$50 early conference registration ends 11/1/19
Save $25 and register today
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Have you heard the Big News?
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Triangle Down Syndrome Network has evolved into the North Carolina Down Syndrome Alliance (NCDSA). This change allows us to extend services throughout the state of North Carolina. Our vision is to expand the NC First Call Program, educational programs, and support programs across North Carolina by serving all of North Carolina’s 100 counties not already being served by local Down syndrome support groups. We are committed to establishing local community groups in under-served areas and partnering with local non-profits, ensuring every baby born in North Carolina with Down syndrome receives a joyous welcome and parents receive vital support and resources. When this happens, everyone benefits.
As of January 1, 2020, the transition to the North Carolina Down Syndrome Alliance (NCDSA) will be complete. The expansion will continue in early 2020 and include a three-phase roll out: medical outreach, identifying families of individuals with Down syndrome, and implementing the NC First Call program in counties not currently served by local Down syndrome support agencies. Newly formed local community groups will begin to serve families in other geographical areas while families currently served by the former TDSN will belong to the Triangle Community Group.
It is an exciting step for the North Carolina Down Syndrome Alliance (NCDSA). It is our goal and vision to empower, connect, and support individuals with Down syndrome and expand our partnerships with the medical community and other community organizations. We must empower and equip individuals with Down syndrome to reach their unlimited potential. People with Down syndrome can be, and are, productive members of society and should not be defined by the fact that they have Down syndrome. It is our goal that others see beyond the characteristics of Down syndrome and see each person for who they are.
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Online giving remains
open through
November 15th
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The 2019 Triangle Buddy Walk was held on Sunday, October 6th and was a huge success. The Buddy Walk is our largest event and fundraiser of the year. The funds raised allow us to reach numerous populations in addition to providing support to new and expectant families, medical outreach packets to health care providers, training to educators on best practices, and social and networking opportunities to our families and individuals with Down syndrome. Your support keeps us going throughout the year.
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Saturday, November 16, 2019
8:30 a.m. - 4:30 p.m.
Northern Wake Tech Campus
6600 Louisburg Road
Building E
Raleigh, NC 27616
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The 2019 North Carolina Down Syndrome Conference covers the lifespan of an individual with Down syndrome and is a valuable resource serving all audiences. The conference includes a plenary speaker, resource exhibits, networking lunch, and 18 breakout sessions (three presented in Spanish) that bring information and resources to families, educators, healthcare providers, and older teens and adults with Down syndrome.
November 1st - $50 early registration ends
November 2nd - $75 general registration begins
November 10th - online registration closes
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La Conferencia sobre Síndrome de Down de Carolina del Norte 2019 aborda todos los aspectos de la vida de una persona con síndrome de Down y es un recurso valioso que sirve a todo público. La conferencia incluye un ponente, exposiciones de recursos, almuerzo para creación de redes de contactos y 18 sesiones grupales que brindan información y recursos a familias, educadores, proveedores de atención médica y adolescentes mayores y adultos con síndrome de Down. Se presentarán tres sesiones en español.
$25 por persona para las sesiones en español
La inscripción en línea finaliza el 10 de noviembre
GRATIS para adolescentes mayores y adultos con síndrome de Down
El almuerzo está incluido en la inscripción
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Cathie Tutka has been involved in the local Down syndrome community since her daughter Melanie was born in 2001. You may not know Cathie personally, but many of you have benefited from her years of hard work as the coordinator of the Buddy Walk t-shirts. Cathie prefers to work behind the scenes although her work can be seen being worn by literally thousands of Buddy Walk participants throughout the years! Thank you Cathie!
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North Carolina Innovations Waiver
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"The NC Innovations Waiver is a Federally approved 1915 C Medicaid Home and Community-Based Services Waiver (HCBS Waiver) designed to meet the needs of Individuals with Intellectual or Development Disabilities (I/DD) who prefer to get long-term care services and supports in their home or community, rather than in an institutional setting." What does that really mean? The Innovations Waiver is designed so people with I/DD can live at home and participate in their community. People with disabilities are no longer housed in the costly institutions of the past. Funding is available for supports and services to make up for the needs of individuals to live in the home of their choosing. However, North Carolina legislators have not made funding the NC Innovations Waiver a priority and over 10,000 people are on the "registry of unmet needs" also known as a waiting list.
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Families across the state are coming together to work to change that. Please consider getting involved. Information about the North Carolina Innovations Waiver Action Team can be found on their
Facebook Page
. The first step is collecting information about who is on the waiting list, how long they have been on the waiting list, and the catchment area they live in.
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Save the Date: Parent Mentor Training
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Are you the parent of a child with Down syndrome under the age of 8 and would like to mentor a new family as they begin their journey? If so, please save the date for the NCDSA Parent Mentor Training. For new and expectant parents, any opportunity to connect with other parents who have had similar experiences can be invaluable. NCDSA will hold a training for parents interested in becoming mentors. Potential mentors must attend the full training and be willing to commit to consistent contact with new families for up to one year. Families who have experience with adoption, medically fragile children, or are bi-lingual are encouraged to participate.
Training will be held in Raleigh and advance registration will be required. For more information, please contact Mahala Turner, NCDSA Family Support Specialist, at
mahala@ncdsalliance.org
.
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Upcoming Events
November 13th: Dads' Night Out
Motorco
(Durham) 6:00 p.m.
December 7th: NCDSA & Gigi's
Holiday Party Colonial Baptist Church (Cary) 10:00 a.m.
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Connect with NCDSA on Social Media
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Stay current and in the know with NCDSA
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NCDSA Board of Directors Meetings
Capitol Financial Solutions | 8816 Six Forks Rd. | Suite 301 | Raleigh
Third Monday of the month | 6:30 p.m. - 8:30 p.m.
November 18th | December 16th
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Together We Can Do So Much!
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Why support the NCDSA? Your generosity helps us embrace new families with welcome baby bags and provide expectant mothers with up-to-date resources.
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Among other things, your support helps to educate healthcare professionals on how to deliver a diagnosis of Down syndrome and provide special healthcare guidelines for people with Down syndrome. Whether a monetary donation, volunteering, or in-kind support, we thank you!
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