National Pancreas Foundation
Monthly Newsletter - April
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Education and advocacy are part of the National Pancreas Foundation's (NPF) mission. Please see the list of events that are coming up throughout the year. We hope you are able to join us! For a complete list, please see our
Events Page.
Highlighted events in April:
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Casino Night
(April 4th):
Ruth Ericson started cause-related fundraisers in memory of her son, Rob who became ill December 2012, fought for his life for six weeks, and died January 2013 battling Chronic Pancreatitis.
“When Rob passed away I was so devastated, lost, and empty,” said Ericson, “I had to do something.” Once she became connected to the NPF, she planned two bowling events and this year’s fundraiser will be a Casino Night. “Fundraisers take time, thought, planning," she said. "More importantly the money raised at a fundraiser may provide a future for other individuals and families to never have to experience the loss of a loved one to a pancreatic disease."
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3rd Annual Project Cuffway
(April 13th):
This event is where fashion and Rustic Cuff packaging come together. Project Cuffway issued a challenge to Rustic Cuff fans: design fashions constructed completely out of Rustic Cuff packaging (boxes, bags, tissue paper, etc.). There are unique categories consisting of everything from creatively stitched active and swimwear to intricately designed evening and wedding gowns to visually stunning costumes. The Rustic Cuff community, along with the generous support of some amazing sponsors, has raised over $330,000 for the NPF.
In 2017, Project Cuffway celebrated its 2nd annual event with 1,000 attendees. From over 1100 entries, ninety-two contestants were selected to walk the runway to display their unique designs that were judged by an accomplished panel of judges. Grand Prize Winners were awarded of over $45,000 in prizes. This year’s event will be held on April 13th, 2018, in the Grand Ballroom at the Cox Business Center. Other event highlights include a silent auction, cuff pull, sponsor cocktail hour and wrap party.
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2018 Fellows Symposium (April 20th - 22nd):
As a commitment that patients get the best treatment and physicians are up-to-date on the latest on everything pancreas related, the NPF holds an annual Fellows Symposium for fellows to gain insights and instruction from renowned specialists. The Symposium, which is now moving into its 13th year, remains one of the NPF's most important programs.
"As a trainee in Pediatric Gastroenterology with a keen interest in pancreaticobiliary disease and advanced diagnostic and therapeutic endoscopy, this symposium provided a wonderful and unique opportunity to further promote the development of my knowledge/skills and professional relationships amongst experts in the field," said Kristen Critelli, MD, Fellow, UPMC - Children's Hospital of Pittsburgh.
Symposium mentors are also speakers, donate their time and talent to present on topics relevant to the fellows. Many remain in contact with the fellows long after the Symposium is over and several multi-center research projects got their start at the Symposiums. This year, the Symposium will be held in Ft. Lauderdale, FL where the NPF will host 55 Fellows and 27 mentors for a weekend.
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Looking for Runners for Team Pancreas!
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We
are looking for runners to run in the name of finding a cure, in memory/in honor of a loved one, or supporting an organization that provides hope and courage to those suffering from pancreatic disease. Interested but not sure if running 26.2 miles is for you - each event has smaller races as well!
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FUNDRAISING EVENTS
- Casino Night at the Tap House Grill In Memory of Rob Ericson | Chicago, IL | April 4th 2018
- 3rd Annual Project Cuffway | Tulsa, OK | April 13, 2018
- Michigan State Chapter: Strike Out Pancreas Disease | Westland, MI | May 12, 2018
- Casino Night Pittsburgh | Pittsburgh, PA | September 14, 2018*
- OH-KY State Chapter – Cincinnati Party For A Cure | Cincinnati, OH | September 28, 2018*
- Indiana State Chapter: Strike Out Pancreas Disease | Noblesville, IN | November 11, 2018*
*Save the date! More details to follow.
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PATIENT EDUCATION EVENTS
*Save the date! More details to follow.
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Mission: Cure
and the NPF invite you to join us for the first webinar in our new Pancreatitis Webinar Series:
Pediatric Pancreatitis: The very latest on the causes, treatments, outcomes & research. Q & A too!
Wednesday April 18th from 1:00-2:30 pm ET
Dr. Aliye Uc, MD, Professor of Pediatric Gastroenterology, Professor of Radiation Oncology, University of Iowa and leader of the
INSPPIRE
Pediatric Pancreatitis Research Project will share what has been learned so far, and will answer questions from patients and family members.
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