National Pharmacare … my take on it
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Martine Elias, Executive Director
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"While the initial list of essential drugs would likely not include the myeloma drugs we need, these recommendations are hopeful, but only if the formulary to be put in place by January 1 2027 is a
comprehensive list and does not cater to the lowest common denominator
(ie, the formulary with the least amount of myeloma treatments for our community). At the end of the day, removing access barriers for all Canadians is very good and very “Canadian”. "
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Grant won in Sudbury by Dr Gopalakrishnan
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Can exercise speed the recovery of patients suffering from certain types of cancer? Dr Sathish Gopalakrishnan, a medical oncologist with the Northeast Cancer Centre at Health Sciences North (HSN) and an assistant professor with the Northern Ontario School of Medicine, wants to find out.
Money from the Northern Ontario Academic Medical Association will help him carry out the research. Researchers will study new advancements in clinical care that are expected to have lasting benefits for cancer patients in northeastern Ontario, HSN said in a release.
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The 2019 European Hematology Association (EHA) Annual Meeting
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We’ve just returned from the 2019 European Hematology Association (EHA) Annual Meeting where Prof Maria-Victoria Mateos (University of Salamanca - Salamanca, Spain) spoke of stand-out studies in multiple myeloma.
Prof Mateos begins by discussing the promising part 1 results of the CASSIOPEIA study looking at the addition of daratumumab to bortezomib/thalidomide/dexamethasone (D-VTd) versus VTd in transplant-eligible, newly diagnosed multiple myeloma patients. She also discusses some of the important messages from the FORTE and GEM-CESAR studies. Prof Mateos ends with the ELOQUENT-3 study in the relapse setting and also the COLUMBA study.
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The Dr Andrew R Belch Myeloma Education and Enriched Training (MEET) Grant
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There is still time to submit your application for The Dr Andrew R Belch Myeloma Education and Enriched Training (MEET) Grant if you will be participating at the 2019 American Society of Hematology Conference (ASH, Dec 7-10, 2019 Orlando, FL). Click below to find out more.
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Quebec Cancer Coalition Awareness Day
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On May 15
th
, Myeloma Canada attended the Quebec Cancer Coalition Event to raise awareness regarding the importance of accessibility to new therapies and cancer treatments. Julie Martel, patient and co-leader of the Quebec Support Group, and Olivier Jérôme, Myeloma Canada’s Director of Operations, had the opportunity to speak with elected officials and their teams, oncologists, and representatives from various cancer associations.
Danielle McCann, Minister of Health and Social Services also addressed the importance of personalized oncology medicine and her wish to promote better access to new treatments and research.
Thank you to the Quebec Cancer Coalition for organizing this important event.
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New Canadian National Cancer Strategy Announced
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On June 4, a modernized
Canadian Strategy for Cancer Control
was released by the Canadian Partnership Against Cancer (CPAC). This refreshed Strategy is a 10-year roadmap to improve equity in the cancer system and deliver world-class cancer care to all Canadians, while focusing on a sustainable healthcare system for the future.
Show your support!
- Like, comment and share the Partnership’s social media posts across Twitter and Facebook.
- Join the social conversation using the the hashtag #CDNCancerStrategy.
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What's New at Myeloma Canada
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2018 has been a banner year in the history of our organization. We celebrated the 10
th
anniversary of our signature event, the Multiple Myeloma March, and after 13 years, our Co-founder, Aldo Del Col stepped down from his position as Chair on the Board of Directors. It was Aldo's empathy and his understanding of our community’s needs that successfully positioned Myeloma Canada as an advocacy leader for patients’ rights. Today, Myeloma Canada stands out as a single platform for patients’ needs while remaining focused on improving patient quality of life.
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Are you registered for the 2019 Multiple Myeloma March?
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Take part in the 5km walk to raise funds for clinical research and to support advocacy for accelerated access to new therapies for patients impacted by myeloma.
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Your support has helped patients live significantly longer and more productive lives over the last 15 years. Because of you, people living with myeloma have access to many life-saving treatments that weren't available before..Join a March today and help keep the research going!
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Whiteboard video
Multiple Myeloma: First Relapse
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InfoVideo Series
What are the purpose of biphosphonates and when are they prescribed? Is prolonged use safe?
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Follow us on
Facebook
and
Twitter
to be amongst the first to see our videos.
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Myeloma Canada Wins the Celgene International ImpactHeme Award!
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We’re beyond thrilled to announce that Myeloma Canada’s
Myeloma Monitor
i
nteractive application
and
My Life. My Myeloma Online Resource Centre
were awarded Celgene’s ImpactHEME award for $20,000USD. The monies will be applied toward continuing our research and development of these important patient-focussed programs that encourage, promote and support the importance of shared decision-making – patients and caregivers being equal partners –
in their medical journey.
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The 2
nd
Annual Charity Golf Classic Was a Great Success
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Myeloma Canada’s 2
nd
Annual Charity Golf Classic took place on May 30
th
at the Summerlea Golf Club in Vaudreuil, Quebec. Good weather and smiles set the tone for this fabulous golf day...and for our cause! At the end of the evening, Myeloma Canada raised a total of
$23,285
!
We would like to thank all participants and sponsors for their support.
A special thanks goes out to Denis Potvin who, once again not only sponsored the event, but also raised $7,000 in donations that evening. Denis, your dedication and generosity is so appreciated.
See you all next year!
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Spotlight on Sharon & Jules:
First Line Treatment
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With new treatments and advances, a myeloma diagnosis doesn’t have to be an isolating experience. Learn more about Sharon and Jules' journeys.
To learn about treatment options and available resources,
join our community.
St
ay up to date on what's happening in the community and keep informed on the latest in disease management.
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Kingston, ON
Sunday, July 7, 2019
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Michael’s Back Door Golf Tournament
35
th
edition
When
: Sunday, August 18, 2019
Volunteers and sponsors needed!
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Support Myeloma Canada’s mission in accelerating access to better care for
Canadians impacted by myeloma. Your support and generous donations help to further important medical research and advancements currently taking place in the myeloma field. Moreover, your contributions enable us to provide essential information, programs and services to our Canadian myeloma community.
Find out how you can help by clicking on the button below or by calling us 1-888-798-5771.
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Follow us on social media for the most up-to-date information and resources:
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