Resource eBlast September 2017
Sharing Resources for Families of Children with Special Healthcare Needs


The Substance Abuse and Mental Health Services Administration (SAMHSA) offers this webpage with resources and information about dealing with Hurricanes, as well as a timely section addressing the aftermath.  Among the resources are tips for survivors and tips for talking with children after a disaster or traumatic event.  

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Emergency Preparedness for Children with Special Needs  
As we send donations, prayers, and all other forms of support to those affected by Hurricanes Harvey, Irma, and Maria, it is a good time to sit down and revisit or create an emergency plan specific to the needs of a child with special health care needs.  


Join the Family Voices 25th Anniversary gathering  as we work to strengthen our collective impact on systems serving children and youth with special healthcare needs.  You'll be among family leaders and family organizations from around the country.  Scholarships available for new diverse family leaders.    


Transitioning to Adult Neurologic Care

This eParent feature article addresses transition to adult neurologic care for youth with epilepsy.  

This eParent feature article contains an excerpt from the book Healing Children: Stories from the Frontiers of Pediatric Medicine written by Kurt Newman, MD.  


Bullying Prevention and Resources 
T his website was developed as part of an initiative by the Health Resources and Services Administration (HRSA).


What Matters: Reflections on Disability, Community and Love 
This new book by former Family Voices KASA (Kids As Self Advocates) member Janice Fialka chronicles a family's journey to full inclusion and so much more.


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About Family Voices

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities.  We promote partnership with families--including those of cultural, linguistic and geographic diversity--in order to improve healthcare services and policies for children.