Updates and News on Congenital Cardiac Care

The Pulse - April 2020

The Pulse is a summary of relevant news and articles for Congenital Heart Professionals and highlights:

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What's Been Happening?

Pediatric Cardiology Links

Improving National Outcomes in Congenital Heart Surgery

Google Alerts: NCBI

ACC Releases CV Competencies for Nurse Practitioners, Physicians Assistants

Google Alerts: MD Magazine

Long Term Mortality Trends Among Children and Adults with Congenital Heart Disease in the United States from 2007-2017

Google Alerts: DocWire News (blog)

Program Director Survey Shows Variation in CV Imaging Training

Google Alerts: Medscape

Nationwide Children’s Hospital expands telehealth services during coronavirus pandemic

Feedly: NBC Columbus

FDA Clears SynCardia 50cc Temporary Total Artificial Heart as Bridge to Transplant

Google Alerts: Diagnostic and Interventional Cardiology (press release) (blog)

VLAD, Peter, MD, FRCPC "Petre"

Google Alerts: Buffalo News

Infant respiratory syncytial virus prophylaxis and nasopharyngeal microbiota until 6 years of life: a subanalysis of the MAKI randomised controlled trial

Google Alerts: The Lancet

Pediatricians facing myriad moral dilemmas during COVID-19 pandemic

Google Alerts: AAP News

Use of Pectoral Nerve Blocks for Pacemaker or ICD Placement in Pediatric Patients

Google Alerts: The Cardiology Advisor

Coronavirus Is Causing a Reshuffling of Pediatric Care

Google Alerts: U.S. News & World Report

Children With COVID-19 May Not Show Symptoms, Still Spread Disease to Others

Google Alerts: Morbidity and Mortality Weekly Report

Pediatricians facing myriad moral dilemmas during COVID-19 pandemic

Feedly: AAP News

FDA Approves 50cc Total Artificial Heart System as Bridge to Transplantation

Feedly: Cardiology Advisor

Use of C-Reactive Protein and Ferritin Biomarkers in Daily Pediatric Practice

Feedly: AAP News

Brain Injury and Critical Congenital Heart Disease

Google Alert: AAP News

Health Care Supervision for Children With Williams Syndrome

Google Alert: AAP News

Variation in Clinical Usefulness of Biomarkers of Acute Kidney Injury in Young Children Undergoing Cardiac Surgery

Google Alert: DocWire News (blog)

Why Do Poor Children Fare Worse After Heart Surgery?

Google Alert: Columbia University Irving Medical Center

Caring for children with Williams syndrome: AAP recommendations

Google Alert: Medical Dialogues

Children’s Hospitals Links

Backer Named Director of KCH Pediatric Cardiovascular Program

Google Alerts: UKNow (press release)

New York surgeon writes haunting letter about rationing care for patients who don't have the coronavirus

Google Alerts: The Albany Herald

Nurse says she was suspended after refusing to treat coronavirus patients without a mask

Feedly: USA Today

Nurses protest outside of UCSF Benioff Children's Hospital over PPE

Feedly: Yahoo News

MUSC plans to use old children’s hospital to fight coronavirus

Feedly: Charleston Post Courier

More Than 750,000 Masks Auctioned for Huge Markup While Hospitals Run Out

Feedly: Bloomberg

New York hospital opens pediatric surgery center, part of $120M investment

Google Alert: Becker's ASC Review

Children's hospital set for $300M-plus expansion with huge gift from Michael, Susan Dell

Google Alert: Austin Business Journal

UNC Health Care has a new name and logo as hospital system overhauls its operations

Google Alert: Raleigh News & Observer

Trial Begins in Lawsuit Against Boston Children’s Hospital

Google Alert: NBC 10 Boston

Westmead reopens hospital war over children's heart surgery

Google Alert: The Sydney Morning Herald

MUSC opens $389M Charleston children's hospital

Feedly: Becker’s Hospital Review

Jury Finds Boston Children's Hospital Not Guilty In Justina Pelletier Medical Malpractice Case

Feedly: CBS Boston

Lurie's new CEO on improving kids' health

Feedly: Chicago Business

Science Links

Genomics experts dispute nine genes linked to congenital heart condition

Feedly: NIH/National Human Genome Research Institute

The American Heart Association ("AHA") Recognizes Mezzion's FUEL Trial as the Biggest Victory in Congenital Heart Disease ("CHD") Advancements for 2019

Google Alert: Yahoo Finance

Many genes reportedly tied to long QT syndrome have weak evidence

Feedly: Healio

Health Academics and Politics Links

Heart doctor quits Australia after cardiac services turf war

Google Alert: Daily Telegraph

Children's heart doctor quits Australia after turf war

Google Alert: Queensland Times

Doctors and nurses at Melbourne hospital racially abused over coronavirus panic

Feedly: The Guardian

Children’s Hospital Shaken Down By Blagojevich: No Comment On Trump Sentence Commutation

Feedly: Forbes

American Mothers Are Dying Because of the U.S. Health Care System

Feedly: Yahoo Finance

After 10+ years, CDC is finally reporting maternal mortality again. (The news still isn't good.)

Feedly: The Daily Briefing

Why Do Poor Children Fare Worse After Heart Surgery?

Google Alert: Columbia University Irving Medical Center

Cardiomyopathy Links

Capricor Therapeutics to Host Key Opinion Leader Call on Cardiac Complications of Duchenne Muscular Dystrophy

Google Alerts: GlobeNewswire (press release)

Comprehensive guide on managing Cardiomyopathies

Google Alert: EurekAlert (press release)

Retrotope Doses First Patient with RT001, Friedreich’s Ataxia Investigational Therapy

Google Alert: Friedreich’s Ataxia News

Major cardiac events for adult survivors of childhood cancer diagnosed between 1970 and 1999: report from the Childhood Cancer Survivor Study cohort

Google Alert: The BMJ

New gene mutation associated with Fabry cardiomyopathy

Feedly: Medical Xpress

Okayama University Research: The Molecular Pathogenesis of Muscular Dystrophy-associated Cardiomyopathy

Feedly: StreetInsider.com

Team deciphers how myotonic dystrophy generates lethal heart dysfunctions

Feedly: Medical Xpress

Marfan Links

The Marfan Foundation Climbs in 2020 Best Nonprofits to Work For

Feedly: Yahoo Finance

Adult Congenital Heart Disease

Improving National Outcomes in Congenital Heart Surgery

Google Alerts: NCBI

ACC Releases CV Competencies for Nurse Practitioners, Physicians Assistants

Google Alerts: MD Magazine

Long Term Mortality Trends Among Children and Adults with Congenital Heart Disease in the United States from 2007-2017

Google Alerts: DocWire News (blog)

Program Director Survey Shows Variation in CV Imaging Training

Google Alerts: Medscape

Nationwide Children’s Hospital expands telehealth services during coronavirus pandemic

Feedly: NBC Columbus

Heart transplantation in adults: Indications and contraindications

Google Alerts: UpToDate

Adult Congenital Heart Disease Cardiologist

Google Alerts: University of Utah - PeopleAdmin

SCAI issues recommendations on adult congenital cardiac interventional training

Google Alerts: EurekAlert (press release)

Medicare changes may increase access to TAVR

Feedly: Medical Xpress

New Guidelines for Multimodality Imaging of Congenital Coronary Anomalies

Google Alert: Diagnostic and Interventional Cardiology (press release) (blog)

Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease: an international study

Google Alert: MD Linx

Pregnancy in Adult Congenital Heart Disease

Google Alert: MedPage Today (blog)

General Interest Links

Howard Zucker finds himself at the center of the coronavirus storm

Google Alerts: Newsday

Support, policy changes may lead to more women in cardiology

Google Alerts: Healio

COVID-19 Shifts Telehealth to the Center of Cardiology

Google Alerts: Medscape

Daily Nurse

Google Alerts: DailyNurse (blog)

Cardiac Neurodevelopmental Family Symposium

Google Alerts: MD Linx

The COngenital HeARt Disease in adult and Pulmonary Hypertension

Google Alerts: BMC Cardiovascular Disorders

FDA allows emergency use of blood purification technology used in cardiac surgery, critical care for COVID-19

Google Alerts: Healio

Long-term cancer survival increases need for cardiac care

Google Alerts: Healio

Carag First-ever Septal Occluder With Bioresorbable, Metal-free Framework Available to Patients Through New European Registry

Feedly: Yahoo Finance

No need to steer clear of electric cars if you have a pacemaker

Feedly: Medical Xpress

Trends in Pregnancy-Related Deaths and Federal Efforts to Reduce Them

Feedly: US Government Accountability Office

Biases you didn’t know existed in the healthcare industry, and how they impact patients and medical professionals

Feedly: Business Insider

Emerging Trends in Radiology

Feedly: Imaging Technology News

In Memoriam: Healthcare Workers Who Have Died of COVID-19

Feedly: Medscape

Dr. Athena Poppas New American College of Cardiology President

Feedly: Yahoo Finance

The physician whose 1964 vaccine beat back rubella is working to defeat the new coronavirus

Feedly: Science News

Medical radiation exposure fell in the US from 2006 to 2016

Feedly: Radiological Society of North America

American Heart Association urges caution in putting med students on the frontline

Feedly: Medical Xpress

International Links

Ukraine's Health Minister Yemets said to be going to resign – lawmakers

Google Alerts: UNIAN

Bulgaria signs 47.8 mln euro deal to build children's hospital

Feedly: See News

Mumbai's Asian Heart Institute starts Grown Up with Congenital Heart Disease (GUCH) clinic

Google Alert: India Education Diary

'Too late for thousands': Yemen mercy flights present little relief for country's sick

Google Alert: Middle East Eye

Human interest Stories

Pink gets emotional detailing her and her son's 'terrifying' coronavirus battles

Feedly: Today

Father gives 6,100 gallons of hand sanitizer to Houston hospital that saved his daughter

Feedly: ABC Houston

Congenital Cardiology Today - Latest Issue

April 2020 Issue North American Edition

ACHA Webinars for Patients and Families

Catheter-Based Options for Valve Problems for ACHD Patients

Thursday, May 7, 2020, 7 p.m. – 8 p.m. EDT

Presenter: C. Huie Lin, MD, PhD

ACHD Imaging: Doc, Do I Really Need All These Tests?

Wednesday, June 3, 2020, 7 p.m. – 8 p.m. EDT

Presenters: Seiji Ito, MD, and Marguerite Wevers, RN

To view previous webinars and see full schedule click here.

Congenital Cardiac Nurses Association

The Congenital Heart Assessment Tool

The Congenital Heart Assessment Tool (CHAT) is an early warning tool for parents to use at home with their infant between first and second stage of surgery for complex congenital heart disease; enabling identification of normal infant behaviour and detection of signs of clinical deterioration. CHAT provides parents with information about when and who to call for management advice and support, enabling a structured system for articulation of concerns and potentially earlier intervention from the clinical team. This e-learning resource is aimed at healthcare professionals wishing to implement the CHAT within a package of parent preparation before discharge home with their infant.

Learn more