Goodbye 2019, Hello 2020...
What a Year It's Been!
|
|
Martine Elias, Executive Director
|
|
"We’re embracing the new year as an opportunity for new beginnings and exciting changes (actually, we’ve been planning for it for months now!).
We’re eager to enter 2020 for so many reasons. First and foremost, 2020 marks the 15
th
anniversary of Myeloma Canada. Be prepared for an exciting, dynamic year with new, bold initiatives and programs!
It’s a special birthday and we plan to let everyone know just how far we’ve come, and how much further we plan on going, thanks to your unwavering support."
|
|
Top Promising Multiple Myeloma Research Presented at ASH 2019 - Presented by Dr Joseph Mikhael, Chief Medical Officer, International Myeloma Foundation
|
|
Awareness Day at the Quebec National Assembly
|
|
It is with great pride that Myeloma Canada was at Quebec’s National Assembly on November 28, along with several members of our community, to meet with eight MPs from all parties. Our message about patients’ accessibility to clinical trials in the province was heard and very well received!
The purpose of this Awareness Day was for Quebec MPs to recognize the policy issues surrounding clinical trials initiated by researchers in hospital settings. This constraints negatively affect access to trials for Quebec patients
. The health policy guidelines - written more than 15 years ago - no longer comply with the current reality of clinical studies, which aim to compare the effiicacy and safety of triplet drug regimens that may include a combination of intravenous and oral drugs.
As it stands now, Quebec patients may be deprived of treatments that could greatly improve their quality of life and potentially ensure their survival.
|
|
From left to right : Chantal Tardif, Véronica Gill, Daniel Sarrazin, Jessy Ranger (Communications Coordinator, Myeloma Canada), Vénus Bélanger, Martine Elias (Executive Director, Myeloma Canada), Jean-François Couture, Manon Veilleux and Julie Martel.
|
Following a very productive day of meetings, we are happy to share that access to health innovation remains a priority for the Quebec government.
Thanks to all the participants
for making this day a success!
|
|
In the
Spotlight section
of our newsletter, discover what motivated some of our community members in Quebec to take part in this Awareness Day.
|
|
The
Voices of Myeloma Summit
|
|
On November 23
rd
, Myeloma Canada had the privilege to be part of the 1
st
ever Voices of Myeloma summit in Toronto. This event, sponsored by Celgene and organized by Myeloma Canada and Edelman, was focused on helping the Canadian myeloma community bring awareness to their cause.
Patients and caregivers joined us for the one-day conference to learn how to share their stories in meaningful ways and become ambassadors and opinion leaders in the community.
|
|
|
This was such an inspiring day! Thank you to everyone who participated and for making your voices heard. You are empowered myeloma advocates in your own uniquely perfect and passionate way.
Whether you advocate through social media, public speaking engagements, videos, traditional media, fundraising, writing and even within your support groups, we encourage you to keep sharing your story!
|
|
What's New at Myeloma Canada
|
|
Consider Donating Securities to Support Myeloma Canada
|
|
In making a gift in shares, bonds, mutual fund units or similar securities, it's more advantageous to transfer the securities directly to a charity rather than donating the proceeds collected from their sale. Why? Because by so-doing, you'll not only receive a tax credit, you'll also avoid paying taxes on the capital gain.
|
|
Who is this type of giving is for?
Individuals who hold publicly traded securities
Benefits
- Tax benefits
- Reduction of administrative costs
- Simple and practical
|
|
|
Click on the thumbnail below to view this month’s InfoVideo.
|
|
InfoVideo Series #12
Do drug approvals in other countries help expedite the process in Canada?
Find out the answer from Canadian myeloma expert, Dr Annette Hay, Hematologist, Associate Professor and Senior Investigator, Department of Medicine at Queen's University in Kingston.
|
Follow us on
Facebook
and
Twitter
to be amongst the first to see our videos!
|
|
|
Myeloma Research PSP Survey:
Deadline Extended to January 15
|
|
To all of you who have already participated in the Myeloma Research Priority Setting Partnership (PSP) survey, thank you! For those of you who would still like to, but have not yet, we’ve extended the deadline to January 15, 2020.
The PSP is an important initiative that involves and empowers those affected by myeloma to play an active role in helping to influence the direction of future myeloma research. It will also help us determine where to invest our research dollars. No one understands myeloma better than those whose lives have been impacted by it.
|
|
Please help us help you by completing the survey today. It’s completely anonymous and your chance to have your voice and questions about myeloma heard.
|
|
Updating Your Personal Information
|
|
Have you recently moved or changed Internet providers and have a new email address?
Please let us know if your contact information has changed in any way.
Making sure we have your most current contact information enables us to keep you informed about our community activities, Myeloma Canada events and send your official tax receipts to the right address!
|
|
|
Spotlight on Quebec Ambassadors: Seeking Access to Innovation
|
|
"If I could be granted one wish, it would be to streamline bureaucracy surrounding oncology and for decision makers to remember the human being behind every cancer. Knowing that each cancer is different, and every person is affected by cancer differently, why do we insist on giving everyone the most popular and least expensive "recipe"? - Julie Martel
|
|
|
Granby
InfoSession
(French presentations with bilingual question period)
January 21, 2020
Granby, Quebec
For patients, caregivers, family members and healthcare professionals.
|
|
Support Myeloma Canada’s mission in accelerating access to better care for
Canadians impacted by myeloma. Your support and generous donations help to further important medical research and advancements currently taking place in the myeloma field. Moreover, your contributions enable us to provide essential information, programs and services to our Canadian myeloma community.
Find out how you can help by clicking on the button below
or by calling us, toll-free at 1-888-798-5771.
|
|
Follow us on social media for the most up-to-date information and resources:
|
|
|
|
|
|
|
