Everyone living with Costello Syndrome has a story to tell… stories of bravery, of coming together, of optimism, of happiness and of overcoming the seemingly impossible. Whether Costello Syndrome affects you directly or you’re a friend, colleague, family member or healthcare professional, we all have our own challenges and ways of dealing with them.
So what about you? What’s your story? We would love to hear about your experience with Costello syndrome, from your very first symptom to how you live your life now. The more you share, the more we have an opportunity to help others whose lives have been touched by Costello syndrome, inspire others with your experiences and help others including our supporters and researchers understand the syndrome.
Sharing our stories will inspire families to overcome what seem to be impossible obstacles and show just how much can be accomplished despite limitations and a world that doesn’t understand them. Let's raise awareness about Costello syndrome and let other families know that while it can feel lonely out there, they are not alone.
For more information contact the Costello Syndrome Family Network (CSFN) at info@costellosyndromeusa.org
