Welcome to the Summer 2019 ENews!
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Introducing MOCHA's Summer Interns!
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- I am eighteen years old and I'm allergic to peanuts, tree nuts and soy protein.
- I’ll be studying Public Health in the fall at the University of Illinois at Chicago. I plan to deal with my allergies in college by being proactive and cautionary. In preparation for college, I’ve notified the dining services of my allergies in order to ensure I always have a meal that is safe from cross contact.
- I chose to volunteer as one of the first MOCHA interns because I know what it’s like to navigate the world with a severe allergy. My experiences have given me a passion for helping others with allergies, too. The mission of MOCHA really connects with my major, Public Health, and I’m so excited to begin!
You can connect with me on Spokin @ hsafron.
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- I am nineteen years old and I am allergic to milk, eggs and peanuts.
- I am going into my sophomore year at the University of Illinois at Urbana-Champaign studying molecular and cellular biology with a minor in english. At college, handling my allergies is relatively easy because U of I is one of the most inclusive universities in the world. There is an app the University uses for the students to order food at which dining hall they choose to eat at.
- I chose to volunteer as one of the first MOCHA interns because food allergies shaped the person I am today and this internship is a great opportunity to help others learn about allergies. I would be happy to answer any questions about living with food allergies and living with allergies in college.
You can connect with me on Spokin @ johnkoz92
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This Summer ENews was created by Hannah Safron and John Kosner.
A special thank you to Kelly McCready and her son, Remy, for all their help!
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APFED 2019 EOS Connection
Patient Education Conference
The Bethesdan Hotel
Washington, DC
Thursday, July 25 - Sunday, July 27, 2019
Mark your calendars for APFED’s 17th Annual Patient Education Conference on Eosinophil-Associated Diseases (EADs) on July 25-27, 2019 in the Washington, DC area (Bethesda, MD)! Join us to meet patients and families, learn more about EADs, gain practical management strategies, and hear research updates from experts in the field.
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Food Allergy & Anaphylaxis
Connection Team(FAACT): CAMP
TAG
Camp Tag- The Allergy Gang
Huguenot, NY
Monday, July 29- Friday, August 2
Camp TAG provides a safe place for children with food allergies, eosinophilic disorders, FPIES, Celiac disease, and asthma and their non-allergic worries about allergic reactions - and meet other children who share similar experiences. Camp TAG provides peer-to-peer networks, support, gaining independence and confidence, and more - everyone has the opportunity to be with others who live it and get it. It is a bonding and empowering week for all campers and counselors, including parents.
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FAACT: Peanut Sensitive Game
Great American Ball Park
Cincinnati, OH
Tuesday, August 6, 2019
FAACT partners with the Cincinnati Reds for a peanut sensitive game vs the Los Angles Angles. Seating will be in the Cincinnati Bell Technology Pavilion in center field. This is a private indoor seating area away from concession stands or regular ballpark seating. All three games will be held in the private, enclosed and newly renovated nut-free suite. Come enjoy a great day at the ballpark!
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Food Allergy Bloggers Conference 2019
Southern Maine Community College
Portland, ME
Wednesday, August 14- Thursday, August 15
,2019
About the Event: As bloggers, parents, and advocates focused on food allergies or Celiac disease- connected by our stories, connected by the illness, connected by the battles we fight and connected in our interest to make the world a safer place for all with food allergies or intolerances.
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Conference For Asthma Research
and Education(CARE)
The Ann & Robert H. Lurie Children's Hospital of
Chicago
Chicago, IL
Saturday, August 24, 2019
Get ready for Allergy & Asthma Network and SOAAR's Conference for Asthma Research and Education on August 24th, 2019 at Ann & Robert H. Lurie Children's Hospital of Chicago. Located on 225 E. Chicago Avenue the event will be held on the 11th Floor Conference Center. AAN and SOAAR are hosting an asthma conference on the latest research, medications and management techniques suggested by doctors. Free of cost!
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Allergy Awareness Games
Guaranteed Rate Field
Chicago, IL
Sunday, August 25, 2019
Join the Chicago White Sox on August 25th for Courage
™
Days powered by Food Allergy Research & Education(FARE) and the Chicago White Sox! Up to $10 from every ticket goes to FARE's transformative Courage
™
Campaign supporting families living with food allergies.
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FAACT: Peanut Sensitive Game
Great American Ball Park
Cincinnati, OH
Wednesday, September 25, 2019
FAACT partners with the Cincinnati Reds for a peanut sensitive game vs the Milwaukee Brewers. Seating will be in the Cincinnati Bell Technology Pavilion in center field. This is a private indoor seating area away from concession stands or regular ballpark seating. All three games will be held in the private, enclosed and newly renovated nut-free suite. Come watch baseball on a beautiful day!
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FACES Chicago Event
Chicago, IL
Saturday, September 28, 2019
Save the Date for FACES (
Food Allergy Conference for Education and Science)
Chicago! SOAAR is hosting the 2nd annual Midwest food allergy conference to share the latest research surrounding food allergy and new advancements in treatments, prevention and daily living. Look out for more info soon!
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Food Allergy & Anaphylaxis
Connection Team(FAACT):
Leadership Summit/Teen Retreat
Oak Park, IL
Wednesday, October 2- Saturday, October 6, 2019
FAACT Support Group Leadership Summit 2019 is a complimentary, two-day event dedicated to building collaborative communities that share a passion for raising awareness and preparedness of people with life-threatening allergies. The summits will present unique opportunities through workshops, lectures, networking, and activities for attendees to develop the leadership and organizational skills needed to improve their networks, as well as develop relationships with other leaders within their regions.
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Global Food Protein-Induced Enterocolitis Syndrome (FPIES) DAY
Day of Awareness
Monday, October 14, 2019
This year as you can celebrate Global FPIES Day, a time for our global community of families, practitioners, researchers and patient advocates to come together in the name of taking big steps for FPIES awareness, we focus on living with FPIES. Join FPIES in sharing print resources, educational videos and inspirational family stories to promote FPIES awareness in your local communities!
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Rare Diseases & Orphan Products Breakthrough Summit
Washington, DC
Tuesday, October 15- Wednesday, October 16, 2019
As technology in rare disease accelerates, and with topics like drug pricing being a top priority in government, we must act now to drive innovation and collaboration to develop stronger resources, better outcomes and find cures for the community. In 2019, the time is now to prioritize action in making positive changes for the millions of Americans living with rare diseases.
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NASPGHAN Breakthrough Summit
Chicago, IL
Tuesday, October 16 - Friday, October 19, 2019
The mission of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition(NASPGHAN) is to advance understanding of normal development, physiology and pathophysiology of diseases of the gastrointestinal tract and liver in children, improve quality of care by fostering the dissemination of this knowledge through scientific meetings, professional and public eduction, and policy development, and serve as an effective voice for members and the profession.
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Contains: Courage FARE Summit
Washington, DC
Friday, November 1 - Sunday, November 3, 2019
FARE is
brin
ging together 1,000 members of the food allergy community-- including t
eens, adults, allies, thought leaders, brands and entrepreneurs--
for an inspiring and transformative weeken
d. Registr
ation is open so get your tickets now!
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FARE Connecticut Fall Luncheon
Greenwich, CT
November 6, 2019
More than an opportunity for the local food allergy community to come together, the Connecticut Fall Luncheon plays a vital role in enabling FARE to invest in promising therapies, develop life-changing initiatives and advocate on behalf of the
32 million children and adults with food allergies.
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2019 USAsthma Summit
Houston, TX
Friday, November 8, 2019
Allergy & Asthma Network and the American College of Allergy, Asthma & Immunology(ACAAI) are pleased to invite you to the 2019 USAsthma Summit. The summit takes place on Friday, November 8, 2019 at the Marriott Marquis Houston Hotel. Registration opens August 8, 2019. Limited travel scholarships are available
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5th CURED Patient Education Research Conference
Cincinnati, OH
Thursday, November 7 -
Sunday, November 10, 2019
Save the Date for the 5th CURED (Campaign Urging Research for Eosinophilic Disease) Patient Education Research Conference! Look out for more info soon!
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ACAAI 2019 Annual Scientific Meeting
Houston, TX
Thursday, November 8- Monday, November 11, 2019
Get ready to blast off toward New Frontiers: Advocating for Patients, Practices and Research from November 7- 11, 2019. There is a stellar program for this year, starting with Thursday's International Food Allergy Symposium. All weekend we'll be featuring a great lineup of speakers and sessions to help launch people into the future of the specialty.
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Food Allergy Fund Summit
Washington, D.C.
Thursday, November 14, 2019
Please join the Food Allergy Fund for the D.C. Food Allergy Fund Summit featuring leading doctors and scientists, celebrity chefs, members of Congress, policymakers, entrepreneurs, and advocates for a day of learning, raising awareness, and funding research.
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University of Chicago: New Frontiers In Therapies For Celiac Disease
University of Chicago: Ida Noyes Hall
Chicago, IL
Saturday, November 23, 2019
The University of Chicago is presenting new avenues for Celiac Disease therapy. More information and a live link is coming up in a few weeks. For now, mark your calendars!
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FARE: Food Allergy Research and Education
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Contains: Courage FARE Campaign
The Contains: Courage™ Campaign is a transformative five-year fundraising and awareness campaign supporting families living with food allergies, and educating ALL communities about the disease. With your support, FARE will drive awareness, ensure that communities have the tools they need to spread the word about food allergies and raise a historic amount of funding for research, therapies and treatments to improve the quality of life of children and adults who are affected.
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FARE Boards
FARE is governed by a nine-member operating board known as the Board of Directors. FARE recently introduced two non-voting boards, the Board of Governors and the Board of National Ambassadors, to better position FARE to rapidly respond to the evolving landscape of food allergy and support the organization's growth.
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FARE's Impact Report
FARE works hard to ensure that every dollar they raise advances the mission; improving life and health for 15 million Americans with food allergies and providing hope for the promise of new treatments.
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Get Involved With FARE
Details in the link on how to become more involved with FARE!
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FARE Collaborator Program: Join FARE in making a difference!
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FARE spreads awareness about food allergies--
a public health issue that affects schools, businesses, and communities. Learn the benefits of becoming a FARE Collaborator and help make a difference in the lives of over 30 million Americans.
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More Articles, Books, Newsletters and Research
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Find a Food Allergy Professional in Your Area
The Food Allergy Counselor, Tamara Hubbard, LCPC
Wish you could find a counseling professional in your area that understands food allergies? Check out the Food Allergy Counselor website and Directory for a list of food allergy professionals in your area.
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Allergic Living: New York Passes Law Requiring Daycare Food Allergy Protocols
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In Recent News: CFAAR Retreat
SOAAR officially expanded to the Center for Food Allergy and Asthma Research (CFAAR) at Northwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children's Hospital of Chicago! At the retreat, CFAAR received a lot of input, suggestions and changes that need to take place to better food allergy and asthma communities.
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FACEBOOK USERS:
For those of you on Facebook, check out SOAAR's page by searching
The Food Allergy Experience.
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Allergy Amulet Blog:
Sulfites—The Next Big Thing in Allergy?
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TODAY: What does anaphylaxis look like? Mom raises awareness after child's allergic reaction
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Spokin: Chicago Food Allergy-Friendly City Guide
Also with: A Chicago Giveaway!
While the Windy City is famous for sports, architecture, a stunning lakefront, and yes, deep-dish pizza, it's also one of the most allergy-friendly cities. See the top-rated places shared by Spokin users.
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CNN: Girl's deadly reaction to toothpaste is extremely rare, allergist reminds parents
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The Food Allergy Experience
Written by Dr. Ruchi Gupta and Denise Bunning, The Food Allergy Experience provides a reliable source of information and advice in simple, easy-to-read terms. For those contending with food allergies, the book offers guidance and invaluable perspective. For friends, relatives, health care providers, teachers, and caregivers, the book will instill a better understanding of how food allergies impact life at home, at school, and in the community, helping them to more effectively assist children with food allergies.
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Real Simple:
Here's How to Prepare Kids With Food Allergies for Camp
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ScienceDaily:
New Therapy Targets Gut Bacteria to Prevent Food Allergies
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Apps, Food Allergy Friendly Companies, Videos
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Spokin's 2019 Allergy-Friendly Ice Cream Shops
The best way to beat the heat is enjoying your favorite ice cream. Nothing says summer like a delicious ice cream cone treat, and Spokin has you covered!
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Spokin Featured Content
Meet the Maker: Hungry Harry's
Harry’s parents, Sarah and Rob, not only manage his multiple food allergies and intolerances but they’ve had to learn to do it twice, having lived in 2 countries. Officially launching with 5 baking mixes that are Top 14 allergen and casein free, Harry is ready to share his food with us all!
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The Safe and Fair Food Company's
New Blueberry Cinnamon Granola
Add this Blueberry Cinnamon Granola to your cereal bowl, yogurt, ice cream or snack time for sweet moments to savor. Each handful is made with clean and vegan ingredients with a share of ancient grains. This Top 8 Free Granola is gluten free, non GMOm certified vegan and free from peanuts, tree nuts, milk, eggs wheat, soy, shellfish and fish.
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OWYN
Try these 100% plant based protein drinks. With high vegan omega 3, superfoods blend, and fiber, OWYN gives you only what you need, and nothing that you don't.
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Intentional Foods
Intentional Foods is a restaurant in Mesa, Arizona entirely free of the top 8 allergens. Not only is the food amazing, the atmosphere is warm and welcoming, just like the owners! Intentional Foods was created as a means to fill a gap in the food allergy community by proving a restaurant for caring and concerned parents.
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In a Matter of Minutes:
The Severity of Food Allergy with Steve Carell
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"This is what I know..." by
Susan Tatelli
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Northwestern University: Peer-to-Peer Videos
Dr. Ruchi Gupta and her team have developed peer-to-peer food allergy educational videos that can be shown in classrooms! There are three videos tailored to different grade levels with corresponding FAQ sheets, teacher guides, and discussion questions for use in classrooms. The videos will allow peers to better understand and support their food allergic classmates.
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The University of Chicago
New research, led by Dr. Cathy Nagler and Dr. Roberto Berni Canani, shows that healthy infants have intestinal bacteria that prevent the development of food allergies.
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Dr. Ciaccio has been selected to participate in a Phase 1 clinical drug trial for adolescents (ages 12-17) with peanut allergy that examines the safety, tolerability, and immune response to a sub-dermal (under the skin) peanut vaccine. Additionally, Dr. Ciaccio has been asked to participate in a Phase 3 clinical drug trial for young children (ages 1-3 years) with peanut allergy to assess the safety and efficacy of an epicutaneous immunotherapy (i.e. skin patch).
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Outside of clinical drug trials, Dr. Ciaccio is also conducting some of her own research which includes The University of Chicago’s Asthma & Allergy Biorepository. The biorepository is a bio-specimen bank looking to collect blood, saliva, and stool samples from individuals with- and without asthma and/or food allergies in the hope of helping researchers understand these conditions more clearly in the future. Additionally, Dr. Ciaccio would encourage all interested individuals to participate in the University of Chicago’s Allergy/Immunology Research Registry. This is a secure, online database utilized by Dr. Ciaccio and her colleagues at the University of Chicago to notify individuals of research studies they may be interested in and qualify to participate in.
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If anyone is interested in more information, they can reach out to Dr. Ciaccio’s research coordinator, Chris Omahen.
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Immunotherapy Studies at Lurie Children's Hospital
The Food Allergy Research Team at Lurie is the leading clinical trials team in the Chicagoland area participating in multiple immunotherapy studies for wheat, peanut, milk, multiple foods and other approaches. The purpose of the immunotherapy studyis to learn whether or not it can lessen the body’s sensitivity or response to an allergen, resulting in less severe or no allergic reactions. They are currently participating in DBV Technologies Epicutaneous (on the skin – via a patch) Immunotherapy studies. They are also participating in Aimmune Therapeutics Oral Immunotherapy (OIT) studies. Studies for Aimmune require ingestion of an allergen (peanut) in small doses that gradually increase over time. The Food Allergy Research Team is excited about the promising results presented for both OIT and Patch studies that are anticipated to be submitted to the FDA for approval later this year. The research team welcomes peoples’ interest in learning about future studies at Lurie Children’s.
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The FASE Program at Lurie Children's Hospital
Food Allergy Support and Education (FASE) hosts monthly Essentials of Food Allergy Workshops, topic-based workshops, and Kids’ Food Allergy Hangouts for patients and friends of Lurie Children's, giving children with food allergy opportunities to be with peers who share their experiences. The FASE Program is led by Sarah Boudreau-Romano, MD, allergist and food allergy mom. Register today for two upcoming Kid Food Allergy Hangouts presented by FASE (Food Allergy Support and Education) Program. Give your kids a chance to meet others going through the same experience.
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Introducing: Affinity Practice
Dr. Rhian Morcott
is a board-certified psychiatrist in Adult Psychiatry and Child and Adolescent
Psychiatry with over twenty years of experience, who recently opened a private practice, Affinity
Practice, in Lake Bluff, IL. She
provides personalized care with comprehensive treatment approaches including talk therapy, medications, integrative and lifestyle interventions. We are excited to share her information as a resource to our MOCHA community. For further inquires, please reach out with the contact information below.
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New to MOCHA?
Want to be part of our next ENews?
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We're a One-Stop Shop for All Things Allergies!
We've compiled research, articles, educational resources, and more. If you're new to to the food allergy community, visit our What Do I Do Now? page. Looking for helpful links? Check out our Resources page. Be sure to sign up for our ENews!
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Suggestions?
Do you have a suggestion about content we should add to our ENews or Website? Please let us know! We are not on social media, but we respond to every email that we receive.
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Contact Us!
Denise@MOCHAllergies.org
afieldthomp@aol.com
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Non-Allergic Food for Thought:
The world is
not
free of Milk, Egg, Tree Nut, Shellfish,
Peanut, Fish, Soy, Wheat, Seeds.
It is our job as parents to give our children the
Education,
Encouragement,
Experience
and
Enthusiasm
To get out there and live their lives to the fullest -
safely.
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MOCHA is a group of parents sharing information and supporting each other. MOCHA offers support, education, and friendship, to help make managing your child’s food allergies just a little bit easier. Check out our website for the most current news and resources. Click the sign up link above to be added to our email distribution!
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Disclaimer:
M.O.C.H.A. is not a professional or medical organization. It is a group of parents sharing information and supporting each other. The discussions, meeting minutes, handouts, speakers, agendas, and other products of our support group do not constitute medical and/or legal advice and should not be relied upon as such. Always discuss individual health questions and medical issues with a qualified personal physician.
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