July 2019 Newsletter and Calendar
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September Forum - Dr. Liza Ashbrook on Sleep Challenges
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Our speaker forums will resume this coming September and we're scheduling another set of engaging and informative presenters. First up will be Dr. Liza Ashbrook, a neurologist from UCSF who treats patients suffering with sleep disorders. Her research focuses on circadian rhythm disorders and the impact of sleep-wake patterns during hospitalization.
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Date
: Saturday, September 14, 2019
Time
: 10:30 a.m.-12:30 p.m.
1924 Cedar Street, Berkeley, CA 94709
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PD Active Monthly Calendar
The calendar includes classes initiated with financial support from PD Active.
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Forum with Dr. Liza Ashbrook on 9/14/2019 at 10:30 a.m.
Annual Picnic
on 10/6/2019 at 12:30 p.m.
Forum
on 11/9/2019 at 10:30 a.m.
Forum with Angela Rusher, PT on 1/11/2020 at 10:30 a.m.
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Highlights from Town Hall
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The third PD Active Town Hall meeting took place on Saturday, June 8 with about 50 community members in attendance. The meeting opened with outgoing President Mary Pat Boersma turning over the meeting to incoming President Chad Zucker.
Chad thanked Mary Pat for her four years of dedicated leadership and her willingness to continue as a member of the PD Active Executive Committee.
Chad then reviewed highlights of the past year and introduced the new Board structure before asking attendees to complete the recently developed
PD Active Survey. Following the survey each table engaged in focused discussion around topics such as what PD Active does well and what we can do to build on that.
Chad’s slides provide a more detailed outline of the meeting agenda and discussion topics.
The meeting ended with a note-taker from each table reporting on the discussion of their group. The board will review these notes and provide a summary of findings in the August newsletter.
Chad thanked members for their participation in the Town Hall and urged all to encourage other PD Active members to take the
survey.
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Local Voices at the National Parkinson’s Policy Forum
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Congratulations to Nancy Husari and Brooke Deputy who have been selected to participate in the Parkinson’s Policy Forum to be held in Washington, D.C. September 9 and 10, 2019. Nancy and Brooke have demonstrated success in public policy work advocating for PD, most recently the successful campaign to establish April as Parkinson’s Awareness Month in Berkeley and Alameda. Take note, too, that Nancy and Brooke are constituents of Rep. Barbara Lee, a senior member of the powerful House Committee on Appropriations which controls the federal purse strings.
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In YOUR Corner Magazine - Interview with Coach Daniel
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RSB Albany, along with PD Active, has been featured in the quarterly publication,
In YOUR Corner -- a magazine by the national Rock Steady Boxing organization. Coach Daniel Burkhardt was interviewed for this in-depth piece. To read the full article, click
here.
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Perspectives from the Recent World Parkinson Council
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Numerous PD Active members attended the recent World Parkinson Congress in Kyoto, Japan -- several even performing. We're pleased to be able to share two post-event perspectives. Here are excerpts:
"This was a gathering that could be both deeply inspiring, bringing hope of a possible cure for Parkinson's, amazement at the dedication of so many individuals to the scientific research, and at times deeply frustrating."
~ Norm Frankel, PD Active Board Treasurer
"I returned to my pre-diagnosis travel rule: I prefer to travel with a friend, but if that’s not possible I will travel alone. I also knew that for half of the time, I would be at the congress, and that was the main purpose of the trip. What I hadn’t expected was that I would fall in love with Japan on my way to and from the WPC."
~ Nancy Husari, MJFF Ambassador
To read Norm and Nancy's full perspectives, click
here.
Note: Norm and Nancy's attendance of the World Parkinson Congress was not subsidized by PD Active.
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In Memory - Patricia R. Needle
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Patricia R. Needle (1947-2019) passed away on June 7th, 2019 at home with her family in Hudson, MA. Patricia (Patty) had been an active member of our community, commuting from San Francisco to participate in Dance for PD
® and Tremolos classes. Friends from near and far have written touching words and said that she "lit up any room she entered." Her family requested that in lieu of flowers, donations be made to PD Active in her memory. We have thanked her family and are acknowledging the tributes.
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Don't Forget to Carry Emergency Contact Info
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Here is a handy guide for preparing emergency medical information. We urge all community members to prepare this information and keep it accessible and on your person at all times. Above all keep the name of the person to contact with your health care card.
If you have an iPhone you should fill out the
Health app that comes with the phone. This app can be used in emergency even if the phone is locked.
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Bequest from the Estate of John Hess
Kaiser Permanente (matching a donation by Dr. Ramon Quesada)
Ronald Rioux
Gifts in Memory of Patricia Needle
Elaine Kern Brooks
Kathleen Butterfield
Nancy and Andrew Cohen
Kathleen Courts
Martha Friedberg
Donna Mickleson and Tim Gordon
Paul Greenbaum
Frank Infante
Sherrie and Lee Jacobs
Harriette Jaffe
Madeleine Mullane
Ellen Parker and Amy Present
Ron and Patti Ruest
Jaymie Saks
Evan Saks
Janet Saks
Rachel Saks Aronis
Patricia Smith
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PD Active is a 501(c)(3) so contributions are tax-deductible. Tax ID: 26-3302461
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Up Your Impact, Give Monthly
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Contact us to set-up up a monthly, recurring donation to PD Active. It's easy to do, and secure. We would be happy to tell you more and walk you through the process. You can set-up a recurring gift for any amount and every contribution is meaningful. Email us at
info@pdactive.org or call at (510) 479-6119.
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We rely on you, our generous PD Active members, and your friends and family members, for our core financial support. It's easier than ever to help:
- To donate by credit card
- To donate by postal mail: PD Active, P.O. Box 9246, Berkeley, CA 94709
- To donate by PayPal
Use Your IRA
: You no longer need to wait until the end of the year to distribute your required minimum distribution (RMD) from your IRA. A quick reminder that if you are over 70
1/
2
you are eligible to use your RMD to make tax-free donations to qualified charitable organizations. No gift is too small, so please keep us in mind when evaluating your IRA.
- Recurring credit card donations
- Stock or Donor Advised Funds
- Planned Giving - Property or other assets through your will or estate plan
- Automobile
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PD Active Activities, Descriptions & Locations
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Local Classes for People with PD
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www.pdactive.org - (510) 479-6119 - info@pdactive.org
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