August 6, 2020 | A global alliance of advocates pledged to take action towards ending Parkinson’s.
PD AVENGERS UNITE!
What is PD Avengers? - PD Avengers
PD Avengers is global group of Parkinson's advocates who were inspired to take action after reading the book " Ending Parkinson's " by Drs. Bas Bloem, Michael Okun, Ray Dorsey and Todd Sherer. Despite the unprecedented advances made in the areas...
If you live in the U.S., write a letter to your congress person to support the bill that bans Paraquat, which is believed to to increase the risk of Parkinson's by 340%!
To learn more about how pesticides increase the risk of Parkinson's disease, watch this webinar by Ray Dorsey, MD
Since we first began to discuss PD Avengers, people have been asking what exactly the group will be doing. The glib answer is ending Parkinson's.
I like to think of the group as a Parkinson's Action Committee. We are advocates inspired to take action towards ending Parkinson's.
We are a Think Global, Act Local organization Each community is different. High level goals and objectives are established, but the tactics to achieve those will be customized and localized by individuals and local communities.
We are not raising or distributing funds, though we will support, promote or advocate for other organizations which do, when it aligns with our vision, mission and objectives.
We spend energy, take action, and believe in promoting Wellness, Advocacy, and Research especially as it intersects with the Ending Parkinson's Disease P.A.C.T. (Prevent, Advocate, Care, Treat)
Thank you to everyone who has registered to be a PD Avenger, joined working groups, asked questions, made suggestions and offered expert insight and advice.
We are 280+ members strong and growing. Check out your fellow PD Avengers here.
Next Monday, we will be meeting with dozens of PD organizations from around the world to talk about how we can all work with each other to improve the lives of people living with Parkinson's while finding a way to end PD once and for all.
Some of that collaboration is already underway.
Next month, some of the PD Avengers will be presenting at the Cure Parkinson's Trust and Van Andel Institute's "Rallying the Challenge 2020" virtual summit. We hope to see you virtually in attendance.
There are many ways to contribute to the PD Avengers and each of you represents at least one great super power we can use to help our cause. Thank you for your patience as we figure the best ways to engage and keep you active and informed.
It is going to take the efforts of all of us to continue to move our objectives forward and become the global advocates our Parkinson's community needs.
All the best,
Larry
Larry Gifford
Host, "When Life Gives You Parkinson's" Podcast
Host, Michael J. Fox Foundation Parkinson's Podcast
If your Parkinson's organization is interested in finding out how to work in partnership with PD Avengers, there are two informational meetings for organizations on Monday, August 10, 2020.
Please contact Larry Gifford if your organization has not received an invitation.
Our Goal:
10,000 Views
Seven Reasons Why... - PD Avengers
Have you watched this video yet? It's task #1 for all PD Avengers. Seven Reasons is a campaign launched by PD Avenger Omotola Thomas, who is also the founder of Parkinson's Africa. The PD Avengers accepted this campaign to support and set an...
Of the 103 PD Avengers who have completed the detailed survey and who have Parkinson's, there is a combined experience and expertise among us of 804 years living with Parkinson's disease.
Wouldn't it be brilliant to give 50 million people their voice? We can show that people living with Parkinsons are people with lives to live, families who love them and professionals who want them to live despite their diagnosis. We can also show ...
Based on feedback, a simplified form has been created to join PD Avengers.
If you have already registered, there's no need to do it again.
With the new form, simply providing your name, email and country let's us know you support us and are comfortable being counted as one of our millions of voices needed to help amplify our messages.
If you have time and expertise to organize or help execute projects, please fill out this more comprehensive survey so we can get a better understanding of your super powers.
You can also send a quality picture of yourself to be placed on the website, please email us.
Reflecting on Inequality - PD Avengers
This is why I feel diversity and equity in the world and without exception in the Parkinson's community at all levels is important. And this is why I am part of the PD Avengers.
