Volume 2 | June 2019
MHERF Newsletter - June 2019
The MHE Research Foundation has been very busy! See below for updates from our Symposium in February, a recap of our 3rd annual "Wings of Hope" Golf Outing, and our exciting "Faces of MHE" campaign! Finally, "Funtasia 2019" and "Warriors of MHE Walk" are coming soon!
Rare Disease Day Symposium Recap - February 2019
The MHE Research Foundation represented Rare Disease Day at the Sanford Burnham Prebys Medical Discovery Institute in La Jolla, California. MHE families were present and Mauricio Pacifici and Yu Yamagucci; two of our researchers on our medical advisory board, were there to answer questions.

Because of your support from our many events, we were able to provide both Mauricio and Yu funding to continue their important research for MHE! We thank them for their years of progress and look forward to many more contributions from them in the future! They are true partners in our mission; to find a CURE!
3rd Annual "Wings of Hope" Golf Outing in Ambler, PA
Our golf outing hosted by the O'Brien's was a huge success this year! Our Platinum Sponsor Clementia Pharmaceuticals represented well at the outing and we thank them for our continued partnership.

Although it was a cold and windy day for mid April, we all had a lot of fun and a little over $28,000 was raised for The MHE Research Foundation. Thank you to all who participated, sponsored us, provided raffle items, or volunteered!

Get Ready For Funtasia 2019! El Caribe in Brooklyn, NY: Sept 8th 2019
The Eaton Family will once again host Funtasia Research Banquet, a bi-annual event celebrating The MHE Research Foundation's achievements and recognizing our researchers and doctors for their continued contributions.

Funtasia is the event that started it all, and we're pleased to say that this is our 8th banquet! Please mark your calendars and click below to register or sponsor our event!

Save The Date for the 3rd Annual Warrior Run!

Caleb is on a mission to eradicate MHE for good. He is a very compassionate boy and has a desire to help others with his condition. He came up with the idea of having a run to raise money for research with the hope of finding a cure, or at least, a better treatment option so others with this disease would never have to endure what he has had to. 

This October will mark the 3rd annual Warrior Run! Come join Caleb on his mission!

The Faces Of MHE
The Faces of MHE Campaign

We asked and you responded! Thank you all for sending in your photos. We know we are not alone and we're always stronger when we come together. Enjoy your moment of fame!