Welcome to the October 2019 edition of our nbmtLINK
E-nnouncement

There is still time to register for our Survivorship Webinar, set for tomorrow Oct. 29 at NOON EST.

In case you missed them!



 Meet George Bailey, our Guest Blogger
on his CAR T experience

Some of the other pearls from Jennifer's interview with George.
(Seen to the left with his wife Barbara)


  • Staying positive. No one wants to be around a complainer.
  • Educate yourself.
  • Read; ask questions.
  • Find other people with similar experiences.
  • Double check and validate. My wife and I received multiple opinions from several doctors and cancer centers. 
  • Be your own advocate.
  • Don’t be shy. 
  • Pray.

Our friends at Triage Cancer also offer free monthly webinars on cancer survivorship beyond diagnosis. Their webinars are open to patients, survivors, caregivers, advocates, and health care professionals.

Check out their FREE upcoming programs:
       

Whether you are a caregiver for a loved one with cancer, a health care professional, or an individual diagnosed with cancer who cares for others in the cancer community, this webinar will provide practical tips on how you can care for yourself while caring for others, and manage feelings of exhaustion, burn out, and compassion fatigue .     

A cancer diagnosis and treatment can have a long-lasting impact on your finances. This webinar will discuss practical tips to reduce the financial impact of a cancer diagnosis, how to maintain or rebuild financial health, and where to find financial assistance.



Marrow Masters
Podcasts

We are hard at work on our next season called Busting Marrow Myths

In the meantime, check out our recent inaugural podcast series focused on educating patients, caregivers and health care professionals regarding Chronic Graft Versus Host Disease (cGVHD).

cGVHD Series Sponsored by Incyte Corporation

Want to show your support of the nbmtLINK and get cozy in some great new apparel?
Wearables worth wearing!

Check out Cloz Talk.

A portion of all proceeds support nbmtLINK.


Do you Have an Upcoming
Birthday or
Transplant Anniversary?

Want to support our efforts to help other patients and caregivers navigate this journey?



Airbnb’s Open Homes Program

This unique program, offers medical patients and their caregivers free housing when they travel for treatment. Thanks to the generous community of Open Homes hosts, over 35,000 people have found temporary housing through this program.


Too often, the cost of travel and accommodations can be a barrier to receiving life-saving treatment. Recently, our friends at Bone Marrow & Cancer Foundation and Airbnb Open Homes partnered to help people traveling to their center for medical care. That’s why we’re reaching out. We wanted to know if you can offer a few nights of free housing to families and caregivers through the Open Homes platform.


Testimonials
“All I could do was cry tears of thankfulness! It took a lot of stress away from an already stressful situation. For my radiation treatment Open Homes was definitely a big part of my village, because it definitely took a village! My husband has used all of his time off for all of my surgeries and treatments, so having this financial burden lifted from us was amazing. I don’t know what we would have done if it wasn’t for this program. -BMCF guest

“I was anxious, because I’d never offered up a home to a stranger. But when I opened the door and saw Melissa, I knew in a second that I was absolutely doing the right thing.” -Open Homes host
How We Help Others!
We are a phone call away for patients and their loved ones. From one on one peer support to scheduled call series and webinars, we are ready to ease your burden.
Patients, caregivers and health care professionals are amongst those we aim to help through our valued resource books, programs and one on one calls.
We simply cannot do it without the support of corporations, foundations and individuals willing to make a difference in the lives of others.
We Invite You to Become an nbmtLINK Partner!
Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886. Want a free bookmark which lists our many Link Partners? Let us know and we will send you one!

American Society for Transplantation and Cellular Therapy (ASTCT)
Barbara Ann Karmanos Cancer Institute
Blood and Marrow Transplant Program at Northside Hospital
Blood & Marrow Transplant Program, The Sidney Kimmel Cancer Center at Thomas Jefferson University
Center for International Blood & Marrow Transplant Research (CIBMTR)
City of Hope 
Dana-Farber/Brigham and Women's Cancer Center
DKMS US
Duke Adult Blood & Marrow Transplant Program, Duke Cancer Institute
Froedtert & the Medical College of Wisconsin health network
Henry Ford Cancer Institute Stem Cell Transplant Program
Incyte Corporation
Memorial Sloan Kettering Cancer Center
Meredith A. Cowden Foundation
Nebraska Medicine
Oregon Health & Science University Knight Cancer Institute
Roswell Park Cancer Institute
Seattle Cancer Care Alliance
Siteman Cancer Center at Barnes-Jewish Hospital/Washington University
School of Medicine 
Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center
Spectrum Health Cancer Center
The Leukemia & Lymphoma Society
University Hospitals Seidman Cancer Center
UPMC Hillman Cancer Center
Vanderbilt Ingram Cancer Center
Thank your for being a friend of the nbmtLINK. We simply could not do this without you. If you can support our efforts at this time, we thank you in advance. Every dollar helps..

Sincerely,
Peggy Burkhard
Peggy Burkhard
Executive Director
(248) 358-1886
National Bone Marrow Transplant Link