September 2018 eNewsletter
This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
An Important Update About Flu Season

As flu season will soon be upon us, the IFOPA is sharing this important update that has been prepared by Drs. Ed Hsiao, Mona Al Mukaddam, Fred Kaplan and Bob Pignolo for FOP patients living in the United States.

10 FOP Presentations Will Be Made at 2018 ASBMR Meeting

Each year, the American Society of Bone & Mineral Research (ASBMR) holds a scientific meeting for researchers to present their latest findings in bone research. More than 3,000 scientists from around the world attend this important research meeting.

This year, at the 2018 ASBMR Annual Meeting, there will be 10 presentations related to FOP! We would like to congratulate the researchers who had their abstract or presentation accepted by the ASBMR ( view the full list of FOP presentations ). The 2018 ASBMR meeting will be held in Montreal, Canada, September 28 to October 1.
Pen Pals Who Changed the World - Meet One of the IFOPA's Founders, Nancy Sando

 Founding member Nancy Sando reflects back on the past 30 years and sets new goals for the future.

“We have gone from only a few founding members as a pen pal group who actually put pen to paper, to the worldwide organization the IFOPA is now.”

2018 FOP Family Gathering Registration Nearing Capacity

The Family Gathering is just under two months away! We're excited to share that registration has been increasing steadily and we anticipate that we will be reaching maximum capacity within the next month.

This is a friendly reminder that if you plan to attend or are still considering attending, we encourage you to make arrangements in order to secure your spot soon .

Writing Her Own Destiny

Jasmin Floyd is described as a “ray of positivity” by anyone who meets her. Her shining spirit can be seen in her writing, travel adventures and speaking about FOP.

“I am determined to continue making crazy plans, taking risks, traveling to new places and having adventures for as long as possible.”