Sharing Resources for Families of Children with Special Health Care Needs
THIS ISSUE: Many families in the U.S. recently navigated the transition from summer to school year. Families of children with special health care needs and disabilities often have multiple transitions in the pipeline. This issue of the eBlast shares resources for a variety of types of transition.
For a place to start, check out this collection of resources on transition planning. Resources are
divided by audience: general audience, parents, professionals, and students.
Check out this webinar archive from the Pacer Center to learn how new ABLE Accounts allow families to save up to $15,000 per year for their child without affecting their eligibility for Supplemental Security Insurance (SSI) or Medicaid. For more, check out the
ABLE National Resource Center website.
From the comfort of your own home, find a transition planning tool or a document that explains a transition-related policy or law. This online resource library--and also checkout the
Research Library--shares resources, guides, and toolkits to help people with disabilities and older adults exercise their Right to Make Choices.
Although Vermont may not be the state in which you live, check out this recently released Transition Toolkit by the Vermont Family Network. It is full of information for families and youth no matter where you live! Also check out their upcoming webinar on transition to adulthood.
This page from our partner, Got Transition, defines health care transition and has a set of frequently asked questions answered by experienced youth, young adults, and parents.
The National Center for Supported Decision Making wants to hear from you! Share your family experience using supported decision making to assist youth or adults manage their lives and make informed decisions. Use the story collection form or contact Morgan Whitlatch at
[email protected].
Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities. We promotepartnership with families--including those of cultural, linguistic and geographic diversity--in order to improve healthcare services and policies for children.
