Buy your tickets at the door.
For more information, please contact
519 982-5705
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Support Myeloma Canada’s mission in accelerating access to better care for
Canadians impacted by myeloma. Your support and generous donations help to further important medical research and advancements currently taking place in the myeloma field. Moreover, your contributions enable us to provide essential information, programs and services to our Canadian myeloma community.
Find out how you can help by clicking on the button below
or by calling us, toll-free at 1-888-798-5771.
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Follow us on social media for the most up-to-date information and resources:.
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