The Canadian Association of Schools of Nursing (CASN) PEOLC Education Interest Group provides nurse educators with a forum to come together in the spirit and purpose of establishing a Community of Practice to advance professional PEOL nursing education through activities of teaching-learning, conducting inquiry, exchanging ideas, and providing relevant recommendations to CASN.
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We meet three or more times a year by virtual means provided by CASN's conferencing system. We are a diverse group of nurses with a passion to help raise awareness about the Integration of a Palliative Approach to care within nursing education and health care. Essentially, we are committed to helping to prepare the workforce to provide excellent care for the dying person, loved ones, and family.
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Bill C-277: The National Palliative Care Framework is being developed by the Palliative Care Unit at Health Canada. The online consultative process has been completed. The group developing the framework meet in September with people from across all the groups of health care providers, family caregivers and patients. The framework is scheduled to be submitted by December 6, 2018.
In the past months there have been a number of mass shootings. This can be particularly stressful for children and youth. Canadian Virtual Hospice has a great website
www.KidsGrief.ca
. Virtual Hospice offers free monthly webinars, and provides resources to support adults supporting kids. Andrea Warnick leads the webinars and provides one-on-one face to face and telephone consultations.
www.andreawarnick.com
CONGRATULATIONS to Holly, Lori and Coby - their manuscript was accepted and should be in the next issue. The reference will be: Rietze, L., Tschanz, C., & Richardson, H. R. L. (Accepted). Evaluating an Initiative to Promote
Entry Level Competence in Palliative and End-of-Life Care for Registered Nurses in Canada.
Journal of Hospice Palliative Nursing.
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Looking at the perspectives of Canadian palliative care nurses on the ethics of medical assistance in dying:
Dr David Wright and his team are conducting a national research study examining the perspectives of Canadian palliative care nurses on the ethics of medical assistance in dying. We are interviewing Canadian nurses who work in a variety of palliative care settings and who hold clinical, educational and administrative roles. Data collection has been ongoing since July 2017 and we have spoken to many nurses across the country. We are still interviewing participants and would be particularly interested in speaking to palliative care nurses from Nunavut, Yukon, Northwest Territories, Saskatchewan, Manitoba and Newfoundland. If you are interested in hearing more about our study, please email our Project Coordinator, Lisa Chan, at
MAiD.Nursing@uottawa.ca
.
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Integrating a Palliative Approach
Nursing Evidence and Leadership (iPANEL) iPANEL has 2 ongoing studies and 2 studies that have recently finished data collection
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Integrated Palliative Approach to Care in Residential Care (iPAC-RC):
The research will evaluate innovative practices used in long term care at end of life. Building on previous research and collaboration, care competencies, practices and relationships will be evaluated in a larger quality improvement project being implemented in Island Health. We anticipate outcomes to include developing evidence-informed recommendations for integrating and scaling up a palliative approach into LTC facilities, creating practice support tools to facilitate transitions into the care journey, and developing an evaluation framework including outcome measures and benchmarks.
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Integrated Palliative Approach to Care in the Inner City (iPAC - IC):
Current models of palliative care have largely not been designed to serve populations made vulnerable by poverty, homelessness, and discrimination. For those people, death and dying, while sometimes occurring in specialized palliative care settings, is more likely to occur in acute care, or, people die alone, outdoors, on the street or in vehicles, or in shelters or transitional housing cared for by workers who are highly compassionate but have limited training, resources, and support to ensure quality palliative care. These service providers are in the best position to identify, support, provide, and facilitate access to palliative approaches to care for vulnerable cancer patients because of their proximity to, and established and trusting relationships. This study combines inquiry and action to capacitate inner city providers to integrate a palliative approach to care for their clients living with chronic life-limiting conditions, including cancer. This means adapting principles of palliative care (i.e., alleviation of symptoms, advance care planning, psychosocial support, quality of life) to reflect the expertise and resources of social care providers, and embed these principles into care provision where people live in the community.
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Integrated Approach to Palliative Care in Acute Care (iPAC-AC):
Conducted at 1 acute care medical unit in Fraser Health and facilitated on the unit by 2 clinical nurse specialists who play a central role in knowledge translation in Fraser Health, have contact with multidisciplinary team members, patients and families, and who are responsible for facilitating practice change in acute care. The project was guided by the Knowledge-As-Action Framework, which was specifically developed to facilitate a practice-oriented collaborative approach to knowledge translation (KT) at the point-of-care. Analysis is nearing completion.
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Supporting Family Caregivers of Seriously Ill Patients at home:
The Carer Support Needs Assessment Tool (CSNAT) Intervention: Providing care can be both challenging and rewarding. Given their important contribution, we designed a study that documented and observed the quality of life of caregivers who were providing care to a seriously ill friend or loved one. We assessed family caregivers’ emotional and physical well-being during their time as a caregiver. We asked about existing support networks, as well as their satisfaction with healthcare provided. These questions will help us understand family caregivers’ well-being as it relates to the healthcare team. This was done in concert with an RCT component to determine the effectiveness of The CSNAT Approach in 9 home care offices on Vancouver Island. Qualitative interviews, focus groups, and audio clips were collected around the use of The CSNAT Approach in practice. Combining this qualitative component with that of our UK colleagues we have created a training package for Canadian practitioners. The CSNAT Approach Training consists of; Learning Unit 1: A practitioner’s guide, and Learning Unit 2: An implementation toolkit for organizations. Currently this work is nearing completion and soon will be available upon request. Analysis is still underway for the other research findings.
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Conferences and education
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This is Carolina and her husband. Carolina has pancreatic cancer. She travelled to Mexico from Bolivia for treatment, a trip funded by her colleagues and community members.
I met
Carolina at a church service where she kindly offered to
translate for me. One especially sweet experience was a visit to her home a few months after our first visit. Much weaker now, and quite homesick, she was thrilled to be introduced to her hometown via Google Maps. With absolute delight, she walked me (
virtually)
through the streets of her
neighbourhood!
Sacred moments.
Photo by Kath Murray
Permission by Carolina
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Educational resources:
Finding resources to support you as an educator
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Competencies
Across Canada three provinces have been working on interprofessional and discipline specific competencies related to hospice palliative and end of life care.
- Nova Scotia was the first to complete their competency document. You can access the competencies at https://library.nshealth.ca/ld.php?content_id=34202519
- British Columbia is in the midst of finalizing their document which will be available on the BC Center For Palliative Care website in September.
- Ontario update from Tara Walton: In support of Area F in the OPCN Action Plan (2017 – 2020) and the goals outlined in the province’s Declaration of Partnership and Commitment to Action, the Ontario Palliative Care Network (OPCN) established a Provincial Education Steering Committee (PESC) to develop recommendations for the competencies required for health care providers providing palliative care. Importantly, this work will complement both the Palliative Care Quality Standard and Health Service Delivery Framework recommendations. In reviewing existing work focused on palliative care competencies, the PESC identified the development of a Palliative Care Competency Framework by the Nova Scotia Health Authority (NSHA). Recognizing the rigorous and comprehensive process that was implemented to develop their framework, the PESC elected to leverage both their framework and their development approach, and adapt this to the Ontario context. The NSHA had used the Irish Palliative Care Competence Framework as a starting point, and had adapted this for Nova Scotia by aligning with Canadian documents (such as the CHPCA norms of practice), and then validated the discipline specific competencies with front line staff and provider colleges/associations. The PESC adapted the document to the Ontario context, and has engaged the colleges and associations representing the various disciplines involved in the delivery of palliative care in a validation process. The relevant sections of the framework were sent to stakeholder organizations with a request to review and validate the competencies, as well as to make any necessary changes to ensure they reflect the Ontario context. Feedback from colleges/associations have been collated and synthesized, and will be sent back to the same organizations for their endorsement. The aim is to have the final framework completed by the fall of 2018. For more information or to provide feedback, contact Tara Walton, Tara.Walton@cancercare.on.ca.
Simulation activities
Holly Richardson and colleagues are working on a number of simulation activities! Keep your eyes open and attend the upcoming CASN meetings to hear more in the coming months!
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"Art-Works": Meaning and Celebration of Life
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Happenings on the home front
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- Being Mortal by Atul Gawande is an excellent book with a new documentary.
- Creative commons for humour about teaching.
- Dr. Kathy Kortes-Miller, a social worker from Lakehead University, published her new book, “Talking about Death Won’t Kill You”. Her Ted talk can be found on YouTube. Kathy is an advocate for bringing death to the table, talking, wrestling with and laughing about death.
- Eve Joseph, who was a counsellor for many years with Victoria Hospice, has published her book, “In the Slender Margins”. Although this is not a new book on the market, it is WELL worth reading. She is an artist with words, images, quotes...
- "Extremis" (Netflix) is a good documentary for use in class, specifically around advance care planning, goals of care conversations, end-of-life, ethical issues, moral distress, and other concepts.
- Article on nursing and compassion: https://jcompassionatehc.biomedcentral.com/track/pdf/10.1186/s40639-015-0015-2
- Ballesteros, M., Centeno, C., & Arantzamendi, M. (2014). A qualitative exploratory study of nursing students' assessment of the contribution of palliative care learning. Nurse Educator Today, 34, e1-e6. https://doi.org/10.1016/j.nedt.2013.12.010
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