Medical Ethics
: The standard of care in medicine is to dialogue, not destroy the observations and anecdotal reports of healing where medicine is in discovery mode and is saving lives! Where a consortium of doctors has carefully articulated their expert observations, it is expected that dialogue, not the dismantling of expert opinion, is the ethical standard. This commentary shows a lack of curiosity into the growing field of neuroscience and the urgent search for evidence of antibodies in autoimmune encephalitis (AE) where psychiatric onset is often the first clue to needed treatment. Nor is there curiosity about the consequences of not treating or following the children through to healing. The paper leads to NO Spirit of Inquiry or Curiosity about simple findings that might save a child for a lifetime.
Nonetheless Parents We are Brave
! Great Breaking News! parents are pushing forward and more doctors are treating. Yesterday, a 2
nd
state passed insurance coverage mandate for our kids, THANK YOU, Delaware mom, Duzan Family, who passed HB 286. This is the second state following the tremendous efforts of Wendy Nawara and others in Illinois mandating insurance coverage.
READ BELOW EXCERPTS FROM THE PAPER
A Pediatric Neurology Perspective on Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infection and Pediatric Acute-Onset Neuropsychiatric Syndrome (Journal of Pediatrics, May 21, 2018) Drs Gilbert, Mink, and Singer
Diagnosis: Medical Diagnostic Evaluations for PANDAS and PANS
In summary, published PANDAS data show that streptococcal cultures, antistreptococcal antibodies, and antibrain antibodies have a
high potential to mislead
both clinicians and parents
.
AND
Diagnostic testing for suspected PANS in children presenting with OCD and/or severe food restriction remains more ambiguous, recognizing that unlike PANDAS, the definition of PANS does not include a specified trigger.
To date, there is no significant evidence supporting any particular etiologies for PANS. As a corollary, there is no specific medical diagnostic testing for PANS.
