Last month we announced 5 new winners of our MPN Challenge grant program.
Click here to read about them and their projects. We'll have updates on the progress of past year's grantees soon. Also, look for our bi-annual MPN Update newsletter in your mailbox soon. If you aren't sure we have your updated mailing address simply send us an email
here with where we should send it.
There are many events coming up for people with PV, ET and MF. Whether you are newly diagnosed, a long time patient or a caregiver, these are a great way to connect with others going through the same thing as well as learn more about how to best live with your MPN. Please read on for a few events coming up (plus a chance to nominate an MPN hero in your life).
Sincerely,
Michelle Woehrle
Executive Director
Even
Upcoming events for MPN patients
Nominate an MPN Hero today!
Recognize individuals, institutions, and organizations who act above and beyond in their efforts to support patients with MPN.
ASU working with Mayo Clinic on Fitbit symptom and QOL study
Dr. Jennifer Huberty, an Associate Professor of Exercise and Wellness at ASU and Dr. Ruben Mesa (Mayo Clinic) are conducting a research study to explore the effects of a mobile-application health intervention on the MPN patient symptom burden (e.g., pain, fatigue, depression, anxiety, and sleep) and quality of life.
Click here for more information about this study.
Clinical trial now recruiting
Luspatercept
A safety and efficacy study to evaluate luspatercept in subjects with myeloproliferative neoplasm-associated myelofibrosis who have anemia with and without red blood cell-transfusion dependence
CTI BioPharma Announces First Patient Enrolled in Phase 2 Trial of Pacritinib in Patients with Myelofibrosis who have Thrombocytopenia and who have been Previously Treated with Ruxolitinib
