CHAPTER EVENTS
- Indianapolis Marathon, Half Marathon, 5K | Indianapolis, IN | November 3, 2018
- Pancreas Awareness Night @ Manchester Monarchs | Manchester, NH | November 3, 2018
- Strike-Out Pancreas Disease - Massachusetts Chapter | November 4, 2018
- Party for a Cure - Boston | Boston, MA | November 8, 2018
- Strike-Out Pancreas Disease - Indiana Chapter | Noblesville, IN | November 11, 2018
- Pancreas Disease Awareness Fundraiser at Times Grill | Mandeville, LA| November 27, 2018
- Strike-Out Pancreas Disease - Central PA Chapter | Carlisle, PA | November 11, 2018
- Project Cuffway | Tulsa, OK | May 3, 2019*
*Save the date! More details to follow.
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(Above)
The NPF Indiana Chapter water station volunteers at the CNO Indianapolis Marathon on November 3rd.
(Below)
Marine Corps Marathon/10K Team Pancreas runners before the start of the race on October 28th. Team Pancreas (44 runners) hailed from 16 states, the District of Columbia, and the U.K. raised more than $36K for the NPF.
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Education and advocacy are part of the National Pancreas Foundation's (NPF) mission. Please see the list of events that are coming up throughout the year. We hope you are able to join us! For a complete list, please see our
Events Page
.
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PATIENT EDUCATION EVENTS
*Save the date! More details to follow.
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SUPPORT GROUPS
If you would like to create a support group in your city, please contact National Chapter Manager, Patrick Salami at psalami@pancreasfoundation.org.
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Shopping for the holidays? Shop with AmazonSmile and give back to the NPF! Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the charitable organization of your choice. Head to
smile.amazon.com
to start shopping!
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One Mile at a Time: Dave's Story
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"
I had it all, extremely fortunate to have a successful career, an amazing and loving family, nice house and car, fit and healthy and a wonderful crazy social life with great friends. However, in a blink of an eye, I came close to losing it all - to something I had never heard of.
"
In April 2017, Dave Hughes and his family (his wife and two young children) traveled from their home of Portsmouth, England for New York City - the trip of a life time. Half way through their holiday, Dave woke up in his hotel room doubled over in pain. Rushed to the hospital, he was diagnosed with a severe acute pancreatitis attack. After a few days his family had to travel back to England, while he was in a different country dealing with the mental and physical battles of pancreatitis alone.
Pancreatitis can happen to anyone at anytime, anywhere. To read more on Dave's story,
please
click here.
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The NPF is currently accepting applications for the 2019 grant year. Founded in 1997, the NPF has given over $3 million to fund 115 groundbreaking research projects. To read more about application criteria, please go here:
bit.ly/NPFGrants
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The NPF is part of the World Pancreatic Cancer Coalition, a group made up of 70 organizations in over 30 countries. Together we raise global pancreatic cancer awareness and work collaboratively to support each other’s efforts. Please join us on Wold Pancreatic Cancer Day - November 15th and help bring attention to attention to pancreatic cancer and highlighting the need for greater awareness, funding, and research. For more information, please
CLICK HERE
.
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A pancreas disease awareness month fundraiser to benefit the Louisiana Chapter of the National Pancreas Foundation. It will be a relaxing and fun evening for the whole family. Best part – no cooking or cleaning the kitchen Tuesday night!
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Getting to know: Koligo Therapeutics
The NPF works with companies and various organizations that align with the NPF's Mission. Koligo Therapeutics is one of our partners. Koligo's first commercial product is Kyslecel, used in a procedure commonly known as Total Pancreatectomy with Islet-Autotransplantation (TP-IAT). Kyslecel is made from a patient’s own (autologous) pancreatic islets, the cells that make insulin to regulate blood sugar. It is reinfused into a patient’s liver after total pancreatectomy (complete removal of the pancreas) Kyslecel is intended to preserve insulin secretory capacity in pancreatitis patients after TP-IAT. TP-IAT can be a transformative procedure for patients suffering from chronic or acute recurrent pancreatitis, a debilitating and painful condition with few effective treatment options. In order to expand the number of patients who can receive Kyslecel, Koligo is currently developing Kyslecel v2.0, an improved formulation of Kyslecel to extend the product shelf life. Kyslecel V2.0 is expected to launch in 2019 and will allow Koligo to ship Kyslecel over longer distances, including international market (subject to meeting foreign regulatory requirements). To read more about Koligo, please go
here
.
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Sloan Kettering, Johns Hopkins, and the NPF to host Pancreatic Cancer Interactive Presentation
O
n November 8th, 2018, from 11:00am – 12:00pm EDT, there will be a new free interactive video program on pancreatic cancer. The live session will include interactive polling, real-time Q&A, and an expert panel featuring specialists from Memorial Sloan Kettering Cancer Center, John Hopkins Hospital, and the National Pancreas Foundation. The panel will speak about: the biology, diagnosis, and stages of pancreatic cancer, different treatment options available for advanced pancreatic cancer, the risks of and strategies to treat and manage relapse, and techniques and tips to minimize side e
ffects and maximize quality of life.
Registration
is free and you can submit your questions for the panel
here
.
If you are not able to log-in, through registration, you will be emailed the webinar to watch at your convenience.
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National Pancreas Foundation Annual Giving Campaign
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We are the only foundation in the world for all pancreas disease. We want to continue to provide to our patients/caregivers and we are able to do this with the generous donations of our supporters. Please remember the National Pancreas during this holiday season by donating
HERE
.
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