Hope For Hypothalamic Hamartomas - February 2021
What Will Be Your Impact on #RareDiseaseDay?
Hope For HH has joined forces with the over 400 million people globally who are living with a rare disease. We stand together with these individuals and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.

Everyone can have an impact whether pledging
your time, skills, voice, or dollars to support Hope For HH​.

According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 people in the United States. There are more than 7,000 rare diseases currently identified and approximately 90% of them are still without FDA-approved medical treatments.
Make a Donation
We are asking our Hope For HH community to help raise donations to support our upcoming 2021 Patient Conference and our 2022 5th International Professional Symposium. These events are crucial to our mission for providing information and support to those living with HH as well as pushing to make advancements in HH-related research. Every donation has an impact! We are asking patients, caregivers, friends, and family to stretch by donating $5, $10, $25, $50, or $100.

When you donate to Hope For HH, you are ensuring a brighter future for our loved ones with hypothalamic hamartomas. With your support, we are able to provide patients and families with support, organize family forums, push for HH-specific research, and host international professional symposiums.


Raise Your Hand & Take Action
Volunteering is good for your health, your happiness, and your HH Community. By volunteering, you can give something back, make a difference to the people around you, develop new skills, and learn more about issues affecting the HH community.

Are you passionate about fundraising? Do you love to plan events? Do you prefer to work behind the scenes? We are currently looking to expand our team of volunteers, so please take the first step and complete the Volunteer Inquiry Form.
About Rare Disease Day
Held the last day of February each year, Rare Disease Day is an annual observance to raise awareness for 400 million people affected by rare diseases globally. This year, you can help raise awareness for the cause and shine the light on people living with HH by making a donation to support HH research. Please donate today!
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org