#5ThoughtsFriday
10/19/2018
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#5ThoughtsFriday is Powered By the
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Call for Presentations for the 31st
Brain Injury Association of Maryland
Annual Conference.
The BIAMD ANNUAL CONFERENCE is a multi-track neuro-conference focusing on issues related to: individuals with brain injury and family members, children and adolescents in the school system and transitioning, advocacy and community rehab services, and professional and clinical training.
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Here are the 5 things we thought were
worth sharing with you this week:
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IN THE WEEKS AFTER my first son was born, I squandered hours of precious sleep leaning over his bassinet to check that he was still breathing, or Googling potential dangers that seemed to grow into monstrous reality by the blue light of my smartphone. Among them: The lead paint my husband and I had discovered recently — a real but manageable risk — had turned our new home into a hazard zone. I cleaned our floors incessantly but still imagined a cartoonish cloud of poison dust following us as I carried the baby, so tiny and fragile, from room to room.
When the doctor screened for postpartum depression during my six-week checkup, she noted that my responses to the questionnaire were somewhat mixed though my score was within the normal range. She asked whether I had thoughts about harming myself or my child and, when I said no, she moved on. But I was struggling. Before baby, I had managed a tendency toward low-level worry. Now, it was as if the volume had been turned up. Among the biggest worries I faced was worry itself.
The way I saw it, motherhood made me feel this way, and I would be a mother forevermore. Would I always be this anxious? And would my baby suffer for it? I feared that something deep within me — my disposition, my way of seeing the world, myself — had been altered.
In truth, something very foundational had changed: my brain.
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Caring for a special needs child along with other siblings is challenging. We asked parents and other experts how they manage.
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Nicole Villas is the mother of 12-year-old Aiden, who has
Dravet syndrome
, a severe form of
epilepsy
, and is developmentally on the level of a 5-year-old. He needs help dressing, eating, and bathing, and he cannot be left alone for more than a few minutes at a time. Villas also has two older sons, who are 14 and 16, and she has often felt conflicted between meeting their needs and Aiden's.
“Even when they were young, we'd tell the two older ones, ‘We know this isn't fair,’” recalls Villas, 40, who lives in Castle Pines, CO, and is on the board of the Dravet Syndrome Foundation.
Harmony Hobbs and her husband, Robbie, are parents to Maverick, 9; Asher, 6; and Penelope, 5. Maverick is on the autism spectrum and has a non-specific neurologic disorder that manifests in poor impulse control, sudden anger, a short attention span, and difficulty picking up social cues.
In Asher's first two years of life, he went to the emergency department three times because Maverick pushed him or played with him too roughly, says Hobbs, 38, a freelance writer in Baton Rouge, LA, who has a blog about parenting called Modern Mommy Madness (
http://modernmommymadness.com
).
“It's gotten easier as they've gotten older, but you never know how Maverick will be on a given day. I have a lot of guilt because there's no set routine.”
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January 2019 marks other changes that will happen based on the increase in the national average wage index.
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In March 2017, a woman met with the admissions coordinator at Madison York Assisted Living in Queens, inquiring about placement for her mother-in-law, who was using a wheelchair while recovering from hip surgery.
“Wheelchairs are not allowed in the facility,” the coordinator told her. “Walkers, canes, rollators, hemi canes, something like that is acceptable.” But, he went on, “we cannot accommodate a wheelchair-bound patient.”
In November, another woman seeking assisted living for her mother-in-law emailed the admissions coordinator at VillageCare at 46 & Ten in Manhattan. “We do not admit residents on wheelchairs,” the coordinator wrote back.
By phone, the woman explained that her mother-in-law had used a chair for decades and could transfer in and out without assistance. The coordinator wouldn’t budge. “We could not accept anyone in a wheelchair,” she said.
CLICK HERE
to find out more about this disturbing trend!
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2) What We Are Reading We Think You Might Enjoy
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CONGRATULATIONS
to
Kathleen Ford
whose name was selected for our “
Read What We Are Reading Giveaway
” to receive "Getting Back to Happy" by Marc and Angel Chernoff!
Thank you so much for your interest, and we hope you enjoy the book as much as we did!
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Hey! You Can Win The Book Below!
Subject Line: I Like To Read!
and
your name and mailing address in the email
. We will enter your name into a drawing to receive a free copy of the book mailed to you for your reading pleasure!
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Where are you going? Where have you been? What are you doing about it NOW? As you think through these questions, I encourage you to make your move and reclaim the life you've always dreamed about. It's yours if you really want it. But you'll need more than just a burning desire. You need a game plan that is built on a rock-solid foundation of core values to find great opportunities and build powerful, lasting relationships.
In the fast-paced, instant-gratification world we live in, many of us have lost our direction.
We fly through life without asking the important, philosophical questions like,
Why are we doing what we're doing?
What impact do we want to leave on the world?
As a result, at times we feel unfulfilled. Something is missing. It is values that provide us direction and purpose on the journey to living the life of our dreams. Values and an actionable game plan give us the edge for finding happiness, becoming more efficient in the use of our time, and surrounding ourselves with successful people that will transform our lives.
The Value of You is a journey into the core values that give light to our human experience. This guide devotes each of its 20 chapters to a core value. Each chapter has a personal game plan with practical guidance to help you make the value your own, so you can build upon the time-tested principles of greatness.
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1) Quote We Are Contemplating...
"
At some point you just have to let go of what you thought should happen and live in what is happening.”
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Did you enjoy #5ThoughtsFriday? If so, please forward this email to a friend!
Want to find a story from a past #5ThoughtsFriday blog posts, visit the archive by clicking
HERE
.
Please let us know your requests and suggestions by emailing us at
info@biamd.org
or contacting us on Twitter.
Which bullet above is your favorite? What do you want more or less of? Let us know! Just send a tweet to
@biamd1
and put
#5ThoughtsFriday
in there so we can find it.
Thanks for reading! Have a wonderful weekend.
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