Resource eBlast - January 2020 - Resources for Families

Resource eBlast January 2020

Sharing Resources for Families of Children with Special Health Care Needs

Martin Luther King, Jr. Day - Working Together to Achieve a Dream

January 20, 2020 is a day when our nation honors, celebrates, and reflects upon the life and contributions of Martin Luther King, Jr. As we begin a new decade, we must renew our efforts and resolve to continue to push forward together to achieve the promises of his "I Have a Dream" speech!

Activities to Honor Martin Luther King, Jr.

Disability Awareness Lessons Learned: Reflect on the power of his words to capture the human experience then and now - and for those with disabilities.

Inclusive Volunteering Service Activities: For many, the day is spent in service activities. The ARC is a recipient of grants to help facilitate the tens of thousands of service projects nationally.

MLK Activities and Projects for Kids: Consider using one of these 25+ activities and projects for kids to make the day memorable both at home and in your community.

Share Your Travel Experiences with the U.S. Department of Transportation

Perhaps you spent time over the Holidays traveling by air... how accessible did you find the airplane? Have some strong thoughts and ideas from recent or past experience traveling? NOW is your time to share! The U.S. Department of Transportation is soliciting comments for proposed regulations, until March 2, 2020, to improve accessibility of lavatories. Start the new year by sharing your experiences and using your voice.

Help Develop the National Family Caregiving Strategy

A new decade starts and another chance to raise your voice... The Administration for Community Living (ACL) is seeking input on the challenges faced by family caregivers from individuals and organizations that capture the breadth of the family caregiving experience. This information will be used to assist the Family Caregiving Advisory Council in developing its initial report to Congress and to inform the development of the national family caregiving strategy. It also will be used to help the Council plan future activities, including public listening sessions that will begin in 2020. To provide your input, please complete the following form no later than 11:59 p.m. EST on Friday, February 7, 2020.

New Autism Guidance for Pediatricians

New year, New Guidance for pediatricians... while this clinical report was released in 2019 in Pediatrics, it is NEW and serves as the first AAP update in a decade for pediatricians as to screening, diagnosis and treatment guidelines for Autism. While this report is intended to guide pediatricians, it is equally as important to guide families in what to expect, what to seek and how to better partner with providers for our kiddos!

Identification, Evaluation, and Management of Children with Autism Spectrum Disorder (Pediatrics)
Pediatricians Get New Guidance on Autism (Overview of report from Disability Scoop

Increase in SSA/SSI Payments for 2020

In Case You Missed It... SSA increased SSI payments as of 12/31/2019 so that the maximum federal SSI payment for an individual will go from $771 per month to $783 per month for 2020.

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Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities. We promote partnership with families--including those of cultural, linguistic and geographic diversity--in order to improve healthcare services and policies for children.