Family Connections Newsletter
Eileen Hawkins,
Parent Mentor
August, 2019
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WELCOME BACK!

Welcome back to the 2019-2020 school year. I sincerely hope that everyone had a wonderful summer with many happy memories amongst family and friends. I am so excited to start another school year with your family.

The Parent Mentor Program through Cuyahoga Heights School District offers support, information and resources to families and students receiving intervention services and to the professionals who serve them. 

This program strives to promote strong relationships between parents and school personnel through effective communication and knowledge of the intervention services. The district recognizes that when family and schools work together as a team, the child benefits by receiving the most appropriate services for learning.

I started as your district’s Parent Mentor in August 2014. I have three children and reside in Independence with my husband Brian and our youngest son, Grant. I have personally experienced the special education process in my own family. Although no two situations or students will ever be alike, I do understand the importance of working together with families and schools to do what is best for your child. No Cost, confidential help is just a phone call away. Listed below is a brief summary of services available.

What can a Parent Mentor do?

Provide information and support about special education issues.

Make sure the District receives the perspective and input from the families .

Attend ETR, IEP or 504 Meetings or other
meetings at the request of the parents or staff members.

Listen and support both the families and
teachers on an individual basis.

Engage community services and other
resources to support schools and families.

Host information sessions or workshops for families and professionals.

All services are provided at NO cost to families served by the Cuyahoga Heights School District. If you know of anyone, who is not receiving this electronic newsletter and would like to receive it, please have them complete the attached form in the link below and mail or email it back to me at their earliest convenience.


If you have questions or would like a personal meeting, please do not hesitate to contact me at  (216) 524-0424 or email me at Eileen.Hawkins@escneo.org
Autism & Wandering

A research   study  confirmed what many parents know well: Wandering by children with autism is common, dangerous and puts tremendous stress on families. We also know that people with autism of all ages can have wandering tendencies. Review the resources and information below to help you develop a multifaceted safety plan which includes wandering prevention strategies. 

To report an active case of wandering  click here .

Six Tips to Help Prevent Wandering and Wandering-Related Tragedies
(From AWAARE: Autism Wandering Awareness Alerts Response Education Coalition and Autism Speaks)

1. Secure Your Home
Consider contacting a professional locksmith, security company or home improvement professional to promote safety and prevention in your home. You may find it is necessary to prevent your loved one from slipping away unnoticed by installing secure dead bolt locks that require keys on both sides, a home security alarm system, inexpensive battery-operated alarms on doors, placing hook and eye locks on all doors above your child's reach, fencing your yard, adhering printable STOP SIGNS to doors, windows and other exits, etc.

2 . Consider a Locating Device
Check with local law enforcement for Project Lifesaver or LoJak SafetyNet services. These tracking devices are worn on the wrist or ankle and locate the individual through radio frequency. Various GPS tracking systems are also available.

3. Consider an ID Bracelet
Medical ID bracelets will include your name, telephone number and other important information. They may also state that your child has autism and is non-verbal if applicable. If your child will not wear a bracelet or necklace, consider a temporary tattoo with your contact information. 

4. Teach Your Child to Swim
Swimming lessons for children with special needs are available at many YMCA locations. The final lesson should be with clothes on. Remember: teaching your child how to swim does not mean your child is safe in water. If you own a pool, fence it and if neighbors have pools, let them know of these safety precautions and your child's tendency to wander. Remove all toys or items of interest from the pool when not in use.

5. Alert Your Neighbors
It is recommended that caregivers plan a brief visit with neighbors to introduce their loved one or provide a photograph. Knowing your neighbors can help reduce the risks associated with wandering.

6 . Alert First Responders
Providing first responders with key information before an incident occurs may improve response. Informational handouts should include all pertinent information and be copied and carried with caregivers at all times. Circulate the handout to family, neighbors, friends and co-workers, as well as first responders.
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The Importance of Autism Awareness in Our Youth
by Natasha Barber

When we think about Autism Awareness we think about educating the community leaders; the teachers, caregivers, police officers, neighbors, family and friends. Why is it so important to make sure as many people as possible are educated in Autism and the challenges and beauty Autism offers is because awareness is key to acceptance and respect. The more that people learn and understand about children with Autism, the more empathy and proper care they will receive. So what about the importance of autism awareness in young children, and how do we teach empathy?

When my son was five years old, I put him in a pre-school program with an aid. Joshua was given the opportunity to participate in all the activities just like his fellow classmates. His peers, like all other children in the community had to learn what Autism was for Joshua, how they could help him, how they were the same, how they were different and how to respect one another. If young children have the opportunity to learn about diversity and disabilities such as Autism, they will have a better understanding and appreciation of other children when they meet someone with special needs.

Empathy allows children to not only understand other’s conditions but encourages them to put themselves in that person’s shoes, feel what they are feeling and is the first step towards compassionate action. During Circle Time at the preschool, Joshua’s classmates would get his special sensory chair for him so that he could feel comfortable and included.
When they saw him climbing on something dangerous, they would swiftly alert the teacher or guide him to safety. And at craft time, one sweet student always sat next to him, providing consistency and camaraderie. The children around Joshua didn’t see him as Autistic, but as a friend that sometimes needed help participating.

It is essential that children learn at a young age,
that it is ok to be different, have challenges, and
that there is so much more to a person than
their disability. This acceptance and understanding leads children to being more protective of their fellow peers and may even lead to fewer bullying experiences.

Teaching children Autism Awareness is just as important as teaching adults in the community. Children at a young age learn that it is ok to be different and no two people are the same. As a growing society of children with different disabilities and challenges, we need to be open with our youth about the importance of seeing a person’s disability as only a small characteristic of a person, that
there is so much more to an individual then just their disability. So as society is growing to become more mindful and respectful of individuals with disabilities and challenges, our youth also become examples of empathy, respect and compassionate support for others.


Natasha Barber is the author of the forthcoming, “The Waiting Song,” published by Future Horizons Inc, and available at your local stores in November 2017.The picture book is about Nigel the Hedgehog, who has autism and struggles with being patient, polite or taking turns, but with the help and understanding of his classmates, family and his teacher Miss Little, Nigel can make new friends and learns a musical way to be patient. “The Waiting Song” was inspired by her eleven year old son Joshua, who is Autistic and came up with his waiting song during therapy. Natasha’s, “The Waiting Song,” really captures the idea that Autism Awareness is key for children and adults to understand individuals on the spectrum and with that understanding and awareness comes love, and acceptance.
For more information on autism advice and experiences:
Blog: www.autismmomsknowsafety.com Facebook: AutismMomsKnowSafety Instagram: @thenatashabarber
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Sibling Expressions Art Therapy Group

Sibling Expressions is offered to siblings of children who've been affected by medical or mental illness, or a diagnosis that is life changing. This art therapy group accommodates children ages 6 to 12 years old. 

During sessions, siblings explore various art materials to promote self-expression and foster healthy coping skills.

Free of charge, space is limited. RSVP as soon as possible.

Cleveland Clinic Children's Hospital for Rehabilitation
2801 Martin Luther King Jr. Dr.
Cleveland, OH 44104
Katie Zaller
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What is Epilepsy?
(Provided By Connecting for Kids)
Has your child been diagnosed with epilepsy? Epilepsy is a brain disorder that causes people to have recurring seizures. The seizures happen when clusters of nerve cells, or neurons, in the brain send out the wrong signals. People may have strange sensations and emotions or behave strangely. They may have violent muscle spasms or lose consciousness. Epilepsy has many possible causes, including illness, brain injury, and abnormal brain development. In many cases, the cause is unknown.

It’s important to remember that these are seizures not caused by something like a high fever. Seizures can last anywhere from a few seconds to several minutes.

There are over 40 types of epilepsy with different causes and different types of seizures. Some people even have more than one type of seizure or other medical diagnoses that can have an impact on someone’s seizures.

Just Getting Started?
Families who are just beginning to uncover a concern about epilepsy may benefit from Connecting for Kids'  Empower the Parent  program. This step-by-step resource shows you how to get started finding help for your child.

Recommended Organizations
The following organizations have been identified as places to get more information and support:

Empowering Epilepsy
1-440-248-6158

Epilepsy Association
1-216-579-1330

Epilepsy Foundation
1-800-332-1000
contactus@efa.org

The Rare Epilepsy Network
1-888-886-3745
https://www.epilepsy.com/make-difference/research-and-new-therapies/engagement/rare-epilepsy-network-ren

Recommend Books and Apps
Cleveland Clinic Guide to Epilepsy
E. Wyllie, MD

Taking Seizure Disorders to School: A Story About Epilepsy K. Gosselin

Mommy, I feel Funny! A Child's Experience with Epilepsy D. Rocheford

The Great Katie Kate Explains Epilepsy
M. DeLand

Epilepsy and My Child Tool Kit eBook from Epilepsy Foundation View

My Seizure Diary (app) from Epilepsy Foundation
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Facts about Tourette Syndrome
  • Tourette Syndrome (TS) is a neuro developmental disorder that becomes evident in early childhood or adolescence. It is part of the spectrum of Tic Disorders and is characterized by motor and vocal tics.
  • Tourette Syndrome and other Tic Disorders are not rare. The current estimates are that 1 out of every 160 children between the ages of 5-17 in the United States has TS and that 1 out of every 100 children has TS or another Tic Disorder.

  • Some Tic Disorders may be transient, while others will persist into adolescence and adulthood.

  • It is common for people with Tourette Syndrome to be affected by another co-occurring condition.

  • Some co-occurring conditions are Attention Deficit Hyperactivity Disorder (ADHD) and Obsessive Compulsive Disorder (OCD).

  • There is no cure for Tourette Syndrome, but thanks to years of dedicated research, there are various treatment options.


The Tourette Association of America's   guide  is meant to serve as a starting point for patients, family, friends and teachers or anyone who may know someone affected by Tourette Syndrome. It will provide you with an overview of Tics, Tourette Syndrome, and other Tic Disorders, addressing several areas of living with these conditions.

Since TS and Tic Disorders may present and impact each person differently, you can use the information in this kit as it pertains to your needs or that of of the person who this may pertain to in your everyday living.

If you would like to learn more about a specific area, visit the Tourette Association website for a comprehensive library of resources or contact TAA by email or phone.

To request a hard copy of this tool kit or guide , please contact the Tourette Association of America at (718) 224-2999.

See Video below: "What I Wish People Would Know What it is Like Living with Tourette's Syndrome"
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Crisis Text Line (Ohio)

Throughout Ohio, individuals can text the keyword “4HOPE” to 741 741  to be connected to a Crisis Counselor . Any person may need help in coping with a stressful situation. Reach out by text to communicate with someone trained to listen and respond in a method that is private, secure and confidential.

The Ohio Department of Mental Health and Addiction Services (OhioMHAS) has entered in to a contract with the national Crisis Text Line to provide Ohioans with a state-specific keyword to access its free, confidential service available 24/7 via text on mobile devices. This resource is intended to broaden the options available through current community crisis hotlines.
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Local Resources

  The Up Side of Downs of Northeast Ohio  –  The Up Side of Downs of Northeast Ohio provides programs and services to improve the quality of life for individuals with Down syndrome and their families. USOD serves over 900 families caring for a loved one with Down syndrome in the Northeast Ohio.

Achievement Centers for Children  – Achievement Centers provides support for children with a wide range of disabilities through customized therapies, education and childcare programs, camping and recreation opportunities, nationally-recognized autism programs and family support services.

Buddy Up Tennis  –  Buddy Up Tennis is a high-energy, adaptive tennis and fitness program for children and young adults with Down syndrome. They provide fun and rewarding 90-minute clinics on a weekly basis.

Differentneedz.com   –  The Different Needz community offers special needz families a one-stop shop to buy and sell their gently used medical supplies, disability equipment and adaptive toys.

Gigi’s Playhouse Cleveland  – GiGi’s Playhouse offers more than 30 therapeutic and educational programs that advance literacy, math skills, motor skills and more.

Jacob’s Ladder Special Needs Fitness  – Jacob’s Ladder Special Needs Fitness is dedicated to helping the special needs community lead healthier lives by providing ongoing, regular and consistent exercise opportunities, as well as educating them regarding a healthy lifestyle.

SPECS4US   – Superior Precision Eyewear for Children who are Special is a frame line designed to accommodate and fit the features of children and adults with Down syndrome, as well as, other individuals with unique facial features.

SPLASH @ Lifecenter Plus   –  S.P.L.A.S.H ADAPTIVE SWIM LESSONS Swim, Persevere, Learn, Achieve, Socialize, and Have Fun! SPLASH swim lesson are for children and teens with mental and physical disabilities.

The Arc of Greater Cleveland   The Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities providing an array of services and support for families and individuals.

W.A.G.S. 4 Kids  –  Working Animals Giving Service for Kids (W.A.G.S. 4 Kids) is dedicated to providing mobility service and autism spectrum service animals, meeting the specific needs of children with disabilities in Northeast Ohio, utilizing our Award-Winning ODRC Accredited Service Dog Training Program.
Eileen Hawkins,
Parent Mentor

Confidential Help Available for help with IEP's, 504 Plans, Resources, Support and more. Services provided free of charge by
the district.

Call  216-524-0424  for more information or  eileen.hawkins@escneo.org
Please read...

This newsletter is a resource. Cuyahoga Heights Schools do not endorse or recommend any providers, methodologies or services from any of the groups or companies listed. 

We urge you to make independent judgment when selecting a pr ofessional to assist you.