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June 2019 Newsletter and Calendar
Take Our Community Survey and Help Us Serve You Better
Knowing our community more deeply means serving our community more effectively. Please take ten minutes to complete our survey. It will help us better understand your needs, what's working, what could be improved, and where we may have gaps in our offerings.
We hope to discuss the survey at the upcoming Town Hall on June 8th, including sharing some summary data from early responses. 
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Annual PD Active Town Hall is Next Saturday - June 8th
The PD Active Town Hall is nearly upon us. Join with our energetic organization as we plan together for the next year (and enjoy coffee with old friends and new). Our town halls have given the board of PD Active great guidance and we anticipate that this year will be no different.

This June we will be using an online survey to stimulate participation prior to the meeting. Click here to submit your ideas. We will also have paper surveys (and assistance) for those of us that have difficulty going online. The event is open to all. See you there!

Have an idea that you think might be overlooked? Let us know beforehand at info@pdactive.org.
Date : Saturday, June 8, 2019
Time : 10:30 a.m.-12:30 p.m. ​
1924 Cedar Street, Berkeley, CA 94709
Trouble registering? Contact us at info@pdactive.org or (510) 479-6119.
PD Active Monthly Calendar

The calendar includes classes initiated with financial support from PD Active.

Save the Dates
Forum on Sleep Issues with Dr. Liza Ashcroft on 9/14/2019 at 10:30 a.m.
Annual Picnic on 10/6/2019 at 12:30 p.m.
 Forum with Angela Rusher, PT on 1/11/2020 at 10:30 a.m.
In The News
New Board President and Executive Committee
Chad Zucker, board member and YOPD group coordinator, has become the PD Active Board President by unanimous vote of the board. PD Active wishes to salute Mary Pat Boersma, the outgoing president, who led the board with devotion and determination over the last three years. She steadied the ship and worked with others on the board to move PD Active to become a vibrant organization serving our community.  We are grateful that Mary Pat will stay on the board.  

PD Active is pleased to introduce the newly formed executive committee: Board President Chad Zucker
Treasurer Norm Frankel
Secretary Judith Lubman
Past President Mary Pat Boersma
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RSB Albany, Star Affiliate
Rock Steady Boxing (RSB) Albany was named "Star Affiliate of the Month" for May 2019 by the national RSB organization. PD Active was prominently featured for how it provided seed funding to help launch the program in 2017.
Community Updates
New Class: PWR! Stations and Gait/Agility Training
Petra Fibrichova recently reconfigured her Friday class to be a next-level workout that will build on the Tuesday PWR! Moves ® class. The new class is also based on the Parkinson’s Wellness Recovery program -- a functional, research-based exercise developed for people affected by PD.

Each class starts with a vigorous session of seated and standing PWR! Moves ® and continues with rotating through PWR! Stations focused either on strength and mobility, or gait/agility training aimed at fall prevention. 

Day and Time: Fridays 1:30-2:45 p.m.
Location:  The Yoga Room, 2530 San Pablo Avenue, Berkeley
Fee: $15 for drop-in
Info:  fibrichova@gmail.com, (510) 520-4523
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SF Dance for PD ® Classes at Grace Cathedral June & July
Alonzo King, along with his LINES Ballet, has been chosen to be the Artist-in-Residence at Grace Cathedral. Starting June 13th, their Dance for PD ® class will be held at Grace Cathedral for six weeks only.

This is a unique opportunity for the PD community. The class is free and open to all. For more information, visit https://linesballet.org/education/dance-for-pd/.
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5th World Parkinson Congress - Kyoto, Japan
More than 3,000 people from 60+ countries are expected to attend the upcoming World Parkinson Congress (WPC), including PD Active community members.

WPC 2019 will host an international, interdisciplinary forum showcasing the most important developments in the world of PD. As medical advances continue to accelerate, the goal of the congress is to advance an all-encompassing approach to the treatment of Parkinson’s by bringing together the full spectrum of those who serve the Parkinson’s community and those who live with PD. The congress will be from June 4-7, 2019.
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Opportunity to Support the CA PD Registry
The California Parkinson’s Disease Registry was approved back in 2017 with funding from the state legislature. Version 1.0 of the registry is already collecting useful data. In order to continue the registry and enhance it, the legislature needs to approve $10 million in annual support. The state assembly has already approved this and very soon the assembly and the senate will be working toward an agreement on a final bill. 

State Senator Nancy Skinner is on the committee that determines whether the $10 million will remain in the budget or not. If you wish to show support for the registry and the needed annual funding, you can contact Senator Skinner's office at (510) 286-1333 or senator.skinner@sen.ca.gov ASAP to express your support.
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Join Our Mentoring Program
The PD Active Mentoring Program is a volunteer peer-mentoring program in the East Bay. The program directors link recently diagnosed people (and care partners) with a trained volunteer mentor, who has a few years of experience with PD, to help better meet the challenges of the disease. Being a mentor involves a commitment to have three conversations with a newcomer over about three months.

If you are recently diagnosed and interested in participating or were diagnosed a few years ago or more and interested in becoming a mentor, please review the Mentoring Program Newcomer Guide for program details and to sign-up.
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Don't Forget to Carry Emergency Contact Info
Here is a handy guide for preparing emergency medical information. We urge all community members to prepare this information and keep it accessible and on your person at all times. Above all keep the name of the person to contact with your health care card. 

If you have an iPhone you should fill out the   Health app that comes with the phone. This app can be used in emergency even if the phone is locked.

If you have an Android phone, here are   instructions for adding emergency info to your lock screen.

Thank you, Donors
Lance Batten
Elaine Binger
Judith and Stanley Lubman in memory of Walt Gillfillan
Tom and Sheila McCune
Oakland Center for Spiritual Living
How to Donate
PD Active is a 501(c)(3) organization. Contributions are tax deductible.
Tax ID: 26-3302461

We rely on you, our generous PD Active members, and your friends and family members, for our core financial support. It's easier than ever to help:

  • To donate by credit card
  • To donate by postal mail: PD Active, P.O. Box 9246, Berkeley, CA 94709
  • To donate by PayPal

Use Your IRA : You no longer need to wait until the end of the year to distribute your required minimum distribution (RMD) from your IRA. A quick reminder that if you are over 70 1/ 2 you are eligible to use your RMD to make tax-free donations to qualified charitable organizations. No gift is too small, so please keep us in mind when evaluating your IRA.

Contact Judith Lubman at  development@pdactive.org   or call (510) 479-6119 for other types of donations such as:
    
  • Recurring credit card donations
  • Stock or Donor Advised Funds
  • Planned Giving - Property or other assets through your will or estate plan
  • Automobile
PD Active Activities, Descriptions & Locations

PD Active Calendar: www.pdactive.org/calendar/

PD Active Class Information: www.pdactive.org/programs/

PD Active Support Group Information: www.pdactive.org/support-groups/
Local Classes for People with PD

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 www.pdactive.org - (510) 479-6119 - info@pdactive.org