In This February 2021 Issue
- Save the Date: National Patient and Family Engagement-Learning and Action Network (NPFE-LAN) Virtual Summit
- Mark Your Calendar for the 2021 Centers for Medicare & Medicaid Services (CMS) Quality Conference
- New Resources to Help Support Patient Engagement
- End Stage Renal Disease (ESRD) National Coordinating Center (NCC) on YouTube
- New Scholarship Resources Added to the Patient Grant Library
- Goal-Setting Resource Added to the Patient Grant Library
-
Coming Soon—ESRD NCC Resources Under Development
- Mark Your Calendar
- Kidney Community Emergency Response (KCER) Planning for 2021 Virtual KCER Summit Underway
|
|
|
Patient and Family Engagement |
|
Save the Date: NPFE-LAN Virtual Summit
You are invited to the NCC NPFE-LAN Virtual Summit—Patients Partnering in a Pandemic. The event, scheduled for February 22–23, 2021, is a partnership between CMS and the ESRD NCC. It will feature a diverse lineup of speakers crossing all sectors of the kidney community.
The NPFE-LAN Virtual Summit will be led by patient subject matter experts (SMEs). The summit will showcase patient leaders—offering insights and possible strategies to tackle some of the biggest challenges facing the kidney community. The SMEs will encourage participants to use their voices and experiences to improve access to and quality of care for themselves and all kidney patients. More information to come.
|
|
Mark Your Calendar for the 2021 CMS Quality Conference
You are invited to join CMS for its first virtual Quality Conference. Welcoming attendees from across the healthcare spectrum, the conference will explore how patients, advocates, providers, researchers, and the many leaders in healthcare quality improvement can develop and spread solutions to some of America’s most pervasive health system challenges.
Click on the link below to receive the most up-to-date information regarding registration openings and virtual conference details: www.cmsqualityconference.com.
|
|
New Resources to Help Support Patient Engagement
The NPFE-LAN recently expanded its library of patient engagement resources. The resources were developed by NPFE-LAN SMEs, Network Patient Advisory members, and Network staff members.
We invite you to review these resources and use them as part of your community initiatives to provide education and awareness about living with kidney disease. For additional ESRD NCC Patient resources, go to www.esrdncc.org/en/patients. Click on the For New Dialysis Patients button.
|
|
ESRD NCC on YouTube
The ESRD NCC educational YouTube videos touch on a wide variety of kidney disease-related topics, including infection prevention, home dialysis options, and the kidney transplant process. Patients and healthcare professionals also can watch or listen to previous COVID-19 webinar events. Topics include transitioning patients to a home dialysis treatment during COVID-19, maintaining emotional balance in an unbalancing time, choosing a kidney transplant during COVID-19, and many more.
The ESRD NCC YouTube channel is a great environment in which patients and healthcare professionals alike can discover, watch, and share educational videos. We are excited to make these educational videos available to the kidney community on YouTube and will continue to expand our offerings.
|
|
New Scholarship Resources Added to the Patient Grant Library
Several new scholarship resources have been added to the Patient Grant Library. Resources include: LUPUS Inspiration Foundation for Excellence, Diabetes Scholars, and American Association of Kidney Patients (AAKP) Cystinosis Patient Education and Activity Scholarship Program. Visit the Scholarship section to view all grant opportunities.
Do you have a grant opportunity you would like to share with the Patient Grant Library? Email nccinfo@hsag.com.
|
|
Goal-Setting Resource Added to the Patient Grant Library
|
|
Coming Soon—ESRD NCC Resources Under Development
Here are a few items we are creating for you:
- NPFE-LAN Virtual Summit Session Recordings
- You Fluid Intake Matters!
- Kidney-friendly Grocery Store Shopping
- What to Expect When Diagnosed with COVID-19
|
|
February 1–28, American Heart Month
February is American Heart Month. Heart disease is the leading cause of death for men, women, and people of most racial and ethnic groups in the United States. February is a great time for people to commit to a healthy lifestyle and make small changes that can lead to a lifetime of heart health. Spread the word about strategies for preventing heart disease and living heart healthy lives. For more information, visit www.cdc.gov/heartdisease/american_heart_month.htm.
February 1–28, Low Vision Awareness Month
Low vision affects millions of Americans, including many older adults. Low vision can make it hard to do things like reading, shopping, cooking, or writing. Learning about the causes and risk factors related to low vision and scheduling a screening for yourself or a loved one is the key to protecting your sight as you age. For more information, visit www.lighthouseguild.org/vision-health/low-vision-awareness-month/.
February 5, National Wear Red Day
National Wear Red Day, on the first Friday in February, is an annual campaign to raise awareness about heart disease in women. Heart disease and stroke kill 1 in 3 women. These diseases are 80 percent preventable according to the American Heart Association. Learn more about how you can support National Wear Red Day by visiting ww.goredforwomen.org.
February 14, National Donor Day
National Donor Day is celebrated every February 14, on Valentine’s Day, and is dedicated to raising awareness of the importance of organ, eye, tissue, blood, bone marrow, and platelet donation. National Donor Day is also an opportunity to recognize those who have given the gift of donation, have benefitted from a donation, are currently waiting for a life-saving donation, or did not receive an organ in time. Learn more at www.donatelife.net/celebrations/national-donor-day.
February 28, Rare Disease Day
Join the global observance of Rare Disease Day. The day is recognized the last day of February to raise awareness of rare diseases, many of which have no treatment. Organizers of the day hope to improve access to treatment and medical representation for people with rare diseases and their families. Find out more at www.rarediseaseday.org.
|
|
Planning for 2021 Virtual KCER Summit Underway
Wednesday, February 24, 2021
Time: 11 a.m.–3 p.m. ET
KCER invites you to attend the 2021 KCER Summit. This year’s meeting will be held virtually ahead of the virtual 2021 CMS Quality Conference. The event is open to the public and brings together stakeholders from the ESRD emergency preparedness community, including CMS, ESRD Networks, providers, large dialysis organization corporate leadership, patients, emergency management personnel, hospitals, departments of health, utility companies, and transportation companies. The 2021 KCER Summit will focus on topics that address the unique needs of the ESRD population during crises or disasters.
A registration link and detailed agenda for the 2021 KCER Summit will be posted to the KCER website soon at www.kcercoalition.com.
|
|
Don’t forget to ‘Like’ the ESRD NCC on Facebook.
|
|
‘Follow’ us @ESRDNCC on Twitter.
|
|
This material was prepared the End Stage Renal Disease National Coordinating Center (ESRD NCC) contractor, under contract with the Centers for Medicare & Medicaid Services (CMS), an agency of the U.S. Department of Health and Human Services. The contents presented do not necessarily reflect CMS policy nor imply endorsement by the U.S. Government. FL-ESRD NCC-7N5TA2-02032021-02 |
|
|
|
|
|
|
