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Greetings!

We hope that you’re doing well as we approach the first day of spring in a just a few weeks!

We’re pleased to provide you with the March 2019 issue of the Hot SHEET newsletter from Us TOO , which features Progress on Prostate Cancer Research . We’re excited to introduce this new, regular Hot SHEET supplement to provide some of the latest research from the Prostate Cancer Foundation ( www.pcf.org ), the world’s leading philanthropic organization funding and accelerating prostate cancer research. Check out the Hot SHEET insert and read about the top five most important prostate cancer research topics or discoveries that were recently presented at the 2018 PCF Scientific Retreat at www.ustoo.org/PCR .

The Hot SHEET insert also features Between the Sheets , a regular column addressing challenges with sex and intimacy after treatment for prostate cancer. Readers submit questions which are answered by experts. Find previous issues and submit your question for possible publication at ustooBTS@ustoo.org  

If you are the wife or female partner of a man with prostate cancer, we invite you to join a conference call to connect with other women facing the same challenges. Because prostate cancer is a couple's disease, the woman is often subject to her own concerns in addition to those she shares with her partner. A Forum for Her is an ongoing series of conference calls that provides women with important peer-to-peer support. To register email at terril@ustoo.org or call 877-978-7866. 

If you haven’t already done so,  we encourage you to check out recorded video from the Us TOO 2018 Pathways educational events  in Seattle, WA, Englewood, NJ, and Chicago, IL. In addition to a wide spectrum of presentations from medical experts, some highlights are noted below with links to video segments specific to each topic. This content was presented by Us TOO in response to 2018 survey feedback received from Us TOO support group leaders. We extend our thanks to Pathways presenters, corporate sponsors, support group leaders, and all who attended in person and online through the live webcast.

Prostate Cancer Screening, Staging, and Treatment of Localized Disease:

Advanced Disease & Immunotherapy:

Sexual Health & Intimacy:

Erectile Dysfunction:

Pelvic Floor Health:

Urinary Incontinence:

Psychosocial Effects of a Prostate Cancer Diagnosis:

Living with Uncertainty after Cancer Diagnosis:

Harnessing the Benefits of Genetic Testing:

Benefits of Meditation:

Stay tuned for details on upcoming 2019 Us TOO Pathways events!

Dendreon Pharmaceuticals is enrolling participants in the ProVent clinical trial , which is evaluating the effectiveness of sipuleucel-T in reducing disease progression in men diagnosed with prostate cancer on active surveillance (AS). PROVENGE® (sipuleucel-T) remains the only FDA-approved immunotherapy proven to extend overall survival (OS) in metastatic castrate-resistant prostate cancer. Get details at ClinicalTrials.gov Identifier: NCT03686683 or call (800) 772-3125. When prompted, enter study code number: 170101 (do not hit the #, hash or number key).

Learn about additional clinical trials on the Us TOO Prostate Cancer Clinical Trial Finder. It simplifies the process of identifying clinical trials by matching a patient’s profile with relevant clinical trials at no charge. We are excited to share that the site has been upgraded to the latest web application version and features a new layout with the option to “Pre-Screen Now” from within the Trial Summary; and a new questionnaire layout for better navigation and easier access from mobile devices. 

You’re invited to a free webinar on non-metastatic castration-resistant prostate cancer hosted by Janssen Oncology on March 7 at 7:00 pm EST. Pre-registration is not necessary. CLICK HERE for more information. 

If you’ll be near Fort Myers, FL, on Saturday, March 2, plan to attend  Prostate Cancer TODAY: Living Well, Choosing Wisely – FLORIDA . This educational event is presented by Prostate Cancer International and features panel discussions, audience Q&A, and breakout sessions.  Get the details and register online  or call Jan at (239) 208-4400.  
 
Join Cancer Care  in partnership with the National Alliance of State Prostate Cancer Coalitions (NASPCC) for a  15-week online support group  for men being treated for prostate cancer.  Get more information and register.

Take care, stay warm, and let us know how we can help provide you with educational resources, support services and personal connections to others in the prostate cancer community. 


All the best,



Chuck Strand, Chief Executive Officer
Jackie Konieczka, Office Manager
Terri Likowski, Program Director - Support Group Services
Tim Mix, Communications Manager