Hope For Hypothalamic Hamartomas - February 2020
What Will Be Your Impact on #RareDiseaseDay?
Hope For HH has joined forces with the over 400 million people globally who are living with a rare disease. We stand together with these individuals and health care advocates around the world for Rare Disease Day® on February 29. Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.

Everyone can have an impact whether pledging
your time, skills, voice, or dollars to support Hope For HH​.

According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 people in the United States. There are more than 7,000 rare diseases currently identified and approximately 90% of them are still without FDA-approved medical treatments.
Make a Donation
We are asking patients, caregivers, friends and family to stretch by donating $5, $10, $25, $50, or $100. When you donate to Hope For HH , you are ensuring a brighter future for our loved ones with hypothalamic hamartomas. With your support, we are able to provided patients and families with support, organize family forums, push for HH specific research, and host international professional symposiums.


Raise Your Hand & Take Action
Volunteering is good for your health, your happiness and your HH Community. By volunteering, you can give something back, make a difference to the people around you, develop new skills, and learn more about issues affecting the HH community.

Take the first step and complete the Volunteer Inquiry Form.
Rare is many - rare is STRONG - rare is PROUD!

#ShowYourStripes on social media to show your solidarity with the rare disease community.




About Rare Disease Day
Held the last day of February each year, Rare Disease Day is an annual observance to raise awareness for 400 million people affected by rare disease globally. This year, you can help raise awareness for the cause and shine the light on people living with HH by making a donation to support HH research. Please donate today!
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org