ARE YOU CHOOSING TO LIVE YOUR BEST LIFE? 

We promised you 2019 was the year of the Caregiver and how take care of yourself through the ups and downs. Check out an information and advice packed guest blog from HH parent, warrior and hospice and palliative care nurse, Cadie Olmstead here. 
MEET HH HEROES!



new International Outreach Coordinator
as she describes her 21 yr HH journey

Hope for HH is grateful for your time, talent and stories! Get involved here. 
THANKS FOR WALKING WITH COLBY!



Thanks to Kathy Jensen, her family and their extended community for making the the 2nd Annual Walk with Colby another huge success benefitting Hope for HH as well as Bridger Brigade Memorial Foundation. Mark you calendars for Saturday, April 27 and the National Walk for Epilepsy. Plan to walk for HH wherever you are! 

P.S. Awesome 10th Anniversary T-Shirts coming soon with 100+ HH patient names!
FUNDRAISE FOR HOPE!

Thanks to all our friends who have celebrated their birthday or another special occasion with a fundraiser for Hope. From top L to R :  Kayla, Shannon, Megan, Jaci, George, Lisa, & Tanner.

What special occasion will you commemorate by raising funds for HOPE? 
Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

DO YOU GET IT ALL?