October 2019 Newsletter and Calendar
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Correction - Picnic is on Sunday, October 6
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We are sending this corrected newsletter because the previous version misstated the day. The picnic is this Sunday. Our apologies for the error in the first newsletter sent earlier today and for any inconvenience.
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This Sunday - Annual PD Active Picnic
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You are in luck because it's picnic time. For those who attend each year and for those who have never been, it is a unique opportunity to meet old friends and meet new ones. The gathering is a potluck so bring a dish to share or something for the grill. Some people also like to bring a lightweight chair with a back. We look forward to seeing you and have ordered up perfect weather.
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We'll provide all the tableware, beverages, condiments. Join us for this premier PD Active social gathering. Family, friends -- everyone is welcome.
Date: Sunday, October 6, 2019
Time: 12:30 - 3:30 p.m.
Location:
Live Oak Park, Picnic Area #2 in Berkeley, enter at 1245 Walnut Street across from the main park
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November Forum - Dr. Chad Christine on Clinical Trials
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We welcome back UCSF Neurologist Dr. Chad Christine who will speak at our November Forum. His talk is titled, "A Primer on Clinical Trials to Advance Parkinson's Disease Treatment." Dr. Christine will describe the basic stages of clinical trials in clinical research using recent PD studies as specific examples.
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Date
: Saturday, November 9, 2019
Time
: 10:30 a.m. - 12:30 p.m.
1924 Cedar Street, Berkeley, CA 94709
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Annual Picnic on 10/6/2019 at 12:30 p.m.
Forum with Dr. Chad Christine on 11/9/2019 at 10:30 a.m.
Forum with Angela Rusher, PT on 1/11/2020 at 10:30 a.m.
Annual Info Fair on 2/8/2020 at 2:30 p.m.
Forum with Neurobiologist David Presti on 4/18/2020 at 10:30 a.m.
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PD Active Monthly Calendar
The calendar includes classes initiated with financial support from PD Active.
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Report - 2019 Parkinson's Policy Forum
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The 2019 Parkinson’s Policy Forum, co-sponsored by the Michael J. Fox Foundation and the Parkinson’s Foundation, was held in Washington, D.C. on September 9 and 10. PD Active Community Members Brooke Deputy and Nancy Husari were second-time attendees. The first day was packed with information which they presented on Capitol Hill the next day. The 160 attendees
met with 196 Congressional offices representing 38 states and held meetings with 65 members of Congress.
The three issues attendees addressed were:
Brooke and Nancy visited the offices of Barbara Lee, Dianne Feinstein, and Anna Eshoo to advocate for the above issues and educate them on the economics of Parkinson’s disease and why increasing funding for PD research is so important. The Federal Government spends $25-50 billion per year to care for people with Parkinson’s disease and only $180 million researching the disease, which is why it would be much more cost-effective to increase investment in finding a cure. To learn more, please contact
Brooke
or
Nancy
.
*Photo: Nancy Husari, Marla Deutsch, Anna Eshoo, Brooke Deputy
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October 19 - Women and Parkinson's Disease Conference
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Women experience Parkinson's disease differently than men which is why the Parkinson's Foundation is hosting a day of discovery, knowledge and support together with speakers Dr. Caroline M. Tanner and Dr. Maya Katz from UCSF.
Women with PD are invited to attend and welcome to bring a care partner or family member. Program, lunch and refreshments are provided at no cost, but registration is required and seating is limited.
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Date: Saturday, October 19, 2019
Time: 8:30 a.m. - 2:00 p.m.
24000 Paseo Padre Parkway, Fremont, CA 94538
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September Forum Report - Dr. Liza Ashbrook
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Dr. Ashbrook delivered a comprehensive talk on sleep issues and PD to a full house. After sharing the basics about sleep, she used case studies to illustrate how various sleep disorders present and then outlined treatment options.
We are grateful that she spoke to our community and thank her for sharing her
slides (which were requested by numerous attendees).
Our thanks to all who attended this event. Here are the
slides from the talk.
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October 13 - Patricia Needle Memorial at Danspace
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A memorial will be held for Patricia Needle, a long-time member of PD Active and enthusiastic and beloved participant in Dance for PD
® at Danspace and the Tremolos chorus. Patricia passed away on June 9th in Hudson, Massachusetts.
Those who remember and miss her are invited to join in a tribute to her life and beautiful spirit on October 13th. Please help with planning by letting Donna Mickleson know if you will attend.
Date: Sunday, October 13, 2019
Time: 3:30 - 5:30 p.m.
Location:
Danspace, 473 Hudson Street, Oakland, CA 94618
RSVP or Info: Donna Mickleson at
donna@lmi.net or (510) 684-4846.
*Photo:
Tanya Chianese, Patricia Needle and Catalina Jackson Urueña.
Photo by Matt Haber, courtesy of dNaga.
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Berkeley Support Group - Moving in November
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Please note: The October 17, 2019 support group will still be at the West Branch of the Berkeley Public Library.
Due to a change in Berkeley Public Library policy, the Berkeley support group will be moving starting November 21, 2019 to the
Albany Community Center at 1249 Marin Avenue. The group will continue to take place on the third Thursday of each month from 2 to 4 p.m.
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On the Move: A Free Wellness Program for People with Parkinson’s
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Students in the Doctor of Occupational Therapy Program at Samuel Merritt University are conducting a study over the fall semester. They are looking at the efficacy of therapeutic putty based exercises on the quality of movement and strength in people with Parkinson’s Disease.
Participants will come to the Samuel Merritt University Motion Analysis Research Center (MARC) once a week on Thursdays between 1 and 4 p.m. for an hour, two weeks in a row, and have a phone interview two weeks after the second visit.
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Tech Assistance at November Forum
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Immediately after the November 9 Forum speaker concludes, we will offer technical help with specific cellphone and tablet applications on both iPhones and Android phones. These include:
- Setting up emergency contact information.
- Turning on accessibility settings.
- Using voice typing.
- Using the virtual assistant.
If you're planning to attend the November Forum and interested in getting assistance with your phone or tablet, please contact us at
info@pdactive.org. This will help us get a sense for how many tech advisors we'll need.
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Don't Forget to Carry Emergency Contact Info
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Here is a handy guide for preparing emergency medical information. We urge all community members to prepare this information and keep it accessible and on your person at all times. Above all keep the name and number of the person to contact with your health care card.
If you have an iPhone you should fill out the
Health app that comes with the phone. This app can be used in emergency even if the phone is locked.
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Lance Batten
Josh Gallup
Craig Hanchett
Robert Luhn
Charis Moore
Janet Saks in honor of Felicia Moschella
Roberta Schear in honor of Ann Van Steenberg
Toby Simon and Linda Metcalf
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Gifts in Memory of Patricia Needle
Facebook Fundraiser organized by Felicia Moschella
Lynne Raider
Gary Turchin
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PD Active is a 501(c)(3) so contributions are tax-deductible. Tax ID: 26-3302461
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Up Your Impact, Give Monthly
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Contact us to set-up up a monthly, recurring donation to PD Active. It's easy to do, and secure. We would be happy to tell you more and walk you through the process. You can set-up a recurring gift for any amount and every contribution is meaningful. Email us at
info@pdactive.org or call at (510) 479-6119.
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We rely on you, our generous PD Active members, and your friends and family members, for our core financial support. It's easier than ever to help:
- To donate by credit card
- To donate by postal mail: PD Active, P.O. Box 9246, Berkeley, CA 94709
- To donate by PayPal
Use Your IRA
: You no longer need to wait until the end of the year to distribute your required minimum distribution (RMD) from your IRA. A quick reminder that if you are over 70
1/
2
you are eligible to use your RMD to make tax-free donations to qualified charitable organizations. No gift is too small, so please keep us in mind when evaluating your IRA.
- Recurring credit card donations
- Stock or Donor Advised Funds
- Planned Giving - Property or other assets through your will or estate plan
- Automobile
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PD Active Activities, Descriptions & Locations
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Local Classes for People with PD
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www.pdactive.org - (510) 479-6119 - info@pdactive.org
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