In her new role as NDF's Chief Medical Officer, Dr. Carrillo will continue to help patients with GNE myopathy, as she did as a physician-scientist at NIH, from a different, but crucially important platform. “NDF is well-positioned to catalyze the development of promising therapies and create programs that will benefit this population now and into the future,” she said, adding, “NDF has a great team with a relentless spirit – just what is needed to conquer this insidious disease.” |
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September has been another month of growth for NDF as we have the pleasure of welcoming David Dahl, a major contributor, and an observer on the Scientific Advisory Committee (SAC), to our Executive Board of Directors.
David's impressive financial background coupled with his expertise on nonprofit boards is a welcome addition to NDF's lofty mission. Read more about David and other Board members here. Learn more about joining us! |
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"Why is gene therapy taking so long"? Let Dr. Paul Martin explain in this clip from his recent GNEM symposium presentation: |
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Our Final GNEM Symposium Speaker Series Presentation |
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As part of our GNEM Speaker Series Symposium |
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For those of you who have been following our journey towards gene therapy for GNE myopathy, here’s a detailed conversation with our board chair Ralph Loren talking shop with our CEO Lalé Welsh from our latest "NDF Talks" podcast
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Don’t miss our special, October HUDDLE when GNEM patient and psychiatrist, Jennifer Yashari, M.D joins as facilitator.
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While NDF offers all of this programming to you at no charge, our work and our funding to scientists has not stopped because of COVID-19. Please consider making a donation (of any amount) to help us continue to fund our efforts, if you are able.
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Meet the women behind NDF
Click on an image to learn more about each of these amazing women
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At NDF, Nancy Lurie oversees operations and manages patient facing programs including our symposia, Certified Patient Advocate program, HUDDLES, Care Partner and Youth groups, genetic screening efforts, young adult outreach and events.
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Lale’ Welsh, CEO of NDF, has a successful 20+ year history in Silicon Valley, from which she now draws to serve the nonprofit sector exclusively. As an advisor,Trustee and Executive Director to dozens of US based NPO/NGOs, she is dedicated to the rise & professional execution of noble causes, delivered end-to-end.
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Recognized as an expert in GNE myopathy and a physician-scientist dedicated to advancing therapies for rare diseases, Dr. Carrillo brings to NDF her vision, experience, and unwavering commitment to patients with GNEM.
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