Resource eBlast January 2018
Sharing Resources for Families of Children with Special Health Care Needs


What if our young adult son doesn't want guardianship?  Does  he have choices for independence?  What is the difference between shared decision-making and supported decision-making?   This website from Quality Trust for Individuals with Disabilities in partnership with Family Voices and Parent-to Parent USA can help! It has resources, stories, and other helpful information for families and providers.

  
2017 Highlights:  the Work of Family-to-Family Health Information Centers    
2017 was full of many challenges, and also a LOT of great work helping families navigate the complex world of health care for children and youth with special health care needs. Check out some examples of the ways in which the Family-to-Family Health Information Centers and Family Voices State Affiliates in each state are helping families.


On February 27-28, 2018, the California Family-to-Family Health Information Center and Family Voices State Affiliate hosts their 16 th  annual event to  bring together families, youth, providers, policymakers, state agencies, and advocates who are eager to improve services and systems of care for children and youth with special health care needs.

Check the website of the Family Voices State Affiliate or Family-to-Family Health Information Center in your state (find yours here) to learn more about making your voice heard on issues affecting your child with special health care needs and your family!

Need wheelchair accessible wheels? Mobility Works provides all kinds of options for financing as well as new and used vans. Imagine your entire family rolling down the road TOGETHER, SAFE and COMFORTABLE. And many more mobility resources!

If you are like most Americans... you have New Year's resolutions. Lose weight? Exercise more? Perhaps learn something new each month? If your resolution focuses on learning, check out this profile for an in depth history, explanation and review of State Title V programs. Use this document to learn something new and better understand the system in which you toil for your children daily!

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About Family Voices

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities.  We promote partnership with families--including those of cultural, linguistic and geographic diversity--in order to improve healthcare services and policies for children.