Dear FER Community,
After the Winter 2021 cohort we will have over 160 grads of the course. In order to make your experience as a collective community a successful one, I am looking for your insights!
Our FER Team is considering what it would take to facilitate something similar for childhood disability networks and we would like your insights! What would YOU value from a research partner connection website? What would you find useful? What would encourage you to keep coming back to the website?
I would love to hear your thoughts and ideas, please send me an email (lukesbloggermom@hotmail.ca) or connect with me over Twitter (@FERCourse) to continue this conversation. I look forward to hearing from you!
All the best to you!
Rachel Martens
Research Engagement Strategist
Kids Brain Health Network and CanChild
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FER Course Check-In
February 23rd, 2021 | 7:00 to 8:00 PM EST
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You're invited to join a Microsoft Teams meeting!
This is a great opportunity to stay connected and meet FER Grads from all cohorts. We discuss an array of topics related to family engagement in research. Some of our conversations have been on compensation, research recruitment, and writing/updating your CV. We encourage you to join the monthly check-in on your computer or mobile app!
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Luke's Legacy Family Research Rounds
February 17th, 2021 | 7:00 to 8:00 PM EST
Applying research to life: a research symposium for patients and families interested in childhood disability research
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Join us on Wednesday February 17th at 7:00 PM EST for an informal conversation about Family-Researcher Partnerships.
We will be sharing our experiences, challenges, and opportunities. Come prepared to chat with other families and researchers!
For more information, please contact Kinga Pozniak or Rachel Martens at fer@mcmaster.ca.
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Let us brag about you!
Contribute to the FER newsletter!
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Calling all Winter 2019/2020 FER Grads!
Participate in a longitudinal evaluation on the FER Course!
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Interested in participating?
Contact Alice Soper at fer@mcmaster.ca to participate!
Need more information?
Click here to download the poster to learn more!
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Calling all Family Partners!
Represent the family perspective in the 2021 KBHN Virtual Conference planning!
November 8th - 9th, 2021
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The theme of the 2021 KBHN conference is Realizing change through partnerships and research innovation. The bulk of conference planning will be done over the next 4-5 months with bi-weekly meetings over the next few months. KBHN is recruiting two Family Partners to be involved in the conference planning committee. An honorarium will be provided to recognize your time and contributions.
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If you are interested in participating, please contact Rachel Martens at lukesbloggermom@hotmail.ca.
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Congratulations to our FER Grad (Fall 2019), Yvonne Brandelli, on contributing to the top 10 Research Advances of 2020! Her research on parents' reaction to their children's pain treatments and how to better support them will be beneficial to families!
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This Infographic created by Fall 2020 FER Grads, Mackenzie Salt, Shannon Pascoe and Rita Abdel-Baki, brings transparency to academic processes and pressures for potential research partners. The infographic illustrates these processes and pressures to support inclusivity of patient and family partners in research.
Click here or the image below to download the infographic!
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Click here to view more KT tools by FER Grads!
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Job Opportunity!
Director of Citizen Engagement Position for the
CHILD-BRIGHT Network
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The Director of Citizen Engagement leads the CHILD-BRIGHT’s Citizen Engagement (CE) Program and works to strengthen engagement across the entire portfolio of network activities (research, training, knowledge translation, communication, etc.).
Responsibilities at-a-glance:
- Serve on one of five members of the networks' Executive Committee
- Work closely with the CE Coordinator
- Commit to an average 7-8 hours/week
Application deadline: Friday, February 26th by 5:00 PM EST
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Apply now!
2021 KBHN-CASDA Practicum Awards
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The KBHN-CASDA Policy Development Practicum Award aims to encourage trainees from all disciplines and training programs to explore the policy dimensions of their work in the field of autism.
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Award: $2000 stipend support + registration fees to attend and present at the CASDA Leadership Summit 2021 and the KBHN2021 Annual Conference.
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Award term: March 1, 2021, to December 31, 2021
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Eligibility: Graduate students, postdoctoral fellows, and research associates from all disciplines interested in autism or developmental disability research
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Application deadline: Friday, February 19th
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Apply now!
2021 KT Innovation Incubator Grant Competition!
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The KT Innovation Incubator grant competition will award up to $12,000 to each of two winning knowledge translation research projects that aim to answer a research question related to knowledge translation and patient-oriented research.
Application deadline: Friday, March 12th
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All In: Creating Synergy in Pediatric Complex Care
Registration now open!
March 25th, 2021 | 10:00 - 3:00 PM MT
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Children’s Healthcare Canada will be hosting a virtual pop-up event in partnership with Alberta Children’s Hospital and Alberta Health Services! This specialized event will showcase and share practices that we know are working to help support these patients and families.
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Want to communicate your research better?
Register for this upcoming workshop!
February 17th, 2021 | 2:00 to 3:00 PM EST
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Register today for the workshop on Science Communication Workshop 3: Visually Communicate your Research!
- Gain an understanding of the eight-step Designs that Cell framework for creating scientific figures
- Learn about helpful design resources, including colour scheme generators, fonts, and free image repositories
- Understand key considerations for creating infographics to communicate your research
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Free and low cost education-based resources |
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Check out these new free and low cost resources for anyone, including graduate students, postdocs, and early career researchers. Resources include tools for:
- Writing/creating
- Photos, videos, and images for presentations
- Qualitative data transcription and analysis
- Collaborative work spaces
- Organizing literature and systematic reviews
- Teaching resources
- Networking/social media
- Graphic, image, model creations
- And much more!
Read through the comprehensive google doc HERE
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Recent Publications and Resources on Patient Engagement
Family perspectives of COVID-19 research
A team of child health researchers in Toronto formed a group of parent and clinician researchers to inform COVID-19 research for families and children. Parents shared their experiences, shifting roles, and routines during the pandemic in order to guide research priorities and understand the impacts of COVID-19 on their lives. The authors conclude that research partnerships between families and researchers may increase the relevance, applicability, and value of research findings to families during the pandemic.
Authors: Shelley M. Vanderhout, Catherine S. Birken, Peter Wong, Sarah Kelleher, Shannon Weir, and Jonathon L. Maguire (Research Involvement and Engagement)
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Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program
This article presents lessons learned from a Patient and Public Involvement initiative, a participatory program called Care and Future Prospects. This initiative helps young people with chronic conditions improve their social positions (e.g., education and employment). Lessons learned include practicalities to take into account at the beginning, involvement from the start, roles and responsibilities, support, flexibility and an open mind, and evaluation of process and outcomes.
Authors: Femke van Schelven, Eline van der Meulen, Noortje Kroeze, Marjolijn Ketelaar, and Hennie Boeije (Research Involvement and Engagement)
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Follow us @FERCourse
Contact us at fer@mcmaster.ca
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