You are invited to participate in a study about the prevalence of balance difficulties in individuals with CHARGE syndrome being conducted by the CHARGE Syndrome Research Lab at Central Michigan University.
It is known that individuals with CHARGE syndrome suffer from balance difficulty, but there is no available data about how prevalent balance difficulties are among individuals with CHARGE syndrome at different developmental stages. Balance affects one’s everyday life, so it is important to examine the prevalence of balance difficulties among individuals with CHARGE syndrome and common behaviors exhibited by these individuals in order to accommodate for their impaired balance.
WHO CAN PARTICIPATE?
If you are the parent/guardian or caregiver of a child with CHARGE syndrome between the ages of 3 and 17, you are eligible to participate.
WHAT DO WE NEED FROM YOU?
Participation in this project involves answering questions on an anonymous, web-based questionnaire.
