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aakpRENALFLASH - November 2019
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A Patient's Perspective on Advancing American Kidney Health Initiative
From CJASN by Richard Knight, AAKP President
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Richard Knight, AAKP President |
On July 10, 2019, President Trump signed an Executive Order-Advancing American Kidney Health (AAKH)-that will significantly change the administering of kidney care. Kidney disease was the ninth leading cause of death in 2017. Hence, it is somewhat surprising and disappointing that not since President Nixon signed Public Law 92-602, a Social Security bill, on October 20, 1972, has kidney disease received such support from the presidential level. The bill Nixon signed contained a provision that anyone with ESKD will be covered by Medicare. The backstory to Public Law 92-602 is that advocacy by Shep Glazer, Vice President of the National Association of Patients on Hemodialysis (NAPH) and others, who testified before the House Ways and Means Committee on November 4, 1971, motivated Congress. Shep Blazer testified while connected to a functioning artificial kidney machine.
Hence, patient engagement from decades ago informs my perspectives. The
NAPH became the American Association of Kidney Patients (AAKP). As President of the AAKP, I work tirelessly with legislators on Capitol Hill and many of the leaders of the Executive Branch to help frame the context of changes in health care that would
benefit patients with kidney disease.
Click on the blue button to read the full article.
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Nocturnal in-center dialysis shows benefits over conventional treatment
Patients who chose in-center nocturnal hemodialysis at a large dialysis organization had improved solute clearance, lower ultrafiltration rates, improved nutritional parameters and lower hospitalization rates compared to patients who had conventional, in-center hemodialysis, according to results presented at ASN Kidney Week here.
The overnight therapy might be particularly beneficial to patients receiving standard in-center hemodialysis (ICHD) "who are not achieving risk factor control, are experiencing increased organ stunning risk with elevated [ultrafiltration] UF rates or with hemodynamic instability," wrote lead study author
Martin Schreiber, MD, and colleagues from DaVita Kidney Care.
For the study, all patients who were in the in-center nocturnal hemodialysis (INHD) programs of the large dialysis organization during 2017 and 2018 were included. Researchers looked at several factors in the comparison, including patient demographics, dialysis prescription data, laboratory markers, blood pressure, target weight and hospitalization rates.
Click on the blue button to read more.
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Patient Webinar - Depression in Patients Undergoing Dialysis
Published on Oct 17, 2019
Presenter : Dr. Rajnish Mehrotra, University of Washington
Dialysis asks a lot of patients from time consuming treatment to restricted diet to numerous medications and much more. Given all that dialysis patients manage, what percentage of dialysis patients do you think suffer from depression? You will learn in this webinar that it is about 30 percent, which according to this webinar is four times greater than the general population.
In this video presentation Dr. Mehrotra reviews the facts about depression in dialysis patients. He explains the difference between sadness and depression. He also reviews the symptoms and signs of depression to look for. You will learn that depression is treatable and learn about ways to treat it. Additionally you will hear about drug therapies that are being used.
Click on the blue button below to watch this webinar.
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AAKP Ambassador, Jennifer Jones makes AAKP Delicious! Spiced Pear Muffins
To maintain a healthy lifestyle and to prolong the longevity of my kidney transplant, I incorporate renal-friendly food into my diet. I wanted to change it up a bit and decided to purchase the AAKP Delicious! Recipe Card Series- 5th Edition which has 36 recipes consisting of meals, snacks, and desserts that seems too good to be considered renal-friendly let alone healthy! I decided to make the Spiced Pear Muffins first because they would be great for breakfast and they would appease my sweet tooth! Pears were one of my go-to low potassium treats while I was on dialysis. These muffins are suitable for those who are on dialysis as well.
I had the majority of the ingredients on hand since they were basic baking staples. I only had to purchase the two stars of the recipe: Canned pears and pumpkin pie spice. After 30 minutes of prep and cook time combined, I had soft, tasty muffins in cute fall-themed shapes thanks to an Autumn-themed baking tin.
Click on the blue button below to read more and order Delicious.
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AAKP newsletters are for informational purposes and share some of the latest news in popular media and within the kidney community. The content included is not necessarily the opinion of the Association. AAKP has no control and is not libel for article links that have been removed/changed/broken.
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