Martine Elias, Executive Director |
|
"Personally and professionally we’ve all risen, and continue to rise, to the challenges before us. We’re emerging with new insights, new perspectives, new customs, new models of behaviour, and new achievements. Even our vocabulary has changed; remote no longer just means far away but rather, is now truly synonymous for online. Same goes for our use of ‘virtual’; and who would have ever thought that ‘zoom’ would mean something other than what a car or airplane does?!? "
|
|
|
|
Take this survey from CRC Research Inc. |
CRC Research is conducting a market research study on cancer treatments and is looking to connect with older patients who have been either diagnosed with Multiple Myeloma (MM) or large B-cell lymphoma (DLBCL). The purpose of this study is to discuss the patients' journey in dealing with their condition and its treatments.
|
|
|
|
|
|
What's new at Myeloma Canada |
|
Myeloma Monitor, V2 is here! |
|
|
|
Myeloma Canada's Myeloma Monitor is an award-winning, easy-to-use application (app) designed specifically for multiple myeloma patients and their caregivers. Developed entirely by Myeloma Canada, this intuitive app helps you organize, track and manage your daily activities so you can better understand the many changes that occur, and decisions that need to be made, throughout the various stages of your myeloma journey.
|
Here are some new features:
- "Files” upload section for storing and organizing your important files
- Medications & supplements refill reminder option
- Side effects section
- Emergency Health Card “Report”
- Access to the new How-To-Guide user's guide
|
|
The Myeloma Monitor is available as a free download for your desktop or mobile device (cell phone or tablet). |
|
NEW! Coming soon!
Myeloma Canada's Managing Pain and Fatigue InfoGuide
|
|
If you’ve been diagnosed with myeloma, you know how challenging it can be to cope with pain and fatigue caused by the disease itself, side effects related to treatment, as well as medical tests or procedures.
This new InfoGuide is intended to help you understand, manage and cope with your myeloma-related pain and fatigue.
Keep an eye on your inbox! Myeloma Canada's Managing Pain and Fatigue InfoGuide will be on our website and ready for free download very soon. Check your emails for our upcoming announcement.
|
|
|
Multiple Myeloma March 2020:
Our community is more united than ever!
|
The 2020 Multiple Myeloma March campaign is coming to an end...the last March took place this past Sunday. We are incredibly proud that together, we’ve achieved what we initially thought would be impossible. Despite all the changes that have taken place since the COVID-19 pandemic hit, you’ve shown tremendous resilience and helped us all stay focused on the future. Thanks to your unrelenting support, your creativity, and your commitment, we’ve raised more than $566,800 for the 2020 edition of the Multiple Myeloma March to date!
|
This spring, we would have never predicted such a fabulous outcome; we thought that because of COVID-19, we wouldn’t be anywhere close to reaching our goal. You have surpassed our wildest expectations! We are so grateful to have you, our dedicated and united community, to keep on fighting, pandemic or not.
|
|
Saskatoon Multiple Myeloma March |
Hamilton Multiple Myeloma March |
|
Oshawa Multiple Myeloma March |
|
We can never thank you enough for helping us, supporting us, and carrying us through. This year, we rolled up our sleeves and we refused to give up.
Thank you from the bottom of our hearts for trusting us and helping us make the 2020 Multiple Myeloma March an exceptional and memorable experience; your creativity and determination made it happen.
By remaining united, we are stronger, and you are proof of that.
To see pictures from the 2020 Marches, click here.
|
|
 |
The Multiple Myeloma March in the media - some highlights |
|
|
|
New InfoVideo is now online! |
|
Click on the thumbnail below to view this month’s InfoVideo. |
|
InfoVideo Series #22
How is pain managed during a bone marrow biopsy/aspiration?
Find out the answer from Canadian myeloma expert, Dr Gwynivere Davies Hematologist/ Oncologist, Juravinski Cancer Centre,
Assistant Professor, McMaster University
Hamilton, ON
|
Follow us on Facebook and Twitter to be amongst the first to see our videos!
|
|
|
Patient, strong advocate, Support Group Leader and fundraiser in the BC South Interior |
|
"I was really only trying to get in contact with other patients that were experiencing the same things as I was. Providing support groups seemed to be the thing that was needed. Patients require information to ensure they are receiving the proper treatment from their doctors. When we have meetings we facilitate conversations about the disease and the side effects that come with treatments, and the problems and coping mechanisms to move forward."
|
|
|
Join us online from the comfort of your own home! All you need is a computer, tablet or smart phone and an internet connection. |
|
|
Don't forget - full information on upcoming webinars is available in our website's 'News & Events' section, or by clicking here.
|
|
October 27, 2020
1:00 pm EST
|
Please take 10-15 minutes to complete a pre-webinar survey that will help Dr Urvi Shah
better tailor the presentation's content to your knowledge of the topic.
|
|
|
|
November 10, 2020
3:00 pm EST
|
|
November 25, 2020
1:00 pm EST
|
|
December 8, 2020
3:00 pm EST
|
|
|
|
Past InfoWebinars:
-
Light Chain (AL) Amyloidosis: Diagnosis and Treatment - View recording
-
Drug Interactions in Myeloma and How to Avoid Them - View recording
-
About Relapsed/Refractory Myeloma & What to Expect - View recording
-
Living Well With Myeloma for 25 Years: The Benefits of Getting Involved - View recording
-
Following & Understanding Your Serum-Free Light Chain Test Results - View recording
-
Relaxation & Stretching Therapies - View recording
-
Get to know your Myeloma Canada Patient Advisory Council (PAC) - View recording
-
About Newly Diagnosed Myeloma & What to Expect - View recording
-
Healing@Home Empowerment Series - View series
|
|
|
|
Our Support Group Network is growing strong! |
|
We’re excited to announce that 2 new support groups are joining the Myeloma Canada Support Group Network! Please welcome the Myélome Lanaudière (QC) support group and its leader, Benoît Brissette, and the Niagara Region Multiple Myeloma Support Network (ON) led by Linda Campbell. We’re thrilled to have you on board!
|
|
Here's how you can contact them:
Myélome Lanaudière
Niagara Region Multiple Myeloma Support Network
|
|
|
Want to know if there is a support group in your area?
Check out our interactive map! Click here to find the support group closest to you, or join one of our virtual support groups by clicking here.
Coming soon! A new support group for Quebec’s Chaudière-Appalaches region!
|
|
Our network of 46 support groups across the country exists so that no one has to go through their myeloma journey alone.
We’re looking for volunteers in the greater Quebec City region (QC) and in Thunder Bay (ON) to help plan group meetings and join Myeloma Canada’s current support group team. Your involvement can help make a difference in the lives of so many impacted by myeloma.
|
|
|
|
Our website includes a section dedicated to COVID-19 and its impact on our community. Please visit it often for regular updates and resources you can trust.
|
|
|
COVID-19 related webinars*
*See the "Upcoming Events" section below for non-COVID-19 related webinars
|
|
|
Past webinars:
Click on the title to view the recording:
|
|
|
|
All webinars are free, recorded and are available for viewing on our Myeloma Canada YouTube channel.
|
For more information on all upcoming webinars, click here.
|
|
|
|
Myeloma Canada is here to support you in your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
|
|
In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
|
|
Follow us on social media for the most up-to-date information and resources: |
|
Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
|
|
|
|
|
|
|
