GIVE 25 MINUTES  & 
MAKE A HUGE IMPACT!
We still need to hear from YOU! We have had a great initial response to our HH Comorbidity Survey with individuals from over 25 different countries participating, but we need your help to reach our goal of over 200 participants. 

Take or finish the survey  HERE.
It takes about 25 minutes to complete. 

What are your top HH concerns? 
We want to hear from you and how you are impacted by HH.  Whether you have HH, c are for someone with HH, or even if your loved one with HH has passed away - please help us identify all of the symptoms that may be related to Hypothalamic Hamartomas. 

Need more reason why you should participate - read this blog! 

Survey closes Monday, Aug. 12. 

Email Erica with any questions.
ATTENTION ALL HH DOCTORS & HEALTH PROFESSIONALS:

Please help us get the word out about the survey to your patients too. Please share the survey link in your clinics, via email directly to your HH patients, in your newsletters, and on your social media channels. Help us get the word out broadly. For more information, contact Lisa
.
Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

DO YOU GET IT ALL?