Welcome to the April 2019 edition of our nbmtLINK E-nnouncement

This Month Is Donate Life Month-

Are you on the Be The Match Registry?
We strive to educate, inspire and offer support and hope to patients, caregivers and health care professionals navigating the bone marrow transplant journey.
It is truly our honor. Visit our website often for recorded series, blogs sure to inspire and much more.
Lola Shares Her Journey with
Photopheresis

This month, our licensed staff social worker Jennifer Gillette and guest blogger Lola share important insight through a Q & A session regarding Lola's experience with this innovative treatment.

Note: the following is the opinion of one patient and should not treated as medical advice. If you have any relevant medical questions related to this subject, please be sure to follow up with your health care team.


Our next FREE Lunch & Learn is
Wednesday, May 15, 2019, at NOON EST
 

A Telephone Support Program for Patients and Their Families/Caregivers/Loved Ones 

The Power and Support of an Online Community During the Bone Marrow Transplant Journey

Wednesday, May 15, 2019
Noon EST. (note your time zone)

This month's telephone educational program will focus on the power of reputable online patient communities. Breaking across geographic and cultural barriers, online patient communities enable those living with a disease to connect with others around the world. Our professional speaker is Shona Lovie, MPH, Online Community Engagement Manager of The Leukemia & Lymphoma Society (LLS) .  Our patient speaker is Cynthia Chmielewski, a Multiple Myeloma patient, also known as Myeloma Teacher and a savvy user of online resources, who will share her success, ideas and tips. 


Dial in information is included on the registration form, Technical questions, call Peggy Burkhard, 248-770-5172 or  peggyburkhard@nbmtlink.org .
 
The nbmtLINK’s Jennifer Gillette, LMSW, will facilitate and lead this program. Please note: this session will not cover medical treatments or specific diseases. If you would like to talk to Jen one on one regarding other topics, please email Jen at  jennifergillette@nbmtlink.org . There will be plenty of time for relevant questions related to this month's topic.The call in information is contained in the form you use to register. Note: YOU call in to participate. (We do not call you.)
Check Out Our Interactive Resource Guide Online
We’re Getting Personal!

Our new Online Resource Guide will make you feel like it was built just for you.
To check it out, visit www.nbmtlink.org and click on Find Help, located in the top right corner.

The nbmtLINK is excited to launch this new interactive, easy to navigate online directory sure to help patients, families and health care professionals find specific resources based on patients’ individualized needs. Users can search by specific needs, i.e. co-pay, lodging, medication assistance and more.

Concise keywords will enable users to easily find information regarding bone marrow/stem cell transplant, finances, caregiver issues, cGVHD, clinical trials, donor information, fertility, pediatric cancer and more. With more than 170 reliable, trustworthy resources uploaded, users will feel empowered and encouraged that help is available. 

We also have a FREE print version available and ready to ship upon request. Please send your request to Cindy Burke, cindyburke@nbmtlink.org

Let us know what you think.

Questions, call 1-800-LINK BMT
Visit www.nbmtlink.org to get started!
Join Triage Cancer on May 11 in Chicago
Are you feeling overwhelmed by all of the practical issues that come with a cancer diagnosis, such as understanding health insurance and finances? Our partner @TriageCancer is hosting three Triage Cancer Conferences to help individuals diagnosed with cancer, caregivers, and oncology healthcare professionals learn more about navigating cancer survivorship issues.
For more information: http://TriageCancer.org/Conferences
How We Help Others!
We are a phone call away for patients and their loved ones. From one on one peer support to scheduled call series and webinars, we are ready to ease your burden.
Patients, caregivers and health care professionals are amongst those we aim to help through our valued resource books, programs and one on one calls.
We simply cannot do it without the support of corporations, foundations and individuals willing to make a difference in the lives of others.
We Invite You to Become an nbmtLINK Link Partner!
Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886. Want a free bookmark which lists our many Link Partners? Let us know and we will send you one!

 American Society for Blood & Marrow Transplantation (ASBMT)
Barbara Ann Karmanos Cancer Center
Be The Match Patient Support Center
Blood Marrow Transplant Program at Northside Hospital
Blood & Marrow Transplant Program, The Sidney Kimmel Cancer Center at Thomas Jefferson University
Center for International Blood & Marrow Transplant Research (CIBMTR)
City of Hope 
Dana-Farber/Brigham and Women's Cancer Center
DKMS US
Duke Adult Blood & Marrow Transplant Program, Duke Cancer Institute
Froedtert & the Medical College of Wisconsin health network
Henry Ford Cancer Institute Stem Cell Transplant program
Incyte Corporation
Memorial Sloan Kettering Cancer Center
Meredith A. Cowden Foundation
Nebraska Medicine
Oregon Health & Science University Knight Cancer Institute
Roswell Park Cancer Institute
Seattle Cancer Care Alliance
Siteman Cancer Center at Barnes-Jewish Hospital/Washington University
School of Medicine 
Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center
Spectrum Health Cancer Center
The Leukemia & Lymphoma Society
University Hospitals Seidman Cancer Center
UPMC Hillman Cancer Center
Vanderbilt Ingram Cancer Center
Thank your for being a friend of the nbmtLINK. We simply could not do this without you. If you can support our efforts at this time, we thank you in advance. Every dollar helps..

Sincerely,
Peggy Burkhard
Peggy Burkhard
Executive Director
(248) 358-1886
National Bone Marrow Transplant Link