METS MATTERS
In This Issue
WHAT'S NEW

Studies to Prevent Metastasis May Lead to Treatments for Metastatic Breast Cancer

By Joan Mancuso 

This year's annual National Breast Cancer Coalition's Leadership Summit and Lobby Day included informative sessions on metastasis research. One session about preventing breast cancer from metastasizing also holds promise for developing treatments to work against active metastatic breast cancer lesions. The session, which was titled, After 25 Years, What Do We Really Know About Preventing Metastasis? was presented in part by Dr. Cyrus Ghajar of Fred Hutchinson Cancer Center in Seattle.



Kisqali (ribociclib, LEE011) receives FDA approval as first-line treatment for HR+/HER2- metastatic breast cancer in combination with any aromatase inhibitor


On March 13, 2017, the U.S. Food and Drug Administration approved ribociclib (KISQALI, Novartis Pharmaceuticals Corp.), a cyclin-dependent kinase 4/6 inhibitor (CDK-4/6), in combination with an aromatase inhibitor as initial endocrine-based therapy for the treatment of postmenopausal women with hormone receptor (HR)-positive, human epidermal growth factor receptor 2 (HER2)-negative advanced or metastatic breast cancer. 

According to the FDA, Approval was based on a randomized, double-blind, placebo-controlled, international clinical trial (MONALEESA-2), in post-menopausal women with HR-positive, HER2-negative advanced or metastatic breast cancer who received no prior therapy for advanced disease,

Resources
Call SHARE
Want to speak with someone with a similar diagnosis or treatment regimen?  Call SHARE:  844-ASK-SHARE. O, h abla con una sobreviviente que tiene cancer de seno metastasico: (866) 891-2392
National Resource 
Guide
SHARE's Helpline has a 400 page national resource guide-- call us to get additional resources!
Metastatic Breast Cancer Alliance
An Alliance of Non-profit organizations, individual members and industry partners working toward goals derived from an analysis of research being conducted on MBC, information available to patients and general awareness of the disease.  Check on the progress of the MBCA  HERE
Clinical Trials
Metastatic Breast Cancer Alliance TRIAL SEARCH

Breast Cancer Trial Search  METASTATIC TRIAL SEARCH
Emerging Meds Trial Search
Upcoming Programs
UPCOMING WEBINARS:

Report Back from ASCO on Metastatic Breast Cancer

Anne Moore, MD, Medical Director of the Weill Cornell Breast Center, joins us to share her experiences from the American Society of Clinical Oncology's June 2017 Conference. She will update us on the latest research from the conference as it relates to metastatic breast cancer.
Tuesday, Jun 20, 1:00-2:00pm ET

Finding Clinical Trials for Metastatic Breast Cancer

Courtney Hudson, CEO and Co-Founder of EmergingMed, joins us to explain the latest clinical trials for metastatic breast cancer and how to find them. Learn how to identify appropriate clinical trials, determine eligibility and "must ask" questions for the researchers, find strategies to determine your best options, and figure out which questions to ask when making your decisions.
Monday, Jun 26, 1:00-2:00pm ET

Difficult Conversations: Bridging the Communication Gap with your Oncologist

Lidia Schapira, MD, Director of the Cancer Survivorship Program at Stanford University, shares her expertise to help you get the most out of your communication with your oncologist. Learn strategies to optimize your meetings with your health care team.
Tuesday, Jul 11, 1:00-2:00pm ET

REGISTRATION IS NOT YET OPEN.  WHEN OPEN, YOU CAN FIND LINKS HERE
 
PAST WEBINARS:

REPORT FROM SABCS FOCUSING ON MBC

VIEW RECORDING HERE

HealthUnlocked 
SHARE has recently partnered with HealthUnlocked to create 3 online support communities! Each community is a safe environment where you can share support and information with women across the world who are experiencing something similar. Find out more HERE
Telephone and In-Person Support Groups: Choose What Works for You
Connecting with others living with MBC can help you gather information about treatment, dealing with side effects and coping with the fear and anxiety that a metastatic diagnosis brings.  

SHARE offers 9 Telephone Support Group sessions each month in English and 2 in Spanish.  There are also 2 in-person sessions each month in our NYC office.  

A group meets every Monday at 4 PM ET and the first four Thursdays of the month at 6 PM ET.  

CLICK HERE FOR MORE INFORMATION
Want to Help Others?
SHARE offers Helpline and Group support  for women living with metastatic breast cancer.  We currently have 8 active volunteers who are living with MBC and are quite busy as calls to the Helpline are continuously increasing. 

We provide training for both Helpline volunteers and support group facilitators.  

Training is about 2-3 hours and can take place via webinar.  If you are interested, please email  Christine. 

PLEASE CONTACT US TODAY.  VOLUNTEERS NEEDED!
SHARE's programming for clinical trials is sponsored by Medivation and Macrogenics