In this issue:
Pain Awareness Month is one month away. Get involved now! | Write in to CMS to encourage coverage of acupuncture |
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Nvisible Project: Migraine Edition state house tour stops in Sacramento | U.S. Pain Foundation reps present at two national conferences | Kids and families attend 2019 pediatric pain camp | and more.
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Share your video story by August 9
In honor of Pain Awareness Month, share your 3-5 minute video story with us by August 9 and receive a free gift--and be entered to win a fun prize pack, valued at $325.
Read more.
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Pain Awareness Month is one month away. Get involved now!
From submitting to the Storyathon video campaign to obtaining proclamations to hosting information tables, there's a way for everyone to get involved in raising awareness this September.
Read more.
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Write in to CMS to encourage coverage of acupuncture
The Center for Medicare and Medicaid Services (CMS) is soliciting public comment about whether acupuncture for chronic low back pain should be covered by Medicare. The deadline for comment is August 14.
Read more.
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Kids with pain and their families attend 2019 camp
U.S. Pain was one of several organizations to sponsor 30 families with children with chronic pain to attend the 2019 Pediatric Pain Family Camp at The Center for Courageous Kids in Scottsville, KY. Read more.
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INvisible Project: Migraine edition state house tour stops in Sacramento
On July 10, U.S. Pain Foundation took its
INvisible Project: Migraine Edition displays to Sacramento, CA, for an educational event at the state capitol building.
Read more.
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U.S. Pain reps present at two national conferences
Representatives gave talks, led sessions, hosted tables, and participated in panels at two conferences this month: the HealthyWomen Chronic Pain Summit and the 35th Annual Marfan Foundation Conference.
Read more.
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Pain Warrior of the Month:
Jenn Heater
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Heater at the California State Capitol Tour. |
City & state:
Fremont, CA
Pain warrior role:
U.S. Pain advocate since 2018
Health conditions:
Chronic migraine disease, adrenal insufficiency, hypothyroidism, growth hormone deficiency (caused Cushing's disease), trigeminal neuralgia, IBS, and IBD.
Favorite tip for others with chronic pain:
"I cope by advocating. Talking about my experiences and connecting with others that have just begun navigating some of the hurdles I've overcome helps me feel like I'm giving back."
Fun fact about you:
"I did improv for many years starting in high school. I volunteered and taught it to kids in transitional housing when I was living in Los Angeles. I hope to get back to a place where I can be on solid enough ground health-wise to reincorporate it to my life, because I really miss it."
Jenn Heater has been a staunch advocate for the migraine and headache community for years. She recently took her passion for education and advocacy to the internet, helping create and become an editor of My Chronic Brain, a digital magazine helping chronic migraine sufferers live exceptional lives. Jenn was instrumental in getting the California INvisible Project state house tour accomplished and sat on a patient panel at the event, discussing her life with migraine disease.
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Upcoming events
- August 1: Afternoon Pain Connection Live conference call support group and support group meeting in Pell, AL
- August 5: Support group meeting (weekly) in Tucson, AZ
- August 7: Support group meeting in Tucson, AZ; National Coalition of Chronic Pain Providers and Professionals monthly mixer in Tucson, AZ
- August 8: Evening Pain Connection Live conference call support group
- August 9: Support group meetings in Arlington, MA, San Francisco, CA, Oakhurst, NJ, and Ashland, OH
- August 12: Support group meetings in Rockville, MD, and Madison, WI
- August 13: Support group meetings in Concord, NH, and Detroit, MI
- August 14: Support group meetings in Thousand Oaks, CA, and Bellingham, WA
- August 15: Morning Pain Connection Live conference call; Medical Cannabis Co-Directors Ellen and Stu Smith speaking to Brown University medical students; Pain Connection Directors Malcolm and Gwenn Herman presenting at the Southwestern School for Behavioral Health Conference, Tucson, AZ.
- August 21: Support group meetings in Sacramento, CA, and Middletown, CT
- August 22: Afternoon Pain Connection Live support group conference call
- August 23: Support group meeting in San Francisco, CA
- August 29: Morning Pain Connection Live support group conference call
- August 31: Saturday Pain Connection Live conference call support group
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