Storytelling Magic, Optical Illusions,
Teen Awards & More! #NHF2019
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Meet your fellow attendees, celebrate our community, or get your groove on at our exciting events for the whole family!
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5th Annual Teen Impact Awards
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Anaheim Marriott - Platinum Ballroom 6
Thursday, October 3, 2019
8:30 pm – 10:30 pm
The 5
th Annual Teen Impact Awards honors teens affected by bleeding disorders making a positive impact in their homes, schools, and communities. The 90-minute awards show features community presenters, documentaries on selected honorees, and community teen honorees sharing their experiences and wisdom.
Learn more!
Founding Sponsor: Takeda
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Hilton Anaheim - Pacific Ballroom AB - 2nd Floor
Friday, October 4, 2019
8:15 pm – 10:15 pm
Believe Limited brings you an evening of love, laughs, life, death, syringes and everything else! Join us for an event filled with storytelling magic, hosted and curated by the world-famous storytelling organization, The Moth. Stories told by community, about community. Ages 21+. Cash bar.
Sponsored by BioMarin
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THE FINAL FORMATION Novo Nordisk Family Night Event
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Anaheim Marriott - Marquis Ballroom Center
Friday, October 4, 2019
8:15 pm – 10:15 pm
Join us for a night full of fun from many angles. This is your chance to continue connecting with HCLs and others from Novo Nordisk to continue to learn more. After experiencing what our booth has to offer, come enjoy live music by Kicks Band, celebrate in our photo booth, play optical illusion mini golf, experience psychedelic body marbling, and enjoy food, beverages and more activities for all ages to enjoy. You won’t want to miss it!
Sponsored by Novo Nordisk
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and learn more about each event and session offered.
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October 3-5, 2019
Anaheim, California
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New in 2019:
The Science Fair
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Anaheim Convention Center – Hall A
Friday, October 4, 2019
11:30 am – 6:00 pm
Put on your lab coat, roll up your sleeves, and experience Believe Limited’s newest community program,The Science Fair. Complete with interactive modules and clinical experts, The Science Fair is an educational experience you and your family won’t want to miss!
Learn more.
Founding Sponsor: Spark Therapeutics
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There’s a revolution in bleeding disorders therapy happening,
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and NHF’s Bleeding Disorders Conference is the best place to find clear, unbiased information on the latest treatments.
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Advancements in Treatment for Hemophilia: What You Need to Know
will cover the latest data and clinical trial results from therapies in the pipeline, including longer-acting factor replacement, nonfactor replacement, and gene therapy.
If you are curious about gene therapy,
Gene Therapy: Getting Up to Speed
will provide an overview of this new technology, its history, how it works, and what is on the horizon for gene therapy for hemophilia.
Gene Therapy: A Candid Conversation
will take a balanced, patient-centric look at the topic, featuring a panel discussion among a healthcare provider, a gene therapy clinical trial participant, and other patients on therapies both old and new.
For people with von Willebrand disease,
Where Do We Go From Here: Treatment for VWD
will cover updates on the current state of VWD care, report on the latest research, and discuss new programs to address both the physical and emotional health of people living with VWD.
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We would like to thank our generous sponsors. Without their support this event would not be possible.
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IMPORTANT DATES
8/30/2019
- Hotel Reservation Deadline (based on availability)
9/6/2019
- Kids Program Registration Closes
9/13/2019
- Late Registration Deadline
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