We hope that our Angel Fund family is staying safe through these uncertain times. As we adjust to our new normal, we continue to move forward with hope and promise.
We've learned new ways to communicate and be creative in our way of doing things. Virtual road races, walks and Marathons are a way of life for now. One thing that has not changed is that ALS still affects people and has no cure. BUT, we have more promising research now than we ever before.
Dr. Brown and his team of researchers at UMass Medical School are on the cutting edge of ALS gene silencing research. We need all the support we can get to move this promising research to the next level. See article below.
Our Angel Fund supporters have stepped up to cure ALS and we are so grateful to have you beside us in this fight against ALS.
Thank you.
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Virtual Walk of Hope for ALS
Walk from anywhere -
Live Kick off on Saturday!
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The Angel Fund's Walk of Hope for ALS will be held virtually this year on Saturday, September 12th.
With Covid19 restrictions in place, and the need to keep our Angel Fund family safe, we made the decision not to have the physical walk in Wakefield. You can now walk from anywhere in the world!
We still want you to gather family and friends (socially distanced), create your team and join us virtually as we raise funds for ALS research.
Angel Fund President Rich Kennedy and Dr. Robert Brown will be live to kick off for the Walk at 11 a.m. Here is the link to watch.
If you cannot walk with us on September 12th, you can donate to The Angel Fund by clicking here or you may donate by sending a check to The Angel Fund for ALS Research, 649 Main Street, Wakefield, MA 01880.
Learn more by clicking here.
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Virtual Boston Marathon September 7th
On Monday, September 7th, our Boston Marathon Team stepped off the 'starting line' on their virtual Boston Marathon.
The team ran 26.2 miles on the bike path in Yarmouth, beginning at 7:00 a.m.. They were joined by two team members from ALS One and Compassionate Care ALS. The three organizations joined together, socially distanced, to raise funds for their charities.
Angel Fund President Rich Kennedy joined the Teams on his bike for the 26.2 miles!
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Virtual
Golf Tournament
Golf
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The 6th Annual Angel Fund Golf Tournament will be held virtually this year. The Keane family invites you to golf anytime, anywhere from September 24th to October 4th.
As with our annual walk, due to Covid19 restrictions and our commitment to keep our Angel Fund family safe, the annual golf tournament in Hopkinton is now virtual. You can now golf from anywhere!
You can golf at a golf course, hit a bucket of golf balls, or golf with family at a mini-golf course. Win a prize – just for signing up. We will choose two golfers to win special prizes!
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Virtual Gala - and Online Auction |
Our Annual Gala will be an online auction. Look for more details coming soon!
Our balloon contest will be held too!
If you have an auction item to donate, please email us.
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Silencing of an ALS gene safely delivered to patients in UMass Medical School study |
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Synthetic microRNA treatment targets mutant SOD1 gene that causes ALS
By Jim Fessenden
UMass Medical School Communications
UMass Medical School and Massachusetts General Hospital are the first to safely treat two research participants with a synthetic microRNA, delivered into the spinal fluid, designed to silence a human disease-causing gene. Details of the treatment, which targeted the mutant SOD1 gene that causes ALS, appear in the New England Journal of Medicine.
The study was led by Robert H. Brown Jr., DPhil, MD, the Leo P. and Theresa M. LaChance Chair in Medical Research, professor of neurology and director of the Program in Neurotherapeutics at UMMS; and Christian Mueller, PhD, associate professor of pediatrics at UMMS, in collaboration with Merit Cudkowicz, MD, director of the Sean M. Healey & AMG Center for ALS, and chief of neurology at MGH and the Julianne Dorn Professor of Neurology at Harvard Medical School; and James D. Berry, MD, MPH, the Winthrop Family Scholar in ALS Sciences and chief of the MGH Division of ALS and Motor Neuron Diseases at the Sean M. Healey & AMG Center for ALS at MGH.
“The biggest takeaway from this study is that we delivered a new class of silencing gene therapy to patients and suppressed levels of the ALS gene SOD1 quite effectively,” said Dr. Mueller. “The next step for the program will be to test the clinical efficacy of the second generation of this clinical candidate in a placebo controlled trial.”
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You can donate to
The Angel Fund from your home!
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Shopping Online?
When you make a purchase on Amazon, you can choose The Angel Fund for ALS Research
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Having a birthday or special event?
You can ask friends and family to donate on Facebook to your special day. Set up your fundraiser here.
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Shaw's Giving
Shoppers can support the community they call home by directing their $1 donation generated from the purchase of the $2.50 GIVE BACK WHERE IT COUNTS Bag
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Your donations do make a difference. Dr. Brown and his research team are on the cutting edge of silencing ALS genes. Let's help to move the research to the next level! Let’s Walk and Step up to Cure ALS!
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THE ANGEL FUND FOR ALS RESEARCH - 649 Main Street, Wakefield, MA 01880 |
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