June 2020: Weekly Patient Resources

Dear Patients, Family Members, and Caregivers: The outbreak of coronavirus (COVID-19) has become stressful for many people. You may find yourself overwhelmed with the amount of information coming out from multiple sources. IPRO ESRD Network of New York would like to share some important patient education resources that might be helpful for you, your family, friends, caregivers or others in your community.

Visit Our Website for More COVID-19 Resources/Information

NEW YORK STATE CKD CHAMPIONS V irtual Thriving...Not Just Surviving Cultural Arts Showcase

The New York State Chronic Kidney Disease (CKD) Champions will host its first Virtual Thriving...Not Just Surviving Cultural Arts Showcase to exhibit the creative talents of our Kidney Community.  Share your artistry and show that kidney disease and dialysis are not who you are, but just a part of your life! Kidney care professionals, caregivers, as well as patients are welcome to participate! Send an example of your poetry, artwork, photography, arts & crafts (such as embroidery, crocheting and pottery), or performances (such as singing and dancing). Open to amateurs and professionals! Photos and videos will be posted on our CKD Champions Information and Resources Page: Search for @CkdChampionsInfo in Facebook or go to https://www.facebook.com/CkdChampionsInfo . You can also find us by using the hashtag #ThrivingForArt Photos and videos will be posted during Summer 2020. Send your submissions now! Deadline is June 26, 2020. Email photos or a video (no more than 2 minutes) and any questions to Aaron Battle or Cecilia Santana at NYSCKDChampions@gmail.com

ESRD National Coordinating Center COVID-19: Preparing for a Kidney Transplant During the COVID-19 Pandemic

ESRD National Coordinating Center 11 Things You Can Do to Get Ready for a Kidney Transplant During COVID-19 11 cosas que puede hacer para prepararse para un trasplante renal durante la COVID-19 The Doctor Will See You Now: Telemedicine Makes It Easy New York City Department of Mental Health and Hygiene Outdoor Activity in New York City: Staying Active While Protecting Yourself and Others From COVID-19: Staying physically active and spending time outdoors can keep your mind and body healthy. When venturing outside for fresh air and physical activity, it is important that you take extra precautions during the ongoing COVID-19 pandemic COVID-19: Tips on Getting Together Safely: As New York City reopens phase by phase, it is important to have strategies to stay safe while spending time with each other. We can make changes in our everyday lives to stop the spread of COVID-19. How to Dine Out Safely During the COVID-19 Public Health Emergency: COVID-19 continues to spread in our communities and there are risks any time you gather with others outside your home. As we begin a return to activities like dining out, it is essential that we continue to take steps to prevent transmission of COVID-19. COVID-19 Face Coverings: Frequently Asked Questions: All New Yorkers must wear a face covering when outside of their home if they cannot maintain at least 6 feet from others. It is essential that people continue to practice physical distancing and good hand hygiene even when wearing a face covering — including keeping 6 feet of distance between themselves and others whenever possible. A face covering is one more precaution we can take to help stop the spread of COVID-19, especially by people who have COVID-19 but do not have symptoms.

Mental Health Resources Combating Social Isolation, Stress, Anxiety, Telehealth and .....More!

Thrive New York City: Coping and Mental Well-Being During the COVID-19 Outbreak An infectious illness outbreak such as COVID-19 can be stressful to you, your loved ones and your friends. It is natural to feel overwhelmed, sad, anxious and afraid. You may also experience other symptoms of distress, such as trouble sleeping. To reduce your stress and help manage the situation, the NYC Department of Health and Mental Hygiene recommends that you: Try to remain positive. Remind yourself of your strengths. Connect with friends and loved ones: COVID-19: Staying Connected With Friends and Family Go outside and get exercise, if you are not sick. Remember to practice good hygiene and physical distancing. Walking, running and bicycling are healthy activities that do not require close contact with others or shared equipment. Identify what you are feeling and use healthy coping skills: Is It Anxiety, a Panic Attack or COVID-19? Coping With Stress During Infectious Disease Outbreaks Coping With Thoughts of Suicide During the COVID-19 Outbreak Recognize feelings of loss are normal and there are ways to cope: Grief and Loss During the COVID-19 Outbreak Managing Grief Over the Death of a Loved One During the COVID-19 Outbreak Grief and Loss in the Workplace During COVID-19 Tips for helping others grieve after death, job loss, or loss of health due to illness, from the New York State Office of Mental Health Visit  NYC Well’s website , which offers a number of well-being and emotional support applications that can help you cope. If your symptoms of stress become overwhelming, reach out for support and help. You can contact NYC Well, a confidential helpline for mental health and substance misuse services. Trained counselors can provide you with support 24 hours a day, 7 days a week, in over 200 languages.  CALL: 1-888-NYC-Well (692-9355), TEXT: “Well” to 65173

Click here for more information from  Thrive New York City

Network Educational Resources

Vocational Rehabilitation The ESRD Network of New York makes continuous efforts to ensure that ESRD patients are receiving the highest quality of care possible. The Network's efforts include the improvement of patients' independence, quality of life and rehabilitation. Vocational Rehabilitation services are offered to individuals with disabilities. These services were created to enable participants to attain the necessary skills, and resources, to obtain and maintain employment.  The Network employs a variety of strategies to help assist your dialysis facility in promoting vocational rehabilitation. Click Here to Learn More About Vocational Rehabilitation

Heart Health and Smoking Cessation The Center for Disease Control and Management states that, heart disease prevention can be done through healthy living habits. A healthy lifestyle can lower your blood pressure, cholesterol. and lower your risk of heart disease or a heart attack . To maintain a healthy lifestyle individuals should: Eat a healthy diet Maintain a healthy weight Exercise regularly No smoke you use any tobacco products Limit alcohol intake  Click Here for Learn More About Heart Health and Smoking Cessation

The IPRO ESRD Network of New York team is available to offer you support 24-hours, 7-days a week. Please call our dedicated COVID-19 Hotlines. Patients: 516-209-5626 or Providers 516-209-5578 to discuss positive cases, concerns/needs, reporting questions, or to request support/resources.  We are also accessible to provide technical assistance or guidance during this public health emergency. Visit the Network's website for up-to-date information on CMS and CDC guidelines, alerts, educational resources, and stakeholder webinars.

‌ ‌ ‌ ‌ ‌

IPRO ESRD Network of New York 1979 Marcus Avenue, Suite 105, Lake Success, NY 11042 Main: 516-209-5778 | Fax: 516-326-8929 ESRDNetwork2@ipro.us | https://network2.esrd.ipro.org/