The article Courtney Sebold, Chromosome 18 Clinical Research Center's Genetic Counselor, published this month was an informative piece and well received.  In case you missed it, you can view the article, Incomplete Penetrance and Variable Expression, in its entirety here. We were pleased to have representatives from St. Luke's Lutheran Health Ministries tour the Chromosome 18 Clinical Research Center this month.  If you are interested in a tour, please see dates and contact information under Upcoming Calendar Events near the end of this newsletter.

If you missed our Chromosome 18 Live Facebook Event presented by Self-Advocate, Becky Hunt, you can view it here. Be sure to tune in to the May Facebook Live Event, May 18th at 1800 (6:00 p.m. CST), host to be announced soon on Facebook.

New name - nothing's changed! We're celebrating the 25th Anniversary of the Chromosome 18 Annual Conference this year under the new name - Chromosome 18 Decoded. The 2018 Chromosome 18 Decoded will be held at the   Renaissance Baltimore Harborplace Hotel   from Monday, July 2nd through Wednesday, July 4th in Baltimore, Maryland.  

REGISTRATION CLOSES JUNE 11, 2018

During the conference, we have several fun-filled evenings just steps from the hotel on the vibrant, beautiful, and historic Baltimore Harbor for you to enjoy after the day's sessions. Take in the sights and spend time relaxing while enjoying the company of other conference attendees!

Events Registration is separate from Conference Registration this year.  All event registration must be completed online, prior to the conference. 

There will be NO on-site events registration this year.

On the evening of July 4th , we will be celebrating the culmination of our Chromosome 18 Decoded with a  three-course meal, awards presentation, silent and live auctions, lots of dancing, and even fireworks at the 25th Annual Starfish Dinner & Dance. Tickets for unreserved seating are included in the conference registration.  All others may purchase tickets here - a perfect opportunity for anyone not attending the conference to be part of our special event.

Now is the time to start thinking about sponsoring a VIP Reserved Table for the Starfish Dinner and Dance! Raise at least $1,500 and  you'll be able to pick your choice of ballroom table that seats 10,  choose how you would like to be recognized by selecting your table name and receive early VIP venue access. Click   here   for more information on this special fundraiser! 

Not attending the conference, but still want to participate? 

Raise at least   $1,500  and be recognized with a table in your name!

Be on the lookout for a separate 25th Chromosome 18 Decoded email with the opportunity to sign up for various volunteer spots before and during the conference.  Also, included will be a sign up link where you can list the items you would like to donate to our Conference Silent Auctions. Keep in mind, you don't need to attend the conference to participate in the silent auction. We love receiving items from all over the world, providing a diverse silent auction offering and raising funds for Chromosome 18.

May 6th - Starfish Scramble  - Topgolf, Houston, TX - 2:00 p.m. to 5:00 p.m.

May 10th - Chromosome 18 Clinical Research Center Tour - San Antonio - 11:30 a.m. to 12:30 p.m.  Contact office@chromosome18.org for more information