NFRP Presents FY 2018 New Investigator Award Recipients

Since 1996, the NF Network has played a vital role in Washington, D.C., as we advocate for securing federal funding for NF research.

Regina Vasquez Runs 5K to Support Neurofibromatosis Research


South Florida realtor Regina Vasquez, of Beachfront Realty, will participate in Neurofibromatosis Network's #NFStrong 5K for Neurofibromatosis in Orlando, FL this Saturday.

SpringWorks Therapeutics' ReNeu Trial Press Release



SpringWorks Therapeutics Announces Initiation of Phase 2b ReNeu Clinical Trial of Mirdametinib in Children and Adults with Neurofibromatosis Type 1 (NF1)-Associated Plexiform Neurofibromas (NF1-PN).

Get Ready for Giving Tuesday!


Giving Tuesday is December 3rd. Take a moment to learn about what the NF Network has done in 2019 and how you can help them be ready for 2020.

The Power of Being Different


It’s not always easy to see what your superpower is...I consider myself lucky to be able to say that Neurofibromatosis is my superpower and I am proud of it.

Upcoming Events
The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?