Digestive Health Monthly - July 2019
Greetings!

Welcome to the monthly eNewsletter of the International Foundation for Gastrointestinal Disorders (IFFGD).
IFFGD National Advocacy Event on the Hill Recap
Hill Day Summary
On June 25th IFFGD took to the Hill to advocate on behalf of patients who suffer from GI disorders. 57 individuals in 10 teams represented 21 states and attended 79 congressional meetings.

Together we advocated to ensure that congress prioritizes actions that will lead to greater awareness and the development of new treatment options and cures.
Join the Conversation
#DDHChat Twitter Chat on diet for bloating and distension
This month for our Diet and Digestive Health (#DDHChat) Twitter chat series we will speak with Tamara D. Freuman MS, RD, CDN about diet for bloating and distension.

Do you have questions about bloating and distension ?

Submit your questions to iffgd@iffgd.org and have your questions answered during the chat.
Follow along using #DDHChat . We look forward to chatting with you!
Bill H.R. 3396 introduced in the House
Status of H.R. 3396
On June 20th, Rep. F. Jame Sensenbrenner Jr. [R-WI-5] introduced H.R. 3396 The Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2019 in the House.

On the same day, Rep. Gwen Moore [D-WI-4] cosponsored the bill showing her support to expand research funds and activities of the National Institutes of Health (NIH), with respect to functional gastrointestinal and motility disorders.

Follow the progress of H.R. 3396 here
Understanding a Rare GI Disorder
what is Gastric Antral Vascular Ectasia (GAVE )
Gastric Antral Vascular Ectasia (GAVE), sometimes called “watermelon stomach,” is a rare GI condition and the specific cause of GAVE is unknown.

Learn more about GAVE by clicking here.
Vacationing with IBS
Tips for traveling this summer
Summer is usually a time of year that many people hit the road, break out sunscreen and in the simplest terms just relax. But for many of us the thought of traveling this summer might bring on stress and worry.

Here are some tips to help you worry less as your prepare for vacation this summer.
Remember, August 1st begins Gastroparesis Awareness Month , reminding us of the importance to raise awareness and to advocate for those affected by chronic gastrointestinal (GI) disorders. These two things help to increase public knowledge and encourages more research to improve treatment options for patients.
RESEARCH CORNER
Clinical trials and research studies are important to improving our understanding of the underlying mechanisms of diseases and developing new and better treatments. By participating in a study, you can help advance research and learn more about your condition.

Here are 3 studies currently recruiting participants:
Colorectal Cancer
Purpose of study : To evaulate the safety, usability, and subject compliance of the C-scan system. 

Pediatric FGIMD

The purpose of this research study is to learn more about the relationship between children's bowel habits and the way they react to sensory input. Some children are very sensitive to the way things feel, smell, and sound, and this might interfere with their willingness to use the toilet for a bowel movement. Eligible participants will be asked to complete 4 questionnaires with questions related to these reactions to sensation and bowel habits of children.

Fecal Incontinence
Purpose of study : This 12 week Phase III study will assess the efficacy and safety of a combination clonidine and colesevelam compared with placebo in women with diarrhea and urge predominant fecal incontinence.

IFFGD is a nonprofit organization. We rely on donor support to fund research and to provide reliable information and support to those affected by chronic gastrointestinal disorders.
IFFGD | 414-964-1799 | iffgd@iffgd.org | www.iffgd.org