Attention PSC Community…
We Need YOUR Participation to
Make Our Voices Heard!
Please Complete the
Our Voices Survey
Our Voices Survey sets the groundwork for

Making Our Voices Heard:
Patient-Focused Drug Development Forum (PFDD)
October 23, 2020

We know your time is precious - if there is ever a time for
100% patient participation, it is NOW! Please add your Canadian voice!

The survey only takes about 30 minutes, and your voice is crucial. You can choose to access this survey through one of two avenues. See the paths below.
Your Participation in the Our Voices Survey
is Important Because… 
  • The survey is your opportunity to express how primary sclerosing cholangitis (PSC) impacts your life and why enhanced treatments and a cure are so important for your life and/or the life of a loved one.

  • All data collected is de-identified (no name, birthdate, etc.) and will help drug developers determine future clinical trials.

  •  In the brief time it takes you to complete the survey, you will be giving scientists valuable information that will impact their research.

  • Strong, community-wide participation shows how committed our rare disease community is to PSC research and finding treatments and a cure for this rare disease.

  •  For those who complete the survey via the Registry, your name will be automatically entered in a drawing for prizes. The Grand Prize is free registration for the 2021 PSC Partners Annual Conference!
We can’t do it without you!
Questions? Email registrycoordinator@pscpartners.org
Our Mission: To provide education and support to PSC patients, families and caregivers and raise funds to research causes, treatments and cures for primary sclerosing cholangitis (PSC).
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