Greetings!
Welcome to the March 11th issue of CanChild Today! We are excited to share the latest funding updates, upcoming events, and publications by some of our members.
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CanChild Members Receive CIHR Grants! |
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The Canadian Institutes of Health Research (CIHR) awards project funding to research and knowledge translation initiatives related to health. This year, four projects with CanChild members as principal and co-investigators received CIHR funding.
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ENAbling VISions And Growing Expectations for Service Providers (ENVISAGE-SP): Creating opportunities to change how service providers think, talk about, and approach childhood disability in the 21st century |
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A team of researchers and parents from Canada and Australia developed ENVISAGE—a series of workshops that aims to improve parents' well-being and help them feel more competent, confident and empowered. Since the initial launch of ENVISAGE, the team received consistent feedback to make the workshops available for Service Providers (SPs). ENVISAGE-SP is being developed and will be delivered to and evaluated systematically with service providers across Canada and Australia. |
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Co-investigator(s): Babic, Rose; Cavalieros, Vicki; Cross, Andrea; Cursons, Melissa A; Edwards, Ann M; Imms, Christine; Knight, Sarah; Milner, Kate M; Novak Pavlic, Monika; O'Connor, Bridget E; Phoenix, Michelle; Pozniak, Kinga; Reynolds, Kelly J; Streiner, David L; Winkler, Jaime; Wittmeier, Kristy D |
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Measure of Processes of Care 2.0 - Towards the new gold standard in measuring family-centred service |
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The Measure of Processes of Care (MPOC) is a tool that measures parents' experiences with health care services. Researchers at CanChild created the MPOC in 1996, and a lot has changed since then. The MPOC 2.0 project aims to develop an up-to-date tool that will reflect and measure parents' and caregivers' experiences of health care service delivery. |
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Developing a Measure of Resiliency-related Adaptive Self-Capacities for Rehabilitation Intervention |
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Resiliency is a relatively new area of interest in rehabilitation. At present, no clinical tools exist to measure the adversities that individuals with disabilities commonly experience. This study aims to identify the factors that affect self capacities related to resiliency, develop a reliable and valid measure of these capacities, and investigate the ability of the measure to capture change across types of interventions. |
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Co-investigator(s): Chiarello, Lisa A; Curran, Cynthia Jean; Einarson, Kathleen M; Lamptey, De-Lawrence; McLarnon, Matthew J; Munce, Sarah E; Nalder, Emily J; Nelson, Michelle L; Seko, Yukari; Servais, Michelle |
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Using Social Network Analysis to Understand Knowledge Translation in Child Development and Rehabilitation |
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Connections between people and across groups support the sharing of the best available knowledge on rehabilitation. Using social network analysis, this study will describe strong or weak knowledge sharing connections, identify the enablers and barriers for knowledge sharing, and develop recommendations to improve knowledge sharing on a local and national scale. |
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Principal investigator(s): Wittmeier, Kristy D; Glegg, Stephanie M
Co-investigator(s): Cassidy, Christine E; Costello, Carrie; Cross, Andrea; Curran, Janet; Hesketh, Kim; Kingsnorth, Shauna; Russell, Kelly F; Sibley, Kathryn M; Wiart, Lesley E |
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New Open Access Publications! |
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A Special Issue on participation and well-being of children and youth with childhood-onset disabilities, co-edited by Dr. Dana Anaby and Prof. Mats Granlund, is now available. This special issue published in the International Journal of Environmental Research and Public Health includes a collection of 14 articles from different parts of the world - all open access. |
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Join us for a CP-NET Webinar on Hip Surveillance for Children with CP: Why do we do it? You will hear from pediatric orthopedic surgeon Dr. Unni Narayanan and there will be a Q&A with developmental pediatrician Dr. Darcy Fehlings.
Monday | March 29 at 12:00 PM EST | Join via Zoom
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Mark your calendars for another Luke's Legacy Family Research Rounds!
Dr. Penny Corkum will talk about sleep issues in children with neurodevelopmental conditions, featuring the Better Nights Better Days study.
Wednesday | March 31 at 7:00 PM EST | Join via Zoom or Facebook Live
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Recent Publications by CanChild Members!
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Examining how time from sport-related concussion to initial assessment predicts return-to-play clearance
What is the optimal time to assess and manage young athletes with sports-related concussion? Observation shows that the days between injury and initial assessment, male sex, and previous concussion history were significant predictors of time to return to play and discharge from treatment. Athletes who were assessed at 0 to 9 days from injury were two times more likely to return to play sooner compared to those athletes assessed 10 to 30 days from injury. In summary, those being evaluated earlier experience a faster return to play so early intervention is important in recovery. Authors: Pratile T, Marshall C, DeMatteo C. Phys Sportsmed. 2021 Feb 14:1-9. doi: 10.1080/00913847.2021.1879603.
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Mothering Children with Disabilities through COVID-19
This chapter examines the experiences of mothers of children with disabilities during the first six months of the COVID-19 pandemic. Although it is increasingly well documented that the COVID-19 pandemic is taking a disproportionate toll on the lives of mothers everywhere, mothers who have children with disabilities face particular challenges. However, many of the COVID-19-related phenomena that the majority of people experience as a profound disruption of their normal lives are, in fact, nothing new to these mothers. Paradoxically, they also benefit in unexpected ways from some of the new mechanisms of access and connection that have been widely adopted as a result of COVID-19. The mothers’ accounts point to the need to rethink many aspects of our social organization, central among them being the role that carework plays in the functioning of society. Authors: Pozniak, K. and Kraus de Camargo, O. 2021 March. In A. O’Reilly and F. Green (Eds). Mothers, Mothering and COVID: Dispatches from a Pandemic (pp.275-287). Demeter Press. http://demeterpress.org/books/mothers-mothering-and-covid-19-dispatches-from-the-pandemic/
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Participation-Focused Strategy Use Among Caregivers of Children Receiving Early Intervention
This study aims to support young children's participation at home and in the community and provide evidence on common types of strategies for caregivers focused on participation. Nearly half of caregiver strategies targeted the child's environment or context. The study findings reinforce the importance of families being familiar with strategies focused on the environment to support child's participation regardless of diagnosis. Other strategies are mostly aimed to increase a child's perceived comfort, confidence, or sense of freedom. Future research should examine the longitudinal transactional processes that support children's participation over their lifespan. Authors: Kaelin VC, Bosak DL, Villegas VC, Imms C, Khetani MA. Am J Occup Ther. 2021 Jan-Feb;75(1):7501205090p1-7501205090p11. doi: 10.5014/ajot.2021.041962. |
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