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Welcome to the May edition of
CanChild Today! In this issue, we are excited to feature online resources, awards, and recently published work by some of our members.
Please feel free to share CanChild resources & newsletter with family, friends and colleagues.
They can subscribe to the
CanChild Today! Newsletter for free by registering
here
.
Our past issues are archived on the CanChild website and can be accessed here.
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'F-Words' during COVID-19!
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As part of McMaster Children's Hospital
Caring During COVID campaign, Dr. Peter Rosenbaum talked about the 'F-Words' in Child Development. In this video, he reminds us of the importance of family and physical environment, our home, on health and development.
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#StayAtHome Resources for Clinicians!
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As the world collectively shifts to stay home and limit the spread of COVID-19, we know that your therapeutic practice has likely changed. CanChild offers products and measures to help you improve the lives of children and youth with developmental conditions and their families. During this time, we encourage you to expand on your knowledge with the PREP Online Module and the Handwriting Assessment Protocol:
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PREP - Pathways and Resources for Engagement and Participation - is an evidence-based intervention that focuses on enhancing participation through modifying the environment. The online module includes a detailed description of the PREP assessment and intervention, including videos, real-life scenarios, practical forms and references to research evidence and key literature. By using this approach, therapists can build capacity within their clients and their caregivers, families, and communities to identify, minimize, or remove barriers to full participation, both during the therapeutic interaction and beyond.
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The McMaster Handwriting Assessment Protocol (3rd Edition) provides a structured framework for assessing the handwriting of school-aged children. The protocol helps to identify the specific areas in which a child is having difficulty and to help occupational therapists determine whether and where to intervene. The manual includes detailed descriptions, materials and procedures, assessment forms, typical writing samples and speed norms, and assessment samples.
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Dr. Andrea Cross
received the
CIHR
Fellowship: Patient-Oriented Research Awards - Transition to Leadership Stream - Phase 1 as a Post Doctoral Fellow. This 3 year award will allow her to
lead a longitudinal quantitative and qualitative evaluation of the impact of the 'Family Engagement in Research Certificate of Completion Program',
broaden the scope and conduct a pilot evaluation of the training program for all child health research, and
study the sustainability of the training program and implementation facilitators and barriers.
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Linda Nguyen also received the
CIHR Fellowship: Patient-Oriented Research
Award as a Doctoral student. This fellowship
will provide funding for her research to explore sibling relationships of adolescents with disabilities during health care transition including her researcher-family partnership with the Sibling Youth Advisory Council and BEST SIBS Study.
Supervisor: Dr. Jan Willem Gorter
She also received the Mitacs Globalink Research
Award
, which will allow her to do an exchange to conduct a research on
the use of the Involvement Matrix as a communication tool in family-researcher partnerships in the Netherlands. Supervisor: Dr. Jan Willem Gorter, and Host Supervisor and Committee Member: Dr. Marjolijn Ketelaar.
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A CanChild article, published in Child: Care, Health and Development, was among the top 10% most downloaded papers from January 2018 to December 2019.
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This podcast showcases a conversation between a researcher and caregiver on family engagement in research. Together, they discuss ways that family members can become more involved in a research project all the way from the planning, implementing and sharing of results.
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Recent Publications by CanChild Members!
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High-risk developmental follow-up enables early diagnosis and intervention, which improves child and parent outcomes. This study summarized the best available tools for predicting childhood disabilities, provided an overview of the evidence for inducing neuroplasticity following brain injury, described various interventions and explored emerging treatment options.
Results show that the most effective treatments involve child self-generated movements, child-led problem solving, intense repetition of practice, practice of real-life tasks that are meaningful to the child, enriching the environment and enhancing the interactions between parent and child.
Authors: Novak I, Morgan C
.
Handb Clin Neurol. 2019. doi: 10.1016/B978-0-444-64029-1.00023-0
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Electronic participation-focused care planning support for families: a pilot study
Participation and Environment Measure-Plus (PEM+) 2.0 is an optimized version of an online care planning tool that focuses on the participation of children with disabilities. To identify the feasibility, acceptability and preliminary effects of the tool, this study recruited caregivers of children from 0 to 5 years old who reported dissatisfaction with the participation of their child.
Results suggest that PEM
+
2.0 is feasible for collaboratively engaging caregivers in the care-planning process. Caregivers perceived PEM+ 2.0 as helpful for thinking about their child's participation and what can be done to improve it. The feasibility and acceptability results will inform PEM+ 2.0 optimizations.
Authors:
Jarvis J, Kaelin V, Anaby D, Teplicky R, Khetani M
. Dev Med Child Neurol. 2020 Mar 2. doi: 10.1111/dmcn.14535
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Service Providers' Perspectives on Using the 'F-Words in Childhood Disability': An International Survey
Survey results and commentaries of 91 respondents from 27 countries showed that service providers are interested in 'F-Words' and share it with families, friends or colleagues. They also use it to guide and support pre-existing approaches, to directly integrate into clinical practice, and to teach post-secondary students. Moreover, attitudes towards the 'F-Words' are predominantly positive and service providers are confident in their ability to use and implement it. This study provides insights on how service providers are using the 'F-Words' and the limitations of its implementation, which can inform future directions to support international uptake. Authors: Soper AK, Cross A, Rosenbaum P, Gorter JW. Phys Occup Ther Pediatr. 2020 Feb 16: doi: 10.1080/01942638.2020.1726551
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