AF Association Global AF Aware Week

GAFAW 2019 Focus: Detection   Our  "Detect, Protect, Correct & Perfect" campaign  aims to easily detect AF with a simple 30-second pulse check preventing AF-related stroke or heart failure.  We are asking that everyone to check their pulses and encourage others to do the same. 1.5 million people in England have been diagnosed with AF (not including Scotland, Wales, and Northern Ireland).

Ways To Get Involved

Share our message on social media click here for our images Make a donation and/or order your FREE pulse pack - click here

Click here for full details of AF Association Global AF Aware Week

Open for all Healthcare Professionals, MPs & Patients Wednesday 20th November 2019  Terrace Pavillion at the House of Commons 12:45 – 14:45  Register now for this complimentary event to visit the Palace of Westminster by clicking here

Click Here to Download the Agenda

Patients Day Evaluations And Awards

Have you completed your online evaluation from Patients Day 2019? Enter to win FREE admission at next year’s Patient Day on Sunday 27 September 2020, by completing your evaluation below: STARS PoTS | STARS RAS & Syncope | Arrhythmia Alliance | AF Association Closing date for the prize draw is Monday 11 November

Volunteer of the Year Award Bob, who has AF, won Volunteer of the Year at HRC2019. Bob is an exceptional volunteer and works hard on our patient support forum www.healthunlocked.com/afaassociation by ensuring that newly diagnosed, and often frightened, AF patients receive the correct information and support. Bob has also contributed to our various publications and truly deserves this accolade.

Fundraiser of the Year Award Grace was diagnosed with RAS as a young child, but has not let it get in her way. She was recently awarded Fundraiser of the Year for her extraordinary fundraising efforts. She has raised almost £35,000 over the course of 2019 with various activities with the help of her family and friends. Grace is absolutely remarkable and we were please to honor her.

Thank you to Bob and Grace for tirelessly raising awareness, funds, and increasing people’s knowledge on AF and RAS!

Patients Day 2020  Patient Day 2020 will be on Sunday 27 September . Please ensure you save that date in your diary . We will let you know when registration is open. We look forward to seeing you again next year!

Highlights From touchCARDIO

HRC Video Highlights Dr. Kim Rajappan and Trudie Lobban, Founder & CEO of Arrhythmia Alliance Know Your Pulse Click below to view video

Patient Survey

Palpitations Survey - This is a survey to understand the experiences of people who sought medical advice after experiencing palpitations. Answers given are anonymous and they will be used to help design a potential research project to look at the feasibility of using hand-held devices. Thank you in advance for completing this survey. Click Here

NOAC Survey - Mobile phones can be very useful for patients in regards to medication management. This survey will assess the use of mobile phones to support anticoagulant medication adherence: This survey should take no longer than 3 minutes. Thank you in advance for submitting your valuable feedback. Click Here

Brand New Resources

We are excited to announce that new resources are now available including our PoTS Frequently Asked Questions booklet. This brand new resource addresses a variety of PoTS patient concerns and can downloaded by clicking here. For hard copies, please email info@stars.org.uk or call 01789 867503. Grief can be an extremely stressful time for those living with an arrhythmia or syncope. Our Bereavement: Life following the loss of a loved one can help to provide some guidance during this difficult time. To download, click here. For hard copies, email i nfo@heartrhythmalliance.org or call 01789 867501.

Patient Support Groups

Arrhythmia Alliance Bournemouth Area Defibrillators (BAD) Group – 11 November 2019 * Atrial Fibrillation Frome AF Support Group – 25 November 2019 * Arrhythmia Aliiance Somerset ICD Support Group – 26 November 2019 * Arrhythmia Alliance Milton Keynes ICD Support Group – 28 November 2019 * Arrhythmia Alliance Bolton ICD Support Group – 28 November 2019 HELP US TO HELP OTHERS! If there are no support groups near you, would you consider setting one up? We can provide all the help you need to run a successful support group. For more information, to register to attend a patient support group or to set-up a support group in your area, contact us; call 01789 867527 or email c.payne@heartrhythmalliance.org.

In The News

BMS – Pfizer have announced that they are working together with Fitbit to help drive timely diagnosis of atrial fibrillation to improve earlier detection.   Read more * Visit our websites to catch up on all the latest news and information! STARS | Arrhythmia Alliance | AF Association

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